KLS Sucks

$6,035 of $5,000 goal

Raised by 150 people in 23 months
No Longer Accepting Donations
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Lyndsi Rae
on behalf of Klein Levin Syndrome Foundation
 SAN DIEGO, CA
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Update:
 Please help me reach my goal of 200+ donors by making a $5-$10 donation! While I want to raise $5,000, I want to also have 200+ contributors, to show KLS who's boss!
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I have a brother named Mat.


From the outside, he looks like a normal dude. He is 23, lives in Tempe, just graduated from ASU, and basically trying to find his way in the scary post-grad world. When he's not in an episode, you wouldn't know that he has KLS ( Kleine-Levin Syndrome). 

When he's in an episode, however, he is an entirely different person. He had his first episode when he was 17 years old, and is currently in an episode right now.  

He knew he was going to start his episode last Tuesday, October 25th, and was in a full blown episode on Wednesday, the 26th. 

-An "episode" is a period of time where my brother is essentially in a sleep induced state, where he loses all touch with reality. He isn't able to socially interact with anyone, he can't drive, he can't apply for jobs, he can't go to work, he can't do anything as he normally would until the episode is over.

-He loses his entire personality while in an episode. My brother and I are very similar, so imagine if I completely lost my smile for an entire month.

-Episodes can last anywhere from a week to over 4 weeks, or even up to several months. We never have any idea how long it is going to last until it's over.

-Episodes can be triggered by a multitude of factors, with the main ones being: lack of sleep, emotional stress, drinking alcohol, or any substance that changes the chemical balance in his brain. So, you know, basically everything that happens when you're in college.

-As a college student, Mat has never been allowed to drink. EVER. My 23 year old brother went to ASU and was the sober person at the party every time.

-Remember those all nighters you pulled studying for that college exam? How you were so proud that you got an A (or a C....) after spending 12 solid hours cramming in the library? Mat could never do that.

-Since KLS is so rare and affects a small percentage of the population, it is often misdiagnosed as bipolar disorder or depression. Obviously these misdiagnosed people do not receive the care that they need, so they are repeatedly struggling with KLS episodes and have no idea what to do about them.  

-There is no cure, or even the funds to do the adequate research that is needed to find a cure.

But you know what? 

WHO CARES that there aren't enough funds to do adequate research? Let's raise the money for research ourselves. Let's do it for our friends with KLS, our brothers with KLS, our sisters with KLS, our children with KLS. Let's do it so no parent ever has to go through the pain of seeing their child go through their first episode, ever again.

Once we take money out of the equation, the possibilities are endless.  

So, please join me, my brother, my family, and the entire KLS community to kick KLS's ass, forever.

You can learn more about KLS here. 

If you're not able to donate a lot, please know that every single donation helps! $5-$10 donations are just as important as larger ones. 

All money raised will  be sent directly to the KLS foundation. 

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Here's a picture of the T-Shirt and Hat package from the Reward Level!! 




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WE DID IT!!! Thanks to all 135 of you, we've raised over $5,000 for KLS research!! You have no idea how much this means to me, my brother, my mom, my family and the entire KLS community. From the $5 donations to the $250 donation; and everything in between, I thank you from the bottom of my heart.

I am going to be closing the campaign soon and will be starting on the Reward Levels! I appreciate your patience, as having 135 beautiful people to reward (depending on your level) will take some time. If you DO NOT want your reward (trust me I won't be offended :)), please let me know so I can plan accordingly.

I will be sending out messages to each Reward Level group separately, but please don't hesitate to reach out if you have any additional questions!

With the happiest heart,

Lyndsi <3
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With only $933 to go, I'm challenging myself to reach our goal of $5,000 by December 7th!

Please help us reach our goal by then, as that is when I'm planning to send the funds to the KLS foundation!

Thank you so much for your ongoing love and support!

<3, Lyndsi
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Mathew is officially out of his episode... HALLELUJAH! Today is a great day, and we've raised $3,467 to find a cure for KLS. Thank you for everyone who has donated so far, and please continue to share! Only $1,533 to go!
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We are over 50% to our goal.. amazing news! In only 13 days, we've gathered 65 people to donate $3,014 to find a cure for KLS. How incredible is that? Thank you to everyone who shared, donated, or even looked at the campaign thus far. We couldn't have done this alone, so thank you so much for your support.

A large part of this success was due to my mom, Randi, who I wanted to take a moment to thank.

***Warning: Long, yet heartfelt post ahead ***

When my brother first started having episodes, she spent countless hours researching thousands of webpages trying to find an answer to this mystery illness Mathew seemed to have gotten out of nowhere. Though I was in San Diego during this time, I remember the pain, fear, and exhaustion that she and my whole family felt not having an answer. She went to doctor after doctor, all of them giving the same answer, "I'm not sure what's wrong with your son, Randi."

Though I'm not a parent, I can't even imagine how hard that must be. My mom was a trooper though, and wouldn't take no for an answer, until she found the answer. She is a fighter, and whenever she puts her mind to something, she blows it out of the water. Since half of you reading this know my mom, I want us to all take a moment to collectively thank her for everything that makes her, her. Not only has she overcome her own challenges this year (HELL YES), but as soon as she came back in town after I created the campaign, she started sharing my campaign and nearly doubled, if not tripled the donations that I've already received.

She's sent countless emails, shared my campaign on Facebook multiple times, and sends several text messages throughout the day to let me know when one of her friends donates, or even just to celebrate another donation! I knew creating this campaign would be hard, but having someone like her by my side has made this much, much easier.

Hats off to you, Mom, and thanks for being "that person" to so many people, including myself. I love you!!

Now let's #KickKLS!!
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Read a Previous Update
Amy Cohen Colman
22 months ago
1
1

Congratulations for reaching your goal! I do not need a "reward". Your Mom's friendship is the greatest reward! Amy Colman

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$6,035 of $5,000 goal

Raised by 150 people in 23 months
No Longer Accepting Donations
 Share on Facebook
Created November 4, 2016
Lyndsi Rae
on behalf of Klein Levin Syndrome Foundation
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$36
Anonymous
21 months ago (Offline Donation)
GF
$36
Gayle Feldman
21 months ago

Sending our prayers and donation to help support your family. Wishing you hope and strength.

BM
$50
Baarbara Mark-Dreyfuss
22 months ago

Best of luck in beating this malady.

CK
$100
Carol and Allan Kern
22 months ago

All the best in raising awareness and going over your goal. You're a wonderful sister.

RA
$30
Roger Albrecht
22 months ago

Good luck

$25
Carol Knoppow
22 months ago

Sending healing prayers and wishes your way.

Amy Cohen Colman
22 months ago
1
1

Congratulations for reaching your goal! I do not need a "reward". Your Mom's friendship is the greatest reward! Amy Colman

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