Hadley's Hope

$67,531 of $75,000 goal

Raised by 714 people in 36 months
Hadley's  is a darling 3 yr old who was recently diagnosed with a massive brain tumor on her optic nerve and pituitary gland in early January .  The Drs. were only able to remove about 75% of the tumor and Hadley has completely lost her vision.  This has not kept This precious girl from dancing and being a joy to everyone around her!
 Although it has been described as benign, a recent MRI had shown what was left of the tumor to be growing   aggressively and she was taken in urgently for another surgery. Hadley is currently in ICU and will also need to undergo radiation therapy.  Your donations will go a long way to helping the Burgman family with the mounting costs of treatment for Hadley, and of course your positive thoughts and prayers are much needed and appreciated.
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From Mom:
Thank you all for your patience and understanding as we navigate this new territory. We are sad to say that there has been significant regrowth of tumor and cystic materials in Hadley's brain. We felt so confident from November's stable scan that we went in confident this would be a great scan. It was nauseating. This is the reality of pediatric cancers and brain tumors. We are always waiting for the other shoe to drop, for us and all families affected by cancer and brain tumors, it's just a matter of time. This is in an area that was previously treated and the growth was unexpected. We have seen our amazing pediatric neurosurgeon here and St. Jude has sent off scans and Hadley's information to two of their best recommendations, at both NYU and Columbia. We are reaching out to Nicklaus Children's here in Miami as well. This came as an absolute shock as Hadley has had no symptoms at all and is thriving in school. I have no real updates other than we, as a family, are holding tight and loving every minute of regular crazy life and praying for the least invasive method of treatment. We love you all and appreciate the messages, I apologize for my very delayed responses. I don't know what to say, but thank you for the sweet thoughts and prayers. I will try to keep you all posted as we progress. Again, thank you all. Your comments and love keep us going, they are what help us through this. It should also be noted how amazing Noah is as a brother, he has such an easy smile and his wish to help is incredible. They are simply adorable together. We are so very fortunate and we are so very grateful for each of these moments. As always, thank you. XOXOXO
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Sorry for the lapse in updates. Fiona and Hadley are currently on their way home from St Jude's. Unfortunately, the news and prognosis with Hadley's tumor is not good and we are facing another very rough patch in the coming months. We were unprepared for this eventuality and will circle the wagons for a while as we consult with our family/team at St Jude's and Joe Di Maggio on next steps. Also, know that Hadley is okay and is as happy a little girl as ever. Unlike the previous two brain surgeries, we have some time to prepare and are very fortunate that Hadley has had these past two years to heal. She is an extraordinarily tough and resilient little girl and we will get through this.

This is not an appeal for further financial support. You all have made such a huge difference by your actions these past three years and we are thankful beyond measure. We simply want you all to know what is happening with Hadley, the good and the bad.
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Hadley is home and doing well. She handled the cerebral angiogram procedure at Joe DiMaggio like the sweetest champ she is. It very luckily turned out to not be as bad as it appeared on the MRA from St Jude's. She has about 70% open carotid working. So 30% is narrowed, but we'll take it. No med changes. We are looking forward to no more pokies for the next 2-3 months, school starting back and playing with her friends. Again, thank you all for your kind words and thoughts, and hugs if we got to love on you! xoxo
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Update from mom at St. Jude Children's Research Hospital.

Hadley's MRI was mostly stable, a little increase in a cyst so we will repeat the MRI in 3 months. Also a small increase in the narrowing of the carotid artery so we will continue with the plan to have the cerebral angiogram next Tuesday at Joe DiMaggio . All in all though Dr. Merchant is satisfied with the current plan and I am so happy. We have a ton of appointments for check ups for the rest of the week, but get to go home on Saturday as planned. Thank you all so much for your thoughts, prayers and love. We really feel loved and grateful.
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Read a Previous Update
Rob Burgman
35 months ago
8
8

We are overwhelmed by the response in the last 24 hours and we are profoundly thankful to all of you for your positive thoughts, prayers, and donations. We will work to keep you updated on Hadley's progress over the coming weeks and months as we continue this fight. For now, Hadley is still in the neuro ICU at LeBonheur Children's hospital as her endocrine system recovers from the surgery on the 29th of February. She went for a wagon ride today and was able to walk for a short time. I will try to get some pictures and videos posted as soon as possible. Love, the Burgmans

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Rob Burgman
35 months ago
2
2

I forgot to thank my cousin Dianne Burgman Mercurio for setting this site up for us. Love you Dianne!

