Madeline Hope and ToF Foundation

$19,250 of $20,000 goal

Raised by 218 people in 50 months
My name is Madeline Hope and I am expecting to arrive on June 28, 2015.  During the 17th week of pregnancy, my mommy and daddy were overjoyed when they learned they were having a little girl.  Unfortunately, that joy quickly turned to immense sadness when the doctor discovered a defect in my heart.  I could hear my mommy crying and sobbing, while my daddy was consoling her.  The next day, I had a fetal echocardiogram performed and was diagnosed with having Tetralogy of Fallot.  After meeting with multiple doctors, my parents learned that I was to undergo multiple surgeries straight from birth and throughout my childhood.  All these doctor visits and diagnostic testing got expensive fast, and insurance only goes so far.  Even though the doctors and nurses explained what was going on, my mommy and daddy were still looking for more information and answers.  Sadly, they couldn't find a support group or any foundation that focuses specifically on Tetralogy of Fallot.  After many long discussions, my parents and I thought it would be a good idea to start a foundation specifically for Tetralogy of Fallot.  They thought maybe "Hearts of Hope, Tetralogy of Fallot Foundation" would be a good name.  My mommy and daddy picked this name because my middle name is Hope and they have continue hope and faith that I will pull through and be the little girl they've always dreamed of having.  The foundation's main missions would be to raise awareness of Tetralogy of Fallot, provide financial assistance for medical treatment to parents of Tetralogy of Fallot babies, support for TOF families, and to help researchers learn more about this heart defect. 

In conclusion, my parents would love and appreciate your support by spreading the word and donating to the purpose of creating this foundation.  My mommy, daddy, and I HOPE that you will help us repair one heart at a time.  God bless and thank you!
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July 7, 2019 - Hello from Cincinnati. I arrived here about a week ago, spent some time with Grandma and Grandpa, and was getting ready to go into the hospital tomorrow morning for a 10-hour open heart surgery. However, the surgeon decided at the very last minute to cancel the surgery because he feels that it is too much of a risk to perform at this time. He said the entire Cardiology team got together and discussed my case. They all agreed that the arteries in my right lung are still a little too small to have the surgery. So everything was cancelled and nothing has been rescheduled yet. They recommended that I have a few more heart caths where they put the little balloons in my arteries to open them up. The doctors did say that I am doing very well and my heart is working great. So they told me to go home back to Florida and have a nice summer. And that's what we're doing soon. Mommy and Daddy have been loading up the car and we are getting ready to drive back down to Florida. I'm not sure why they waited to the last minute, but if they feel that I am not ready for it, then I am not ready for it. It's not worth taking any chances.

This was not a wasted trip though. I got to spend time with my Grandma and Grandpa in Cincinnati. I got to enjoy the Fourth of July festivities from Washington on TV and when Mommy wasn't watching, Grandpa and I were out on the driveway celebrating the fourth with some sparklers. Don't worry, I was very safe and careful.;)

So even though I was so close to the finish line, I know that I will continue to "trust in the Lord with all my heart and lean not on my own understanding." (Proverbs 3:5)

We should hopefully be in the car soon and start traveling down I-75 back home to Florida. Please pray for safe travels home! Thank you for all of your love, prayers, and support. - Love, Madeline Hope
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June 14, 2019 - Happy belated birthday to me! Yesterday, on the 13th, I officially turned four years old. I cannot believe how fast time is going, it is just flying by right before my eyes. I had a little birthday pizza party with family and friends.

A few weeks ago you might have seen a white streak flying down I-75. That was my daddy driving from Cincinnati back home to Florida. Unfortunately in a few weeks we will be having to travel back up to have the surgery that was postponed. That will be during the second week of July.

Things have been going well overall. I have been enjoying my time back in Florida. Attached are some of the pictures from my birthday party. The theme was Beauty and the Beast. I am so excited about my birthday parties that I am already planning my fifth birthday party. Right now I'm thinking it will be based on the movie Despicable Me.

Thank you for all your continued love, support, and prayers. - Love, Madeline Hope
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May 18, 2019 - After having a better night last night and good day today, my doctors allowed me to leave the hospital and go back to my grandparents house in Cincinnati. I was finally able to get off the supplemental oxygen, but I still have to take it easy because I get a little winded right now. But in a few weeks I should be back to my regular self. And after I am back to my regular self again, I'll be headed back to the hospital to have the surgery that was postponed. It has been re-scheduled for July.

The picture was from earlier today when I was leaving the hospital. I was proudly wearing my Heart Heroes cape. The cape was given to me from the Heart Heroes organization that gives a personalized super hero cape to those battling congenital heart disease (CHD) and also helps support research of CHD. Please read more about the organization at www.heartheroes.org


In the meantime I'm going to enjoy spending time with Grandma and Grandpa while I am up here in Cincinnati and I will be going back home to Florida in a few days.

