Hadley's Hope
Hadley's is a darling 3 yr old who was recently diagnosed with a massive brain tumor on her optic nerve and pituitary gland in early January . The Drs. were only able to remove about 75% of the tumor and Hadley has completely lost her vision. This has not kept This precious girl from dancing and being a joy to everyone around her!
Although it has been described as benign, a recent MRI had shown what was left of the tumor to be growing aggressively and she was taken in urgently for another surgery. Hadley is currently in ICU and will also need to undergo radiation therapy. Your donations will go a long way to helping the Burgman family with the mounting costs of treatment for Hadley, and of course your positive thoughts and prayers are much needed and appreciated.
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Although it has been described as benign, a recent MRI had shown what was left of the tumor to be growing aggressively and she was taken in urgently for another surgery. Hadley is currently in ICU and will also need to undergo radiation therapy. Your donations will go a long way to helping the Burgman family with the mounting costs of treatment for Hadley, and of course your positive thoughts and prayers are much needed and appreciated.
Update from Mom : July 17th
We are home!! Thank you all for your support and love, our girl is home and happy. We had the surgery last Wednesday to place the catheter and drained 40ml (!!!) of fluids. We then rested on Thursday but needed to adjust the catheter a bit, so surgery again Friday. Hadley was in the PICU until Saturday and we came home. After a brief ER visit for pain management on Sunday, we are getting so much better. We had the most amazing care at Joe Di Maggio, they have our hearts for life. I swear Hadley is the mayor of the hospital, everyone knows and loves her. We are currently at home, pain is well controlled and she is up and ready to get back to summer school. We really seem to have been incredibly blessed this go round and we are so grateful. This has been a crazy two weeks and such a rollercoaster of emotions. The 4am ambulance ride triggered what was needed to happen. Honestly, I can't believe how lucky we have been so far in our healing journey and we have so many wonderful people in our lives that make this happen, thank you. Thank you to our sweet friends Laura Bracken Chaibongsai, Rachel Silverstein Altman, Dawn Shirreffs, Mandy Karnauskas for the most yummy Jeni's Ice cream package. Noah and I very scientifically assembled the flavors and taste tested them. For Hadley's approval, of course. She loves all, like her mama. Noah prefers all chocolate. Also, thanks to aunty Barb Burgman Keiser and uncle John Keiser for the super fancy snow cone maker, perfect timing. They are currently kinda tucked in on the couch and watching the Croods and making each other mildly crazy but yet unable to sit apart from each other... Yay! back to normal. It honestly amazes me how adaptive these two are, I am humbled daily. We are looking forward to healing and normalcy and if you can believe, for school to start. Not to be forgotten, thank you so much for the cutest hedgehog ever! I don't know who to thank as the box had no name, but she comforted Hadley during multiple MRI's and surgeries this visit. You are all so very important in our lives and we are so grateful, thank you. If I have forgotten to thank anyone, I apologize, but know I thank you in my heart each day and night.
We are home!! Thank you all for your support and love, our girl is home and happy. We had the surgery last Wednesday to place the catheter and drained 40ml (!!!) of fluids. We then rested on Thursday but needed to adjust the catheter a bit, so surgery again Friday. Hadley was in the PICU until Saturday and we came home. After a brief ER visit for pain management on Sunday, we are getting so much better. We had the most amazing care at Joe Di Maggio, they have our hearts for life. I swear Hadley is the mayor of the hospital, everyone knows and loves her. We are currently at home, pain is well controlled and she is up and ready to get back to summer school. We really seem to have been incredibly blessed this go round and we are so grateful. This has been a crazy two weeks and such a rollercoaster of emotions. The 4am ambulance ride triggered what was needed to happen. Honestly, I can't believe how lucky we have been so far in our healing journey and we have so many wonderful people in our lives that make this happen, thank you. Thank you to our sweet friends Laura Bracken Chaibongsai, Rachel Silverstein Altman, Dawn Shirreffs, Mandy Karnauskas for the most yummy Jeni's Ice cream package. Noah and I very scientifically assembled the flavors and taste tested them. For Hadley's approval, of course. She loves all, like her mama. Noah prefers all chocolate. Also, thanks to aunty Barb Burgman Keiser and uncle John Keiser for the super fancy snow cone maker, perfect timing. They are currently kinda tucked in on the couch and watching the Croods and making each other mildly crazy but yet unable to sit apart from each other... Yay! back to normal. It honestly amazes me how adaptive these two are, I am humbled daily. We are looking forward to healing and normalcy and if you can believe, for school to start. Not to be forgotten, thank you so much for the cutest hedgehog ever! I don't know who to thank as the box had no name, but she comforted Hadley during multiple MRI's and surgeries this visit. You are all so very important in our lives and we are so grateful, thank you. If I have forgotten to thank anyone, I apologize, but know I thank you in my heart each day and night.
We are overwhelmed by the response in the last 24 hours and we are profoundly thankful to all of you for your positive thoughts, prayers, and donations. We will work to keep you updated on Hadley's progress over the coming weeks and months as we continue this fight. For now, Hadley is still in the neuro ICU at LeBonheur Children's hospital as her endocrine system recovers from the surgery on the 29th of February. She went for a wagon ride today and was able to walk for a short time. I will try to get some pictures and videos posted as soon as possible. Love, the Burgmans
I forgot to thank my cousin Dianne Burgman Mercurio for setting this site up for us. Love you Dianne!
I have placed Hadley and your family on our prayer line again, and will call every prayer line around here I can find!! Praying for love, prayers, and strength during this stressful time. Praying for everyone to stay strong and well!! Love and God Bless
Oh my goodness Rob, Hadley is just so adorable, and you are right, she definitely has some moves! (really great rhythm!) No doubt a good teacher for her little brother. My prayers and thoughts are with you - may God bless her little heart (or big heart from what I see), and give you and Phoebe strength.
I am so sorry you and your family went through that. I pray they find out what is causing her pain. God bless you all.
hope it's just a simple stomach bug what Hadley has and wish Noah also safe recoveries. sending good vibes and prayers your way!
Professor, you are a great man and you have a very strong family to endure such an experience as you have. I pray for you and your family.
This is great news! John
just to let you know that your updates are appreciated, Sending you a ton of positive thoughts and vibes.
Thank you for the updates on your sweet baby girl. God bless you and your family!
big hugs, not bug hugs ;)
Love you all Rob Prayers for Hadley and your family.