Serenity Rose's Medical Fund

$12,915 of $15,000 goal

Raised by 162 people in 32 months
Allison Apuzzo Provinsal
on behalf of Renee Dronebarger
 STIRLING, NJ
For those of you who do not know Mike and Renee, my brother and sister in law, they are fighters! They have had a long journey together before FINALLY tying the knot this past July after being together for nearly 10 years! When they found out they were going to be having a baby, although it was before they would have planned, they joyfully welcomed this addition to their little family. Not long after they found out, they discovered that their precious child was going to be born with Down Syndrome and several heart complications. Being the strong and faithful people that they are, they did not run from the situation, or try to terminate. Instead, they began to plan and prepare for their perfect gift from God! They welcomed their first child, Serenity Rose only 5 days ago and she is as strong and beautiful as her mamma!

Serenity was born on September 29, 2016, two weeks early, at the Children's Hospital of Philadelphia, with not only Down Syndrome, but also with three separate heart issues as expected. Each severe in and of themselves, but this perfect girl has to fight against three separate conditions, which means three separate Heart Surgeries.

Her first surgery will be Wednesday, October 5th, Just shy of her turning one week old. This surgery will be to repair her aorta. She has an Interruption of the Aortic Arch, which means a section of her aorta is missing. "The aorta carries oxygen-rich (red) blood from the left ventricle of the heart to all parts of the body. The aorta normally has a candy cane shape with small arteries (blood vessels carrying oxygen-rich blood) branching off, first to the head and arms and then curving down toward the belly to the lower body and legs.

In interrupted aortic arch, the first part of the aorta (which supplies blood to the head and arms) is not connected either to the second or to the third parts of the aorta (which supply blood to the lower body and legs).

This means that oxygen-rich blood pumped out of the heart cannot reach the lower body and legs normally. Instead, the descending aorta is connected to the pulmonary artery by a blood vessel called the ductus arteriosus." (seattlechildrens.org)

She will hopefully be able to go home for a few months after a month or so of recovery in the hospital before heading back for her second surgery. Her second surgery will be at a few months old, where they will build a septum for her. Her second Cardiac condition is Endocardial Cushion Defect. With this there "is a hole in the wall (septum) between the right and left atria (atrial septal defect, ASD). There is also a hole in the septum between the right and left ventricles (ventricular septal defect, VSD).

In addition, the two atrioventricular valves are not formed correctly. A baby with AV septal defect may have just one larger valve opening in the middle, instead of one on each side of the heart.

Together, these problems may create a hole in the center of the baby's heart. As a result, blood does not flow the way it should between the chambers. So the heart has to work harder to pump blood to the lungs and the rest of the body." (seattlechildrens.org)

After fighting through both of these surgeries and all of the recovery time, Serenity and her parents will still have a long journey ahead of them. They will have to learn the ins and outs of raising a child with Down Syndrome, all the joys and all the struggles which that will bring. As they go on with raising Serenity, they will also be preparing for a third surgery when Serenity is a few years old. This, hopefully, final surgery will be to fix the left side of her heart, which is smaller in size than the right side.

Mike, Renee and Serenity have already defied so many odds, and now they have a long journey of defying many more together. But they need your help! While Mike and Renee will do everything in their power to provide every necessity for their sweet daughter, no one can deny that the medical bills will be great. We are asking for donations to help take a bit of pressure off of Mike and Renee financially, so they can focus on what is truly important, getting Serenity better and home!

