Fighting For Robbie
- January 25, 2014 he was back in the ER with a severe rash under his cast. It was treated with antibiotics
-February 20, 2014 his spica cast was removed.
-March 20, 2014 he started complaining of belly pain off and on for most of the morning. Took him into the pediatricians and she sent us to Children's Hospital ER (2 hours away), he was diagnosed with intussusception. It' rare and it's when a portion of the intenstine telescopes into itself. Very serious, can cause death in just 2-5 days (please don't ignore colicky belly pain in your small children). The corrected the issue within air enema and sent us home.
-March 24, 2014 after a rough fever filled, sleepless weekend our PCP sent us again to children's hospital with the fear that he had an infection from the intussusception. They did an X-ray and nasal swab and determined his high fevers as due to a respitory virus (though he had no cold symptoms and never developed a cold)
-April 9, 2014 after a few good days he suddenly started to not feel well, was sitting on my lap and told me his head hur, had an episode and almost passed out (he has been complaining of headaches off and on since early Feb, could never get anyone to address the issue)Took him to local ER and they diagnosed him with an ear infection.
-April 10, 2014 I confronted our pediatrician about all these mysterious ailments in such a short time frame, told her that I wanted answers and she agreed it was abnormal and was concerned about the headaches. He tested positive for strep throat while we were there. She consulted a neurologist and the requested we come down to childrens for a CT scan on his head and bloodwork. CT scan showed a tumor. He was admitted into the PICU at children's.
-April 11, 2014 they did an MRI on his brain and spine. The tumor is a little over 4cm and located in the front left part of his brain. It has not spread into his spine nor anywhere else in is brain, but the tumor is large and the neurologist doesn't feel this can be corrected by surgery alone. The have scheduled his surgery for Thursday, April 17th.
The outcome and follow up have yet to be seen, but we have been told our stay here will be lengthy. We have a 10 year old daughter who is unable to stay in the PICU with us and has needed to stay in a hotel with a relative in from out of state while we wait for an available room at the Ronald McDonald house.
We need help to be able to stay here and care for our son with as little distraction as possible. It is not reasonable nor affordable to make to one way 2+ hour drive daily to see our son and neither of us is comfortable leaving him right now either. As hos comfortis hard to maintain right now. Even if you can just donate a small amount it makes a huge difference for us. Please think good thoughts for our son.
Thank you for your time!
We leave in 2 days for a week!
I had always meant to announce he was approved for a wish, and then in March/April when we decided on a when I was going to announce it, but I wanted to be sure it was going to happen and not jynx anything.
Been trying to save money like crazy so that the kids can get any silly souvenir their heart desires.
I am looking forward to some amazing family time and making beautiful memories ❤
We've been telling Robbie we are going to Mickey Mouse's house, but I don't think he realizes we really are, so I can wait to see his reaction when we get there :)
Sister is a bundle of excitement and cannot wait to have the bragging rights of having been to Disney World :)
Thank you all for your prayers and support ❤
Any sharing of this is greatly appreciated too, I hate to continue to ask for help, but I don't have many other options at the moment.
Such a beautiful smile.
Thank you to all of Robbies donors.We appreciate any amount that you donate.
Thank you to all my personal friends and everyone else as well for your donations and prayers. Please keep my family in your prayers as there is a long road ahead.
Thank you every one for your donations to my nephew And all your prayers. My family thanks all of you for the love and support your all giving us weather it's a prayer, donation or just keeping my nephew in your thoughts