Thank you for all of your love, support, and prayers. -Love, Madeline hope
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May 17, 2019 - Greetings from the CICU! It was a rough day yesterday, but I am doing a little better today. I am still on oxygen and recovering slowly. But recovering none the less. Every doctor and nurse that has seen me is amazed on how well I have been doing overall. A lot of them remember me from when I was only 2 months old.

I was pleasantly surprised this morning when Dr Goldstein came to visit me and wanted to take a picture with me. In addition to having a consult with him, my parents have consulted with lots of doctors coming up with a new plan for when I can have my surgery. Hopefully soon they will know and I can share this information with you.

Thank you for all of your love, prayers, and support. - Love, Madeline hope
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Read a Previous Update
Barbara Courson
47 months ago
2
2

I just read this at 5:30 pm. This is so tenuous.... My heart goes out to u both. Praying for Hope and for God to guide the hands of the surgeons! May u both feel God's presence. May HE give u strength and courage . Love, barbara

+ Read More
Linda Bellis
47 months ago
2
2

I'm sending you all my love and prayers for a successful procedure tomorrow. I have been praying and praying that God will give little Madeline his true blessing and grant the most amazing miracle. Thank you for the update and I will be thinking of all of you. You look so beautiful sleeping and I can see that you are in wonderful hands in the hospital. God bless them all!

+ Read More
Laura Getman
49 months ago
2
2

I am praying my heart out that it be God's will to perform a miracle for this precious angel...

+ Read More
Tracey Mangold
49 months ago
1
1

She is very beautiful. Will continue to pray for you and this beautiful little girl. I cannot wait to meet her.

+ Read More
Ernest Croley
49 months ago
1
1

Hi Dr. Brian and wife she looks beautiful you must be ecstatic I can feel your energy and hers/ she is spunky and will beat all odds your love alone will conquer all this is April I have to close with tears of joy and all my prayers have paid off and they are still coming Love All Of You Very Much xoxoxoxoxo Madeline Hope

+ Read More
Carol Ann Arnold
30 months ago

Praying for Baby Madeline and Mom & Dad & the Doctors that Madeline does great today. God Bless Madeline.

+ Read More
Judith
2 months ago

Bob & Judy have been praying for her and her mom & dad.

+ Read More
Tom
2 months ago

Prayers sent. Wishing for all good reports

+ Read More
Judith
9 months ago

Madeline Hope - What a difference a year makes! You have our prayers, love & wonderment. Bob & Judy

+ Read More
Judith Clark
10 months ago

God bless that little sweetheart. Judy & I are so happy she's doing well. Best wishes to you & Brian.

+ Read More
Laura Edwards Getman
10 months ago

Thinking of you guys! I know this is what you were hoping would not happen :( She will be up and about before you know it pulling her suitcase out of there and maybe (??) wearing a super cape?? Prayers xo xo

+ Read More
Sherri G. Rose
16 months ago

Great news! Madeline is a little miracle and so lucky to have such wonderful parents. Sending big hugs from Dr. Brian's patient. God Bless, Sherri

+ Read More
Cali Ryan Bendetti
24 months ago

My husband was with you at Busch Gardens.. thank you for kind words and your story is touching so many , we have her on countless prayer chains and are thinking of y'all every day... love and blessings and I'd luv to know more and meet you as well... ❤️❤️❤️

+ Read More
Judith Clark
35 months ago

God bless that little sweetie! So happy she's back home.

+ Read More
Bonnie Ketcham
35 months ago

Praying for your sweet baby girl.

+ Read More
Betty Bean
35 months ago

My prayers are with you both and she will come through this as she has in the past. She is strong.

+ Read More
Carol Arnold Miglin LaMacchia
35 months ago

Praying all goes well for you Madeline Hope Praying for mommy & daddy to hang in there. You two are the best parents for Madeline. Love you all, Carol & Bob Arnold from NY

+ Read More
Sharon Scalise
38 months ago

Craig & I are sending you prayers! Our thoughts are with you all ! Bless Beautiful Madeline Hope! Happy to read that she' s off the Ventilator! I loved the photo of her out in the stroller! Bless Her!

+ Read More
Laura Edwards Getman
39 months ago

Praise God! I have goosebumps! So so happy for you all! xoxoxoxoxo

+ Read More
Tara Sucharda Gendron
39 months ago

That is great news. So happy to hear this. I pray all goes well on Monday. I hope this is the last one she has to go through?

