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Hedda's Heart Transplant

$31,145 of $20,000 goal

Raised by 512 people in 2 months
Created November 24, 2018
34809994_1543091478798348_r.jpegThis is  Hedda.  She needs a new heart.  Hedda has severe life threatening Congestive Heart Failure induced by 2005 chemotherapy for aggressive breast cancer. The chemo damaged her heart beyond repair. Doxorubicin Cardiomyopathy. After many different heart treatments, in January 2017 she was forced onto disability and into the Meijer Heart Center Heart Failure Clinic. After many medications and treatments, her doctor referred her for a LVAD Left Ventricular Assist Device as a bridge while awaiting a new heart. Hedda is a young, 60, and has at least 20 more years of life in her...if she can get a new heart. She was an active dog walker and pet sitter locally, Urban Tails. 

Hedda's heart deteriorated to life threatening condition back in September 25, 2018. November 16 she was admitted to the Heart Center and started on a continuous Milrinone IV. This is only a very short term- life saving drug. On Tuesday, November 20, the heart transplant team met and decide Hedda needed to fund-raise $10,000 to be considered for placement on the transplant list. Anti rejection drugs are expensive in the USA.   See the attached letter.  This will cover the 20% copay needed for two years of anti rejection drugs.  The transplant team does not want to "waste" a vital organ if she cannot afford heart rejection drugs. Understandably.  However, they were not willing to put her on the list knowing it would still give her time to raise money over a year or so through family and friends. Because Hedda needs the funding right away to qualify being put on the transplant list and not lose valuable time, we, Hedda's Care Team, are asking for anything you may be able to afford. We need to get Hedda on the heart transplant list. She can go before the transplant team again when the funds are raised. Please help if you can. Several friends have already helped toward this cause privately, however many are requesting a Go-Fund-Me link. 

Hedda loves her garden. She loves her cats and neighborhood rescue efforts thru the TNR program. She is someone who you can sit at her kitchen table and coffee and pastry will appear and she will visit with friends all day. She learned a lot of German hospitality from her upbringing. 
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This is what the implanted LVAD looks like.
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It’s been about 6 weeks since the lifesaving LVAD was implanted on my failing heart. Since my hospital discharge I’ve had to return several times for short visits due to low flow pressure and alarms. After some tweaking and adjustments to fluid levels and adjustments to medications looks like the slow flows are pretty much corrected. My fabulous medical team and my home care team are in the process of learning more about heart transplant. As we all know I was approved for the heart transplant list thanks to all of your generosity. No idea how long the wait will be. But the LVAD as a life-saving device has allowed me to be at home while awaiting a heart. I have a little more strength, I am breathing a bit better, I still lack a lot of energy but I can do more things for myself. I am still under 24 /7 care at home. I am forever grateful to my son Alexander and my dear friend Darcy for putting their lives on hold and making sure I get the care that I need.

I have been writing letters, emails, and making phone calls to state and federal representatives. I am working diligently to make my voice heard about the ridiculousness of lack of funding and assistance for a heart transplant patients. There was a story on the local WOOD TV 8 news yesterday morning that stated in America heart patients are paying more out-of-pocket costs than ever before which means many who cannot afford that are going with out Care. Love to you all. I will keep you updated on the heart transplant.
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Organ donation is an important decision.
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I’m back in the hospital after several low blood flow VAD alarms. Also somehow I’ve managed to get a pretty bad UTI-urinary tract infection. The danger from that is making sure the bacterial does not get into my blood and cause sepsis. I will be here a few days for observation. Overall though I have been doing quite well with my new heart pump.
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$31,145 of $20,000 goal

Raised by 512 people in 2 months
Created November 24, 2018
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