Medical Conferences 2018
Donation protected
Hello! My name is Krista Brack and I have Ehlers Danlos Syndrome, a genetic connective tissue disorder(CTD). Life with EDS is difficult, confusing and comes with no handbook, no vacation days or time off and those of us living with it don't know what to expect day to day. Five years ago I started a support group in RI to help people living with a connective tissue disorder (EDS/CTD website) we meet monthly and have a very active group.
We focus much of our time raising awareness of EDS and related CTDs and learning how to live the best we can in our faulty broken bodies. Running the support group I try to stay up on the latest information by reading research papers and attending medical conferences that focus on these conditions. I gather information at the conferences to bring back to the members in my group too ill to travel.
While I am thankfully well enough to travel, I have been disabled, unable to work for 13 years . It's extremely important to me to be able to go to these conferences and bring back information to help all my members in the RI EDS/CTD Awareness and Support group, would you be able to help me?
Eventually I plan on making our support group a non profit and hopefully be able to better raise funds for things like this, but for now I could really use your help. You wouldn't just be helping me but all the people in RI with a connective tissue disorder! I am hoping to attend 3 conferences this year, The American's for Safe Access Unity Conference in Washington DC in May, The Marfan Foundations annual conference in Santa Clara, CA in July and the Ehlers Danlos Society annual conference in Baltimore, MD in August. Any amount will help! If all you can spare is 5 dollars that would be monumentally helpful for me! I'll be sure to post pictures of my journey and anyone local who donates 30 dollars or more will get a dozen cupcakes, any flavor made with love from me!
If you are able to help financially I will greatly appreciate it, if you're unable to donate but would like to help please SHARE this post!!!
We focus much of our time raising awareness of EDS and related CTDs and learning how to live the best we can in our faulty broken bodies. Running the support group I try to stay up on the latest information by reading research papers and attending medical conferences that focus on these conditions. I gather information at the conferences to bring back to the members in my group too ill to travel.
While I am thankfully well enough to travel, I have been disabled, unable to work for 13 years . It's extremely important to me to be able to go to these conferences and bring back information to help all my members in the RI EDS/CTD Awareness and Support group, would you be able to help me?
Eventually I plan on making our support group a non profit and hopefully be able to better raise funds for things like this, but for now I could really use your help. You wouldn't just be helping me but all the people in RI with a connective tissue disorder! I am hoping to attend 3 conferences this year, The American's for Safe Access Unity Conference in Washington DC in May, The Marfan Foundations annual conference in Santa Clara, CA in July and the Ehlers Danlos Society annual conference in Baltimore, MD in August. Any amount will help! If all you can spare is 5 dollars that would be monumentally helpful for me! I'll be sure to post pictures of my journey and anyone local who donates 30 dollars or more will get a dozen cupcakes, any flavor made with love from me!
If you are able to help financially I will greatly appreciate it, if you're unable to donate but would like to help please SHARE this post!!!
Organizer
Krista Brack
Organizer
Warwick, RI
