Marcy's Fight

$17,935 of $30,000 goal

Raised by 99 people in 53 months
Almost four years ago a three hour eye twitch turned into a diagnosis of two tumors in my head and two in my neck. My body overproduces dopamine and adrenaline which causes tumors to grow along my  nervous system, obtain their own blood supply and play havoc with the surrounding nerves. I hadn't felt well for a while prior to diagnosis so I was deteriorating more quickly than I had wanted.

Radiation was unsuccessful and caused tumor growth in 2011 at UNC Chapel Hill. Thankfully I am an Air Force veteran and the VNA helped pay for my medical care at Duke through 2013. I've had my left carotid artery replaced and sacrificed my left vocal chord in 2013 at Duke because I was within several weeks of a major stroke. On a great note, the tumor was mostly removed. Later in 2013 I had another tumor resection at Duke. However, it couldnt all be removed because of the location of a nerve. I also have a tumor on my brain stem that is growing faster than expected.

When a cancer is rare there is not a lot of funding for research. I wasn't a candidate for one trial but I've been accepted into a new clinical trial with only one site in the US located in Houston. I've undergone the testing at Duke for this medication. My tumors do absorb it and should cause shrinking or cease progression of growth. This is my only chance right now. What would come next is a permanent trache and feeding tube in the near future as well as new tumor development throughout my body.

There is no need to share everything that is wrong with me, but I can tell you what is right with me. I still try to sing (against my friends and family's wishes) with one vocal chord. I still love to laugh until I cry. I've learned to appreciate the sunrise and another sunset. I still have the compassion and understanding to know that there are many people in a worse situation than I am. I have a strong will to live and have done my best to maintain a positive attitude. I need to be here for my son Nick.

The clinical trial requires all expenses to be paid for up front prior to each treatment. Additional costs include airfare, car rental, food and lodging. Unfortunately I am permanently disabled and not in the position to cover all of the expenses that are going to be involved throughout this trial for the next two years.

It's totally not in my nature to ask for assistance with anything if I can at all help it. But I'm not ready to become that debilitated not if there's a single chance out there that I can do something to stop it. I have swallowed my pride and asked for your assistance. Please consider making a donation to help me.

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I have head and neck lymphedema as a result of being on bypass during the carotid graft and must wear this full beautiful face mask while sleeping as well as doing continual manual drainage throughout the day. I have been in physical therapy at PT for Women every week for over a year to help maintain the lymphatic drainage and assist with repairing range of motion and nerve damage as a result of tumors and radiation.

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I hope everyone is enjoying the warm weather. I completed my second treatment yesterday. Thank goodness that is over. I have to say those four hours continue to be incredibly terrible.

I really hope that this medication works when it's all said and done. It takes its toll on my family not just me. My son Nick has been coming home from school for quite some time only to be quiet and tiptoe bc he knows his mom fell asleep trying to wait up for him.

I have two more treatments left and then quarterly trips to Houston for the next two years for follow up for a total of nine more trips down here. I can't even think that far in advance because it's too overwhelming. For now I will keep taking it one day at a time.
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I apologize for the delay in updating everyone. I feel like I have been in a crazy fog with a terrible memory. I have had a difficult time w the nausea. Nothing worked until we tried some kind of patch. The bad part is it gives me blurred vision. Lovely huh? Twelve days after getting back home I started losing my hair. It's been three weeks or so that it keeps falling out. Needless to say, I no longer have thick hair. It's thinning quickly. I am supposed to return to Texas May 31st to get the second treatment. I'm not looking forward to those four hours of high blood pressure, chest pains, nausea and vomiting but I need this treatment and I need it to work!! I still appreciate everyone's support and would really appreciate it if y'all could continue to share my page as I'm still 7k in the negative from reaching the amount I must pay a week before I travel.
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My second trip for treatment is scheduled for May 31st. It's not that far away. The nausea and blood pressure spikes seem to be the most bothersome. The chest pains seem to come at the most U welcomed times.

Thank you to all of you who have donated and/or passed along words of encouragement to help make this treatment a reality. I really can't say thank you enough for helping make the first treatment a possibility. It's so crazy how much of an effect cancer can have on someone mentally, physically, emotionally, and financially. Thank you again for your continued donations and support.
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Finally on my way back home. I'm so happy to have one trip on the books. I am so over this continuing nausea but I think it's due to the Lutate fighting my tumors and my tumors fighting back. I came to Texas with what I thought was only a tumor on my left brain stem and one on my right carotid. I'm going home knowing I have a new one on my left carotid (again) and on my right brain stem. What a thoughtful combination for balance. (Err) Needless to say the new tumors are showing uptake so this medicine should be knocking them out.

The next couple of months will consist of scans back at Duke and bloodwork before returning back to Texas May 31st for my second go round. For a treatment that is supposed to work, why does it have to be so darn crazily expensive?

Nevertheless I'm ready to go home.
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Kearney Ward
52 months ago

Marcy, you are such a brave person, you are a true inspiration to. Know that you are in my thoughts and prayers.

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Shannon Santiago
53 months ago

Ur always in my thoughts & prayers, throughout each & every day. Ur on ur way to getting there & we'll all make sure u arrive to get the treatment u so desperately need. I know u have a huge support system but if there's anything I can personally do or help u with, it'd be my pleasure. Love u SOOOO!!

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$17,935 of $30,000 goal

Raised by 99 people in 53 months
Created March 4, 2015
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DD
$10
Dawn Discenza
51 months ago
HL
$50
Heather Lee
51 months ago

Praying for you every day!

TM
$50
Timothy McGeehan
52 months ago

Wishing you well in your battle

A[
$50
Annie [collectivepassions.com]
52 months ago

Hi Marcy - I heard from Marie that you started your treatment YAY - so happy to see all of the support that you've received from everyone. Much love xo Annie

$200
Anonymous
52 months ago
$50
Anonymous
52 months ago
RS
$200
Rich Spain
52 months ago

Love you Amiga

RS
$500
Ronda Smith
52 months ago
SV
$50
Suzanne Vogel
52 months ago

Win the fight. You're more than halfway there $$. Go, go, go!!

DC
$1,000
Deb Conklin
52 months ago
Kearney Ward
52 months ago

Marcy, you are such a brave person, you are a true inspiration to. Know that you are in my thoughts and prayers.

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Shannon Santiago
53 months ago

Ur always in my thoughts & prayers, throughout each & every day. Ur on ur way to getting there & we'll all make sure u arrive to get the treatment u so desperately need. I know u have a huge support system but if there's anything I can personally do or help u with, it'd be my pleasure. Love u SOOOO!!

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