+ Read More

$19,250 of $20,000 goal

Raised by 218 people in 50 months
Created May 16, 2015
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NG
$100
Norine & General Gettys
8 days ago

We have known Stephanie since she was 12 years old. She used to cat sit for us. She is such a loving person. We were blessed to meet Madeline about a year ago when we were in Florida. She is a beautiful precious little girl and I know she will grow up to be a loving person just like her Mom.

$250
Anonymous
19 days ago
$100
Anonymous
1 month ago
$100
Anonymous
1 month ago
BK
$100
Bhawna Kundra
1 month ago
BS
$100
Bonnie Spiegel
1 month ago
2
2

Madeline has been in my prayers since she was born. I feel like she is family. Thanks to Carol Demarest, I hear about her progress and when she needs extra prayers.

$155
Anonymous
2 months ago
MS
$50
Marci Seronick
2 months ago
$40
Kyle Snyder
2 months ago
DS
$20
Diana Snyder
2 months ago
Barbara Courson
47 months ago
2
2

I just read this at 5:30 pm. This is so tenuous.... My heart goes out to u both. Praying for Hope and for God to guide the hands of the surgeons! May u both feel God's presence. May HE give u strength and courage . Love, barbara

+ Read More
Linda Bellis
47 months ago
2
2

I'm sending you all my love and prayers for a successful procedure tomorrow. I have been praying and praying that God will give little Madeline his true blessing and grant the most amazing miracle. Thank you for the update and I will be thinking of all of you. You look so beautiful sleeping and I can see that you are in wonderful hands in the hospital. God bless them all!

+ Read More
Laura Getman
49 months ago
2
2

I am praying my heart out that it be God's will to perform a miracle for this precious angel...

+ Read More
Tracey Mangold
49 months ago
1
1

She is very beautiful. Will continue to pray for you and this beautiful little girl. I cannot wait to meet her.

+ Read More
Ernest Croley
49 months ago
1
1

Hi Dr. Brian and wife she looks beautiful you must be ecstatic I can feel your energy and hers/ she is spunky and will beat all odds your love alone will conquer all this is April I have to close with tears of joy and all my prayers have paid off and they are still coming Love All Of You Very Much xoxoxoxoxo Madeline Hope

+ Read More
Carol Ann Arnold
30 months ago

Praying for Baby Madeline and Mom & Dad & the Doctors that Madeline does great today. God Bless Madeline.

+ Read More
Judith
2 months ago

Bob & Judy have been praying for her and her mom & dad.

+ Read More
Tom
2 months ago

Prayers sent. Wishing for all good reports

+ Read More
Judith
9 months ago

Madeline Hope - What a difference a year makes! You have our prayers, love & wonderment. Bob & Judy

+ Read More
Judith Clark
10 months ago

God bless that little sweetheart. Judy & I are so happy she's doing well. Best wishes to you & Brian.

+ Read More
Laura Edwards Getman
10 months ago

Thinking of you guys! I know this is what you were hoping would not happen :( She will be up and about before you know it pulling her suitcase out of there and maybe (??) wearing a super cape?? Prayers xo xo

+ Read More
Sherri G. Rose
16 months ago

Great news! Madeline is a little miracle and so lucky to have such wonderful parents. Sending big hugs from Dr. Brian's patient. God Bless, Sherri

+ Read More
Cali Ryan Bendetti
24 months ago

My husband was with you at Busch Gardens.. thank you for kind words and your story is touching so many , we have her on countless prayer chains and are thinking of y'all every day... love and blessings and I'd luv to know more and meet you as well... ❤️❤️❤️

+ Read More
Judith Clark
35 months ago

God bless that little sweetie! So happy she's back home.

+ Read More
Bonnie Ketcham
35 months ago

Praying for your sweet baby girl.

+ Read More
Betty Bean
35 months ago

My prayers are with you both and she will come through this as she has in the past. She is strong.

+ Read More
Carol Arnold Miglin LaMacchia
35 months ago

Praying all goes well for you Madeline Hope Praying for mommy & daddy to hang in there. You two are the best parents for Madeline. Love you all, Carol & Bob Arnold from NY

+ Read More
Sharon Scalise
38 months ago

Craig & I are sending you prayers! Our thoughts are with you all ! Bless Beautiful Madeline Hope! Happy to read that she' s off the Ventilator! I loved the photo of her out in the stroller! Bless Her!

+ Read More
Laura Edwards Getman
39 months ago

Praise God! I have goosebumps! So so happy for you all! xoxoxoxoxo

+ Read More
Tara Sucharda Gendron
39 months ago

That is great news. So happy to hear this. I pray all goes well on Monday. I hope this is the last one she has to go through?

+ Read More
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