Immunotherapy Treatment Fund
After talking to the Doctors at both QMC Nottingham and Queen Elizabeth Hospital Birmingham Phil decided to proceed with a massive operation called The Whipples Procedure in the hope that the cancer could be removed.
The operation date was set for 21st September 2015, the day before our 25th Wedding Anniversary. The operation would be done at Queen Elizabeth Hospital Birmingham.
Unfortunately this operation was unsuccessful and Phil suffered many post- operative complications and spent 6 weeks in critical care being looked after by amazing nursing staff and doctors. On more than one occasion I was told that Phil would not survive. With the support of friends, family and our two amazing children Robert and Madeleine I was able to spend every minute by Phil's side. We came home at the end of October to start the process of getting Phil well enough to start Chemotherapy as this was and is still the treatment that is giving us time. Time is something that we don’t have a lot of. As I’m sure each and every one of you is aware Pancreatic Cancer has the worst survival rates with less than 4% surviving for 5 years or longer following diagnosis. Phil started Chemotherapy on 28th December 2015 and continues on a 14 day cycle. The chemotherapy is doing its job, well the best job we can hope for from chemotherapy alone. The cancer hasn’t grown and it hasn’t spread. Phil has just received his 17th cycle of treatment. This treatment will continue for however long Phil is coping with it and is well enough or until the cancer starts to grow and takes over.
My brother in law Richard and I have spent many hours researching treatment options across this country and also the world. We have investigated a number of options, spoken and visited doctors, and it would appear that our best and remaining option is Immunotherapy. This treatment will run alongside Phil's current chemotherapy. Immunotherapy is currently not available in this country for the treatment of Pancreatic Cancer so we will have to travel to Germany. We have spoken with doctors in Germany and along with Phils current treatment regime here at Queen Elizabeth Hospital Birmingham they are confident that they can treat Phil and put the cancer into remission. This treatment is very expensive and this is why I have decided to share my story as I now need everyone's help.
I need to raise £60000! This money can give my family and I much more time and could even save Phil's life.
What is Immunotherapy?
Immunotherapy is a type of cancer treatment designed to boost the body's natural defenses to fight the cancer. It uses substances either made by the body or in a laboratory to improve or restore immune system function
The £60000 will mean Phil can travel to Germany a minimum of 5 times and receive the immunotherapy treatment that we hope will not only extend his life but also save it. It will also fund further treatments recommended
by the clinic.
At last we have some positive news to share. When we launched our fundraising campaign back in September 2017 we received lots of emails from people with links to various trials and treatments. We investigated each and everyone but Phil wasn’t suitable for any of them. One of the emails suggested Irreversible electroporation (Nanoknife), this is the only option we didn’t follow up as we had already been turned down for this treatment in July 2017. However, after a chance conversation with a patient at Birmingham we decided to contact a Professor in London for his opinion. Things have moved very quickly but basically he has reviewed Phils recent CT and MRI scans and he feels Phil is a suitable patient to have this procedure. The Professor feels that along with immunotherapy this may increase Phil’s chances of going into remission. We have a date booked for this procedure, and It’s very soon. We will update everybody on how this goes. This treatment is not available on NHS and is expensive. Once again we can’t thank everybody enough because without your continued support this would not be possible.
We are a quarter of the way there now. Please continue to share, share and share. We are starting to believe we can reach this target.
Sadly it also included people whose lives have been scarred by this terrible disease. I am so sorry for your loss and I know that anything that I say will be insufficient.
The list has also included people who do not know me or my family but have donated to my cause and those that have chosen to donate anonymously. What can I say to everyone? This is proof perfect of the wonderful qualities that people possess and the inherent goodness of human nature. I can never thank you all enough and am so proud to be linked with you in whatever way.
On Saturday 1 October 4pm-6pm The Hearty Goodfellow Pub in Southwell is holding a Great Hearty Bake Off with all proceeds going to this appeal please find us on facebook The Hearty Goodfellow and like and share our events page for it as we are desperate to spread the word. Thank you xxx
Just some helpful advice.... (Apologies for this on an open forum, I do not know how else to contact you) 1) NHS Funding Arrangements for Treatments Abroad: As the treatment you seek is not offered by the nhs you cannot take the S2 Route, (as you describe) but.... have you considered EU Directive 2011/24/eu on patients' rights in cross-border health care. There is the right to apply to NHS England for funding (IN ADVANCE ONLY) under the "Exceptional Circumstances" gateway. See https://www.england.nhs.uk/wp-content/uploads/2016/03/nhs-revsd-info-pats.pdf 2) Emergency Financial Help from a Police Pension: Given Phil's length of service I guess you are a member of the 1987 scheme..... The Police Pensions Regulations 1987 (SI 1987/257) section B3 (ill-health retirement) could be applied; you may also be entitled to an enhanced upper tier ill- health pension given the circumstances. Once applied you can exchange (‘commute’) part of your pension permanently, in exchange for a lump sum. The 1987 Scheme (if you have not transitioned into the 2006 or 2015 schemes) is more generous than present day terms and conditions and a serious avenue to consider. See https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/117693/pps-members-guide-oct-06.pdf I would advise you get some urgent legal/financial advice. I hope my comments help and you are not offended. Feel free to remove this post if you wish. Good luck with the fund raising.