Jude fights relapsed leukemia

$32,445 of $25,000 goal

Raised by 380 people in 61 months
Imagine waking up one morning, getting ready for your son's 18-month check up, expecting to go to work afterward, thinking about what to make for dinner and looking forward to a trip to the pumpkin patch with family and friends on the weekend. Then imagine it all gone in an instant, replaced with plans for a spinal tap, bone marrow biopsy and chemotherapy for your small child. That happened to us - within hours, we went from being a happy family with an active child to being in the hospital with many scary new medical terms and diagnoses.

Jude's official diagnosis is Acute Lymphoblastic Leukemia (ALL). The good news is that it is highly curable with survival rates as high as 85%. But it's going to be a long road before we get there--frequent spinal taps (he's already had two), hospitalizations, bone marrow biopsies, chemo, steroids and treatment expected to last at least three years.

While we have quality medical insurance through Aidan's job, fighting childhood leukemia is an expensive battle. The co-pays, fees, prescriptions, equipment, etc all add up. Barb will be taking a leave of absence from full-time work for a while to manage Jude's care. Anything donated will be gratefully appreciated and used to help cover the cost of medical expenses and help provide a cushion while Barb isn't working.

We set up this site to provide a way for people to help after several offers and inquiries about financial assistance. We know times are tough, especially for our friends with young children, so know that we don't expect everyone to give. We are eternally grateful for everyone's support, whether financial or a kind word, it will take a village to help Jude win this battle.
Here's Jude with Mom and Dad on a family vacation in September.


Jude with Dad in September



Jude in his younger days, at about 6 months.
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8/16/15 update from Dad (Aidan):
I wanted to take a minute to update this page and where we stand on our fight against childhood cancer and our efforts to save our little boy.

Jude began this journey more than two years ago. In that time he’s completed multiple phases of treatment for childhood Acute Lymphoblastic Leukemia (ALL). Most of you know in January of 2015 he relapsed—the cancer had returned—setting in motion a scramble to move to a more aggressive form of therapy that could save his life. That adventure would take us all the way to the University of Minnesota for a blood and marrow transplant (a cord-blood transplant in Jude’s case).

I can barely find the words to inform those reading his cancer has returned a second time following treatment. As little as two years ago, this news would’ve been a death sentence. Jude’s disease is out to be the one that takes a tiny life. Period.

Recently we’ve been given hope for a promising new therapy that could give Jude one more chance at getting to his first day of kindergarten. In order to receive this CAR-T cell therapy, Jude’s team must keep his disease in check for about two months. This keeps our family away from home, work, family and friends for awhile longer but so long as Jude is physically well enough to fight we’ll be there to fight with him. In a lot of ways it’s like starting all over. Losing the Superbowl with a long road ahead for a second shot. We’re doing it.

Thanks very much for the support to this point. We’re overwhelmed with the donations received over the past two years. The stability offered relieves a huge amount of stress for the family. It’s even allowed us to really take advantage of the “good days” Jude has had on this journey.

Please keep following along on his Caring Bridge and know we’re eternally grateful for the financial support. Truly incredible. ( http://www.caringbridge.org/visit/judeanderson)
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7/3 Update: I wanted to share a quick update for our supporters since I haven't updated here in a while. Jude had his bone marrow transplant on May 22 in Minneapolis and is doing well. The medical team is pleased with is progress so far. We have to stay in Minnesota through Day 100 after the transplant so we'll be here through early September. Day 100 is a big milestone when patients can typically taper down on the transplant medicines. Because Jude's immune system is compromised, we can't go in public, but are fortunate to have a cute rental apartment here to hide out in for the summer.

We are profoundly grateful for our friends, family and strangers that have given so generously. Relocating to Minnesota for 4 months has been a stretch financially and we couldn't have done it without your support.

Also... in case you are wondering since I know $20,000 is A LOT of money to raise (holy cow, you guys are great). This amount represents the total donations since Jude was first diagnosed in Oct 2013. A large portion of this went to help with medical bills in 2013 and 2014. We are so grateful for the continued support to help with the relapse treatment and bone marrow transplant medical bills!

Also, if you are looking for more frequent updates, please follow our Caring Bridge page at: http://www.caringbridge.org/visit/judeanderson
Transplant day!
Arizona Public Media story on Jude
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Some photos of Jude before the relapse
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As most of you know by now, Jude relapsed on January 7, 2015. This came as a total shock to us, as Jude was doing great and showed no signs of relapse. Fortunately, the relapse was only in Jude's central nervous system and had not spread to his bone marrow or blood. Doctors have told us that the relapse treatment is challenging but still treatable. Jude has started three more months of intense chemotherapy (with at least the first month entirely in the hospital) followed by total body and inter cranial radiation, then a bone marrow biopsy. The road ahead is long so we are updating the Go Fund Me amount to reflect what we will need for our medical bills for the next year. As always we are grateful for your support, but do not feel obligated to contribute. A kind word or prayer is just as welcomed. For more frequent updates, you can also read Jude's Caring Bridge account at: http://www.caringbridge.org/visit/judeanderson
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Read a Previous Update
Stacy Gowing
40 months ago

Barbara and family, I saw your you tube video by chance. I cried the minute it started as your journey is remarkably similar to my family's. The age of your precious son, the diagnosis,, the relapse, the hospital --all bring up memories. I write to you about my Zach. I get your comment about no longer looking to the future--I sobbed the day I sent him to kindergarten. The tears of gratitude have not stopped each year--he's now going to be a sophomore at Salpointe. I write you to give you hope--I know it can wane from day to day. My greatest prayers for Jude and all of you.

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Elizabeth Arone
61 months ago

I saw this on a friend's page. I don't know you. I don't care. My eyes are welting as I look at your sweet boy who is like mine in all the ways little boys and babies are. But, because he is sick, I am forever grateful and fortunate and blessed to not have the struggle that you have. So my small donation of $10 is my hand reaching out to yours to tell you that I am going to be thinking of you, your family and most important your son. Warm energy rushing your way in all the ways that you will need it. Get well, Jude.

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$32,445 of $25,000 goal

Raised by 380 people in 61 months
Created October 24, 2013
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MS
$50
Meghan and Howie Smith
34 months ago

Keep up the fight!

JG

In lieu of birthday presents for Evelyn Clauss, this donation was made

DW
$20
Donna Wilkie
35 months ago

In lieu of presents for Evelyn Clauss, this donation was made

MW
$150
Maribeth Winecke
36 months ago

From: Corner Medical LLC

$500
Anonymous
36 months ago
Stacy Gowing
40 months ago

Barbara and family, I saw your you tube video by chance. I cried the minute it started as your journey is remarkably similar to my family's. The age of your precious son, the diagnosis,, the relapse, the hospital --all bring up memories. I write to you about my Zach. I get your comment about no longer looking to the future--I sobbed the day I sent him to kindergarten. The tears of gratitude have not stopped each year--he's now going to be a sophomore at Salpointe. I write you to give you hope--I know it can wane from day to day. My greatest prayers for Jude and all of you.

+ Read More
Elizabeth Arone
61 months ago

I saw this on a friend's page. I don't know you. I don't care. My eyes are welting as I look at your sweet boy who is like mine in all the ways little boys and babies are. But, because he is sick, I am forever grateful and fortunate and blessed to not have the struggle that you have. So my small donation of $10 is my hand reaching out to yours to tell you that I am going to be thinking of you, your family and most important your son. Warm energy rushing your way in all the ways that you will need it. Get well, Jude.

+ Read More
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