Lenny's Leap of Faith
At a year old Lenny wasn't reaching his physical milestones and his legs and arms were very tight and stiff.
After a brain scan and tests we were told Lenny had not been getting oxygen at some point in the birthing process and we were given the life changing diagnosis of Cerebral Palsy and we were absolutely devastated for him.
Lenny is now 5 years old, he is a happy bright beautiful cheeky little boy.
Lenny loves to read , swim and play football.
Lenny walks with a walking frame and to help his leg muscles relax enough to let him walk, as legs are extremely tight and stiff, he has Botox at Great Ormond Street hospital. Lenny had his 3rd dose in November 2015.
The Botox lasts between 4/6 months depending on the individual.
When Lenny's Botox where's off he begins to lose his ability to walk in his walking frame as his legs scissor drastically, his calf muscles pull him onto his tip toes and his really tight hamstrings make straightening his legs very painfully.
It's heart braking to watch him struggle and lose his ability to walk in his frame.
Our only option to take away this stiffness (spasticity) permanently is to pay for the SDR operation as the NHS has stopped funding .
The operation itself costs £30,000.
The other £10,000. is for the year of intensive Physio Lenny will need after the operation.
Spasticity causes hip displacement, knee , ankle and foot deformation, the spine curves and arthritis develops in joints and it s so painfully as their bodies try to grow against their extremely tight muscles.
I would do anything to help Lenny avoid this in his life.
Please help us , every little helps.
His walking pattern in his walker has improved, showing us that his muscles are beginning to strengthen. It's lots of work for very slow progress, but our little star ⭐️ always tries his best and doesn't complain.
Love Lenny and Mummy ❤️
Two Lovely ladies are running the London Marathon for Lenny, Franca Bongiorno Roberts who has her own just giving crowd funding page for Lenny and Charlotte Wilkes who will be using this page to add donations.
Lenny and Mummy ❤️❤️
Two Lovely ladies are running the London Marathon for Lenny, Franca Bongorio Roberts and Charlotte Wilkes.
The donations raised will be added to this campaign.
Lenny and Mummy ❤️❤️
So pleased to read that he will have his operation tomorrow. Hope all goes well for him and that you stay strong for him too. Your family and friends will support you and I am so pleased that you have had such a successful fund-raising campaign.
Unfortunately don't know Lenny but donated as a result of JD. Wish you all the best and will be watching. Trev and Sarah
This year Paul and I have decided not to send Christmas cards, instead we are going to donate the money we would have spent to Lenny's Leap of Faith. The fund is now getting close to the target so we just need to keep getting donations so that we get there. Love to Nina and Lennyxxx
Hi Nina, sorry I have gone all quiet I will be donating again soon just have a few house issues but I have forgotten you. Take good care xxx
Well done to my daughter nina for all her hard work to make this possible for our little Lenny. !!!!You are a strong hard working girl. Who never gives up.well done you.xx
Nina, you are doing a fantastic job. You can be very proud of all the hard work that you are doing!! Looking forward to Sunday and see you there!!!
I just like to say to lenny i have cp and its not the end of the world and im going to help u raise some cash and come back 2 u u brave lil soul we r special x
Good luck lenny x x
Saw Lenny through a friend of mine, best wishes x
I will be donating tomorrow, I'm Lennys passenger assistant and escort him to and from school everyday, he's the most lovely little boy so let's hope he gets the help he needs xx
The second donation is from mum and dad