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Shirley Chambers
35 months ago
1
1

I have placed Hadley and your family on our prayer line again, and will call every prayer line around here I can find!! Praying for love, prayers, and strength during this stressful time. Praying for everyone to stay strong and well!! Love and God Bless

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Marcie Henderson
24 months ago

Oh my goodness Rob, Hadley is just so adorable, and you are right, she definitely has some moves! (really great rhythm!) No doubt a good teacher for her little brother. My prayers and thoughts are with you - may God bless her little heart (or big heart from what I see), and give you and Phoebe strength.

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Lauramarie Montgomery
24 months ago

I am so sorry you and your family went through that. I pray they find out what is causing her pain. God bless you all.

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Zeynep Ozfatura Gundogdu
24 months ago

hope it's just a simple stomach bug what Hadley has and wish Noah also safe recoveries. sending good vibes and prayers your way!

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Chase Wirks
25 months ago

Professor, you are a great man and you have a very strong family to endure such an experience as you have. I pray for you and your family.

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John McBride
28 months ago

This is great news! John

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Denis Pierrot
28 months ago

just to let you know that your updates are appreciated, Sending you a ton of positive thoughts and vibes.

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Lauramarie Montgomery
30 months ago

Thank you for the updates on your sweet baby girl. God bless you and your family!

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Alisa Little Cosenza
32 months ago

big hugs, not bug hugs ;)

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Dianne Burgman Mercurio
35 months ago

Love you all Rob Prayers for Hadley and your family.

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$67,531 of $75,000 goal

Raised by 714 people in 36 months
Created February 19, 2016
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Rob Burgman
35 months ago
8
8

We are overwhelmed by the response in the last 24 hours and we are profoundly thankful to all of you for your positive thoughts, prayers, and donations. We will work to keep you updated on Hadley's progress over the coming weeks and months as we continue this fight. For now, Hadley is still in the neuro ICU at LeBonheur Children's hospital as her endocrine system recovers from the surgery on the 29th of February. She went for a wagon ride today and was able to walk for a short time. I will try to get some pictures and videos posted as soon as possible. Love, the Burgmans

+ Read More
Rob Burgman
35 months ago
2
2

I forgot to thank my cousin Dianne Burgman Mercurio for setting this site up for us. Love you Dianne!

+ Read More
Shirley Chambers
35 months ago
1
1

I have placed Hadley and your family on our prayer line again, and will call every prayer line around here I can find!! Praying for love, prayers, and strength during this stressful time. Praying for everyone to stay strong and well!! Love and God Bless

+ Read More
Marcie Henderson
24 months ago

Oh my goodness Rob, Hadley is just so adorable, and you are right, she definitely has some moves! (really great rhythm!) No doubt a good teacher for her little brother. My prayers and thoughts are with you - may God bless her little heart (or big heart from what I see), and give you and Phoebe strength.

+ Read More
Lauramarie Montgomery
24 months ago

I am so sorry you and your family went through that. I pray they find out what is causing her pain. God bless you all.

+ Read More
Zeynep Ozfatura Gundogdu
24 months ago

hope it's just a simple stomach bug what Hadley has and wish Noah also safe recoveries. sending good vibes and prayers your way!

+ Read More
Chase Wirks
25 months ago

Professor, you are a great man and you have a very strong family to endure such an experience as you have. I pray for you and your family.

+ Read More
John McBride
28 months ago

This is great news! John

+ Read More
Denis Pierrot
28 months ago

just to let you know that your updates are appreciated, Sending you a ton of positive thoughts and vibes.

+ Read More
Lauramarie Montgomery
30 months ago

Thank you for the updates on your sweet baby girl. God bless you and your family!

+ Read More
Alisa Little Cosenza
32 months ago

big hugs, not bug hugs ;)

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Dianne Burgman Mercurio
35 months ago

Love you all Rob Prayers for Hadley and your family.

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