We above all else are asking for your prayers! We truly appreciate every prayer, kind word and donation of any amount. Every little bit helps! Thank you in advance for your prayers, thoughts and donations, you will never know how much it means to Mike, Renee and our family!
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Serenity did great in surgery today! Thank you all for the prayers today! The surgeon was able to remove the band that was put on in her first surgery and repair the holes in her heart. He was unable to fix one of the heart valves due to its small size, so that may be something that needs to be repaired in the future. He is hopeful that will be a repair years down the road and not in the immediate future. All in all the surgery was a success and Serenity is doing great! Prayers for a smooth and speedy recovery.
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Update on Serenity. It has been a while since I have posted an update, but we are all so grateful for the continued prayers and support from all of you! After the last update Serenity was diagnosed with Cerebral Palsy which was caused by oxygen deprivation to her her brain from when she stopped breathing after her fight with high fevers and seizures. Since then, she has been staying at the Bristol-Myers Squibb children's hospital in New Brunswick. This has offered her round the clock monitoring and care. Primarily it has offered her continuous therapies to help her grow and develop. Thanks to all of the nurses and therapists there, she is now strong enough and big enough for her second major heart surgery to build a septum to allow her heart to function normally. The surgery will take place back at the Children's Hospital of Philadelphia tomorrow morning. We are asking for all of your love and prayers for Serenity tomorrow. She is a fighter as we have seen time and time again and we are hopeful and confident that this will be no different. We are hopeful that this will be the end of her surgical needs, although we know she has a long journey ahead of her. Please share this post with friends and family. The more prayers and support behind her the better! Again, we are so grateful for each one of you who have supported Mike, Renee and Serenity these past six months in so many ways and they have seen the power of your prayers and love transform what may have seemed like an impossible situation into one of love and strength.
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Good news! Serenity has been getting better and stronger each day. Her spinal tap on Friday showed no infections and they have found no bleeding or other problems with her brain as a result (or the cause) of the seizure. This led to them being able to take her off of the antibiotics she was on in case of meningitis and other potential infections. She received a blood transfusion which helped get he kidneys and liver on the way back to normal functioning. They were also able to take her off of the breathing tube today after she got her breathing back up to normal on her own. After being told she may not make it a week ago, Serenity has again proved to be a fighter as she continues to improve and defy all odds. We can not thank you all enough for the prayers and support this past week. Please keep them coming as Serenity continues to recover and gain strength in preparation for her next heart surgery.
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Update on Serenity: Currently Serenity is stable, we are seeing some improvement but still has a long way to go. She needs to have a couple different tests to clarify and rule out some things, but she is not stable enough yet to safely have them. She still is not able to breathe on her own and is having issues with internal bleeding and decreased function to her kidneys and liver. Please continue to pray for wisdom for the doctors and continued improvement for Serenity.
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Read a Previous Update
Dayna Chandler
32 months ago
1
1

Congrats on your sweet little beautiful blessing!! I have to say children with Ds are the best---every family should be blessed with one! :) I have a 10 year old son, Luke who has Ds--he is our joy boy! He was born with a serious heart defect as well and had open heart surgery when he was 4 months old--at CHOP. He is thriving now! He inspired me to create a website full of adorable faces and positive info. I'd be happy to hear from you if you want to chat or email or FB message. Contact info is on the website: www.alifeworthliving.us I will keep you all in my prayers, Dayna

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Jill Wexler
32 months ago

What a beautiful, sweet baby. Prayers for a speedy recovery. It's so hard to see children suffer - they are SO resilient. ♥

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Jessica Weiner-Conley
32 months ago

Love thoughts and prayers you are in an amazing place my nephew has downs and was born with vsd and chop is where he had surgery they were amazing!!!!

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Kate Miggins
32 months ago

Lots of prayers and best wishes sent to the three of you!

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Carol Hynek
32 months ago

Prayers for everyone

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$12,915 of $15,000 goal

Raised by 162 people in 32 months
Created October 3, 2016
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BD
$15
Brian Delfs
15 months ago
$500
Anonymous
19 months ago
MM
$250
Myers Maintenance
19 months ago
ZH
$100
Zuzana Karas/ hrebikova
25 months ago
KS
$25
Karl & Theresa Schlegel
25 months ago

Serenity Rose is in our prayers!

$100
Anonymous
25 months ago
CF
$50
Christine Di Falco
25 months ago
EM
$25
Ellie May
25 months ago

May God be with her.

RS
$25
Rhiannon Stitley
25 months ago

Praying for your beautiful baby girl!

AT
$25
Amanda Temple
25 months ago
Dayna Chandler
32 months ago
1
1

Congrats on your sweet little beautiful blessing!! I have to say children with Ds are the best---every family should be blessed with one! :) I have a 10 year old son, Luke who has Ds--he is our joy boy! He was born with a serious heart defect as well and had open heart surgery when he was 4 months old--at CHOP. He is thriving now! He inspired me to create a website full of adorable faces and positive info. I'd be happy to hear from you if you want to chat or email or FB message. Contact info is on the website: www.alifeworthliving.us I will keep you all in my prayers, Dayna

+ Read More
Jill Wexler
32 months ago

What a beautiful, sweet baby. Prayers for a speedy recovery. It's so hard to see children suffer - they are SO resilient. ♥

+ Read More
Jessica Weiner-Conley
32 months ago

Love thoughts and prayers you are in an amazing place my nephew has downs and was born with vsd and chop is where he had surgery they were amazing!!!!

+ Read More
Kate Miggins
32 months ago

Lots of prayers and best wishes sent to the three of you!

+ Read More
Carol Hynek
32 months ago

Prayers for everyone

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