2YearOldNoahNeedstoEat #kidswithFD#
Donation protected
Noah is a Miracle Micro Premie born June 17, 2013 at 24 weeks 1 lb 14 ounces in Phoebe Putney Memorial Hopsital Albany, GA. He lived in the NICU for 296 days at Childrens Healthcare of Atlanta Scottish Rite in Atlanta, Ga. Noah endured 17 blood transfusions and 17 surgeries. 7 of them were on Thanksgiving Day 2013. Noah is a miracle. HE WAS BORN WITH A PURPOSE! All babies are Blessings and Miracles!
#NOAHNEEDSTOEAT#
Our Noah is a strong survivor! We thank many of you in our community for your ongoing support. Noah says “Go, Go, Go, Go" and right now that is about all he can say. Noah will be 3 years old this June and he is still unable to walk, talk or feed himself. He used to enjoy a very small variety of foods until his front teeth were removed and never replaced in August of 2015. Our little Noah began a food aversion that transcended into a severe feeding disorder. His formula feedings were given strictly through his Gastronomy Tube. Outpatient therapy became impossible because Noah was vomiting constantly, most times unexplained. In December Noah’s GI doctors discovered his Gastronomy Tube Site Prolapsed. This was painful to watch and we all cried every day. He was in pain for weeks before he could receive surgery. The surgeon explained the solution that was best for Noah was to close the site and place a Nasal Gastronomy Tube for 8-12 weeks and then place another Gastronomy Tube site. Our main concern was accidental dislodgment of the Nasogastric tube which can result in aspiration into the lungs. We are his parents however we are not qualified medical professionals who can accurately check for placement and respond expeditiously in the event he begins to aspirate at any given moment.
February 16th 2016 Noah G Tube site was closed! We had our doubts about how we would be able to handle a child who is as strong as Noah. After his surgery Noah managed to pull out the NG tube and it took 4 people to hold him down to re insert the Gastronomy Tube with “Nasal Bridle.” The Nasal Bridle is designed to prevent pull outs. It is actually supposed to cause such a level of discomfort you a normal person would refrain from pulling or tugging. Noah is a normal person with a variety of disabilities and by the way he is two years old with sensory processing issues and global developmental delay. At this point we knew this would be an extreme challenge that would require the “Hulk.” We went home with No Nurse, No Speech Therapist or a Nutritionist.
The day after we brought him home it was out. It has been out. We have been feeding Noah with the help of the NINJA 1500 and a slew of fruits and vegetables. We started with juicing then we advanced to smoothing. We knew it would be too traumatic to continuously take Noah on an 8 hour trip almost daily for 8-12 weeks via the emergency room because MEDICAID will not cover an inpatient stay in the hospital for a Nasal Gastronomy Tube. Now we have to expose our medically fragile son to the dangers of the atmosphere in and out of a hospital?
What would you do if you are told there is the GAP WAIVER Program designed to place a nurse in your home and it will take 8 weeks to get approved but there is a shortage of Nurses?
What do you do if the local hospital has a pediatric floor but they are not trained on the Nasal Bridle device meaning you have to travel over 250 miles each way each time each day your child pulls out the tube that was put in to provide his most valuable source of nutrients?
There is a lack of pediatric specialist in Southwest Georgia. Children along the flint everywhere are sometimes forgotten. We need qualified professionals in this community whether or not our child has a feeding tube because he is not the first and he will not be the last child who will need an alternate way to get the nutrition he is entitled to receive without being exposed to infectious diseases.
Licensed Pediactric Nurses, Therapist, Specialist and Special Education Teachers are wanted and needed in SWGA! Qualified medical professionals are needed to work with Noah and other kids like him in our community daily.
We want to design a Gymboree for children with Special Needs/ Developmental Delays.
Parents can bring their children to qualified professionals while they await Specialty Pediactric Services and Therapies.
Organizer and beneficiary
Antonio Millings
Organizer
Albany, GA
Antonio Millings
Beneficiary
