Maddie Lundberg Medical Fund
You finally get accepted after so many challenges, then start studying at the academy and 6 months later you find out you have diabetes type 1.
You then appeal 3 times to try not to get medically discharged, but for obvious reasons, the appeals do not work.
So, after 18 months appealing you are finally medically discharged and proudly start studying at Rice University in Houston TX; you then become the captain of the soccer team and you finally think your life will get back to normal… because you know, diabetes type 1 is not a big deal if you take care of it well.
Things are going well and then summer of 2016 you have a seizure! You simply had just gotten out of the shower and got dressed and next thing you know, you wake up 30 minutes later with three days of memory lost.
“Thankfully” since you got medically discharged by the Air Force Academy, you have the right to go the VA hospital for any type of health issues.
The doctors start requesting many tests to find out what you have, but no success. They keep sending you back home after giving you some hard drugs to make you feel you are not about to have another seizure.
Your body starts feeling weaker and weaker every day and your visits at the hospital become more often than you wish, and still the doctors have no idea what you might have.
Then you must quit playing soccer because your body cannot handle the trainings anymore. You start struggling just to be able to stay in class without passing out (which has happened before).
This is what my sister in law, Maddie Lundberg, has been going through for the past 6 months, and her health is getting worse every day and nobody has any idea what the cause is.
Unfortunately, it cost a lot of money to take her to a private specialist and that is why I’m here to ask you to help us find out what she has.
It crushes our hearts to see her not being herself everyday anymore, a young woman who used to be super independent, can no longer go to the bathroom, drive or stay alone in her own room/dorm.
Even though she is going through all this, she keeps her attitude super positive and when she is at the hospital after some scary episode, she is always smiling and even joking around.
We have no idea what she has, so our first focus is to take her to a specialist.
Below you can see what are her symptoms and what diseases has been “cut out” from the possibility list.
Any amount will be very welcomed! And if you are someone who has the same symptoms and might know what she has, please do not hesitate to contact us.
Thank you in advance for all your help and support!
Carolina Lundberg - Maddie’s sister in law
Update - May 12th, 2017
A lot has happened since Maddie has been diagnosed with POTS.
She started her treatment and we thought everything would be run smooth.
Unfortunately Maddie's medical bills are growing way more than anticipated. Her trips to the ER are still happening and she still has about 6 months of treatment for POTS left.
She's been having a lot of issues with her diabetes type 1, she became allergic to her insulin and she had to pause her treatment for POTS until she gets that part solved.
We need your help again!
Any amount will be very welcomed!
Thank you for all your support, and a special thank you to Clark Haptonstall, Samantha Chaiken, Alex Lowes, & MC Danilevics! They have hosted a fundraising FootGolf Tournament to support Maddie and they were able to raise $764! Maddie is super lucky to have all of you in her life!
Carolina Lundberg - Maddie’s sister in law
Myasthenia gravis or other neuromuscular junction disorders can be ruled out easily by blood work and a test called EMG/NCV. Droopy eyelids can be seen in these diseases but the rest of the symptoms do not fit myasthenia gravis syndromes. Reading the symptoms Maddie's condition actually sounds like dysautonomia which can be seen in diabetes. Seizures, headaches, tingling, burning sensation/pain ( due to small fiber neuropathy), brain fogginess, passing out spells, dry mouth, dry eyes, spinning sensation, irregular heart beats, lightheadedness, generalized weakness, diarrhea or constipation, sweating problems, blurry vision are all seen in this condition. Doctors can do a tilt table test to diagnose dysautomia. Skin biopsy can be performed for small fiber neuropathy. Usually a multidisciplinary approach ( team consisting of a cardiologist, neurologist, physical therapist and sometimes a psychologist) is warranted and it is definitely treatable.
I am so sorry to here this Maddie. Your symptoms sound very similar to what my friend was diagnosed with a couple years ago. Have you looked into POTS (Postural Orthostatic Tachycardia Syndrome)? Sometimes diabetes can trigger it. It could be way off the mark, but I thought I would throw it out there because that is how she figured it out. Praying for you!
Hey Lundberg (since I don't think I ever called you Maddie) I'm so sorry to hear you're going through this, and I hope you can get some answers soon. You're one of the toughest and most determined athletes I ever coached, and I know that if anyone can beat this it's you! Hang in there and know that you're in my thoughts and prayers! ❤❤❤Coach Gribnitz
It doesn't have quite all of these symptoms, but try this. I had this a while back: microscopic polyangiitis (MPA).
I saw another person commented the same thing, but upon reading this, I immediately thoughts of POTS syndrome. I hope she finds answers soon.
Several of my friends in the nursing field mentioned testing for diseases of the adrenal gland.
A friend of mine in the medical community was wondering if transverse myelitis has been ruled out? Hoping we can find an answer! Keep fighting as you always do Maddie!!
Sounds like LUPUS!!???!! I hope you feel better Maddie! Check ANA's.
Have you guys asked about Anti-NMDA receptor encephalitis at all? I know it could be one in a million and some of the symptoms are off but I wonder if it's something to do with her NMDA receptors or something? You are in my thoughts and prayers! Keep the faith! I was undiagnosed with an autoimmune disease for over 8 months! KEEP FIGHTING!
I asked a couple of doctors who both said, test that should have been done: ANA, Muscle biopsy, Thyroid- whole panel of test Possible Diagnosis: Myasthenia Gravis or Autonomic instability
Guillain-Barre Syndrom ... Please check into this . Lifting you up in Prayer from Plano !
If it is a rare disease, check out Global Genes, a rare disease patient advocacy organization.
Please check for Celiac. It is very associated with type 1.
Praying for spiritual protection. That any sickness will be heals in Jesus name. We love you
Lyme? Praying for a diagnosis and healing.