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Sydni's New Hope - Goodbye Seizures

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Help us kick the pink helmet to the curb!



Updates; Sydni has been on her high CBD 

cannabis oil for 5 months now and has had her total # of seizures drop drastically and her brain start to think much more clearly. As I type this I can say I haven't seen a drop seizure today, and that is awesome!

 



Our Story
Hi, I am Sydni's mommy, Holli. 
My daughter Sydni has what is known as Doose Syndrome. For almost 6 years now Sydni has had seizures 24/7 (roughly 125 seizures an hour on her EEG). She has many types of seizures. Her drop seizures are the most dangerous for her. She has had 2 broken arms, 4 sets of stitches, and uncountable bruises, cuts, and scrapes. She has also been unable to keep up in school as a result of the seizures and even some of the pharmaceuticals themselves. She is 9 and unable to read or write due to these continual "seizure marathons" in her brain. She can no longer tell stories or draw pictures or do most things she could before.




BUT... so far I have seen her make some amazing strides, and in very little time. I know in my heart we are on the right track and I can't wait to see her FINALLY enjoying a normal childhood. We feel like after all these years we are going the right direction to finally "kick the seizures in the butt" as I tell her.  

The help and support Sydni and I have recieved means more then you guys will ever know.

Please watch our quick story on WebMD 

Organizer

Holli Brown
Organizer
Linden, MO

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