Devon's battle with neuroblastoma

On January 21st 2015  my life changed forever ..on this day after 8 weeks of continually being unwell and taking little man to the doctors over and over again to be told on each visit that Devon  had nothing more than a virus ..I finally got a doctor to listen to my concerns that this was something  more serious and he referred Devon to the hospital that same day for some tests.. .later that day in the hospital a junior who examined Devon said that she could feel a lump in his tummy and he was sent for an ultrasound scan...that was the start of the most heartbreaking traumatic  and emotional journey I have ever been on and am still on now ..that night Devon got transferred to Alder hey hospital and after more tests my little man aged just 2 years and 10 months old  was diagnosed with Stage lV MYCN amplified Neuroblastoma with bone and liver metastases ..in short this means Devon had a large solid tumour growing in his belly into his liver and into his kidneys he also had small cells of the tumour in his legs and a couple in his chest ..Devon became critical with the first couple of weeks of diagnosis and we never got to leave the hospital that day until the middle of March when we finally returned to our home ..since then Devon has had hundreds of procedures  and weeks and weeks of hospital stays  including 8 cycles of chemo ....removal of 95% of the main tumour and removal of his kidney  ...stem cell harvest and stem cell transplant ..and most recently and the most traumatic   ..a week in intensive care on a ventilator  because he developed septis in his bloodstream from an infection in his central line going into his chest . This was the most scared I have ever been in my life ..I came so close to losing my baby I was  terrified  but once again his strength to fight shone through and he pulled through ...Devon still has a long road ahead of him including radiotherapy and immunotherapy but my boy is superman himself he is just the strongest bravest little boy who has endured so much but always has a smile for everyone he is a true warrior and I am humbled by him which is why I have set up this fund to help him on this journey..I  have also just recently found out that the cancer Devon has is so aggressive a high proportion ..as much as 80% with high risk neuroblastoma will relapse and in the case of relapse there is no standard treatment path to follow. When children cannot get onto a UK trial parents are left with no option except to fund raise at short notice to follow foreign treatment paths abroad costing thousands and thousands of pounds ..as you can image I was heartbroken hearing this but all I can do is keep praying with everything iv got that This will not happen to Devon and once he does get into remission he will be cured of this terrible disease but in reality there is no certainty of this and i want to start preparing but can not do this on my own.... all i want to do every day is make my little man smile because he has months could even be years ot treatment left .. even if he didn't need this treatment abroad I just want him to have everything to make his life easier as his future is so uncertain ..with all the chemo and the treatment he has received since January the side effects from this all have potential for long term health problems for him in the future including infertility , hearing loss and secondary tumours and this scares me so much for him so yes im going to ask for help at every corner i can ... x thankyou for reading this ....iv laid my soul bare iv done it so my baby gets the best I can give him ..he so deserves it xxx thankyou xxx