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SPECIAL ROOM FOR TYLER

$3,745 of $25,000 goal

Raised by 49 people in 16 months
What an amazing strong young man Tyler is! He's endured more in his short life than many people can possibly handle. On top of his lifelong disabilities, he recently has had to deal with some medical setbacks that are currently undiagnosed and has kept him hospitalized for over 2 months so far. Each symptom is being treated separately to help keep him medically stable. One new thing to get used to is his g-tube (feeding tube) which is helping nourish him & keep him healthy. To top off all these "new" medical issues, his most recent surgery took place on 4/10/17. He had bilateral hamstring lengthening, which was very successful, but due to being hospitalized so long with other things, it hindered his recovery. He is now unable to stand or walk. He's working very hard with OT & PT to gain enough strength to do this just enough to help with his overall care. With all of his surgeries the passed several years, Tyler has become more and more physically fragile and doesn't navigate well outside of using his wheelchair. That said, we are in desperate need of creating a completely handicapped accessible room/suite in our home on the main level ASAP!! It will include everything he needs for his care, including a completely handicapped-equipped bathroom. We are also facing many upcoming continued expenses for doctor appointments (wherever we may need to go) to still continue testing for the diagnosis of his new conditions (which seem to be metabolic). Also, we've come to the realization he may be completely wheelchair bound for an indefinite timeframe and we will most likely need a wheelchair ramp built. Some of the equipment he needs for his care is also not covered by insurance!!

We as a family always find joy in helping others and dedicate time each year to volunteer or help where we can, it is very hard for us to say "we now need that help."!!!! TYLER NEEDS YOUR HELP!! Please find it in your heart to donate even $5 to help us get this special space built for him and any necessary equipment needed/expenses he may incur going forward. Thank you on his behalf & from the bottom of our hearts! Much love and many hugs to you all!!! #teamtyler




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Motorcycle ride for Tyler...ending at his benefit!!
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Come visit with Tyler & have some fun!! Great raffles, food & music!!! ❤️
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MORE FUNDS NEEDED!! We are so thankful to everyone who has donated to this special fund for Tyler!!! We are still very much in fund-raising mode!! There has been some meetings and conversations discussing specifics for the room for Tyler. We will share the details soon, as we are still putting together the appropriate information and schematics. This new room is sooooo desperately needed!!!! Please share share share this page. Tyler, as well as both of us, are extremely thankful for all of you and ALL the help we can get to make this happen!!! Thank you! Love you all! ❌⭕️❌⭕️
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Hello everyone! Sorry we haven't updated in a while. Have had many appointments and spent many hours on the phone making appointments and establishing new doctors!! One thing that's consistent so far is PT...we are doing outpatient rehab at Upstate with all our friends there. They push him hard & he puts in amazing effort!! He is bound & determined to stand and walk a little again!! It won't be the same as before, but he craves that part of his life back!! Tyler is getting along well at home. Has been eating his lunch & dinner these days, so we've cut back on tube feeds to 8 hrs a day. He still won't drink & takes all meds by tube, but one step at a time. His spirits are good and he tends to be happy most days. We welcome any visitors...just give us a call & let us know you are coming. Much love & hugs to all!
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$3,745 of $25,000 goal

Raised by 49 people in 16 months
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$25
Michele Taylor
12 months ago
MM
$50
Marty Mooney
12 months ago
KK
$25
Kathie Kline
12 months ago
$50
Anonymous
13 months ago
AC
$100
ALAN COHEN
13 months ago
$100
Anonymous
13 months ago
LC
$25
Lenore Cassese
15 months ago
$25
Sue Short
15 months ago
$20
Nathan Cohen
15 months ago
MW
$50
Marty Wimmer
15 months ago
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