Mother of 4 with Terminal Illness

$10,939 of $60k goal

Raised by 166 people in 1 month
Sassan Rafizadeh  LOS ANGELES, CA
33-year old Stephanie was diagnosed with scleroderma over 3 years ago. Scleroderma is a fatal disease that causes scarring of the internal organs and leads to organ failure. In Stephanie’s case, her lungs are the most affected. Currently, there is no cure, and Stephanie is a vocal advocate for patients with scleroderma.

Any day can be her last and this family’s time together is so precious.

She has an amazing husband and four wonderful children, aged 7, 10, 12 and 13. She can no longer work, and her husband had to stop working full time in order to take care of Stephanie and the kids. Every day is a struggle for them financially.

We’ve set up this campaign so Stephanie can spend quality time with her family and keep advocating for others who have this devastating disease. What this family is going through is tragic but we can help.  Let’s come together and help give Stephanie’s family one less thing to worry about this new year.

Funds raised will go towards:
Medications
Hospital and medical bills
Rent
Food
Family expenses


This wonderful family has always given to people in need, it is our turn to give to them.


Any amount you donate is greatly appreciated. No amount is too small and just spreading the word can go a long way. 

Thank you for your generosity. We wish you a healthy and prosperous new year!

This campaign is being spearheaded by:
Dr. Sassan Rafizadeh, MD, PhD (Dr. Rafi)
Adam Karm
Dr. Shirley Pakdaman, PsyD
Julie Trombetta, RN
Jacqueline Epcar

Please do not hesitate to drop us an E-mail with your phone number if you have any questions. We will call you.
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Help spread the word!
 253 shares on Facebook
Update 3
Posted by Sassan Rafizadeh
21 days ago
Our team wishes you a healthy and prosperous new year! Thank you to all of you who have donated your time and $$ and/or helped spread the word. It means the world to us. I would also like to thank those who spearheaded this campaign, including Adam Karm who spent countless hours producing the videos, Laura Ellner who spent sleepiness nights helping create the campaign, Dr. Shirley Pakdaman, Julie Trombetta, Jacqueline Epcar and the many others who volunteered numerous hours to make this campaign happen.

Our team and I have known Stephanie for over a year and found it urgent to help her and the family during these hard times. I have been intimately involved with her condition and know the family well.

I will be withdrawing the funds and deliver them to Stephanie on a monthly basis. If you have any questions, please do not hesitate to E-mail us and we will call you.

Much love.
-Sassan
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Update 2
Posted by Sassan Rafizadeh
1 month ago
We have reached one tenth of our goal in 2 days- thanks to you and our campaign ambassadors. We cannot thank you enough for your generous contributions. It means the world. Now we need to keep spreading the word. Please E-mail your friends, family and colleagues and help us reach the goal faster.
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Update 1
Posted by Sassan Rafizadeh
1 month ago
Our most sincere thanks to all of you who contributed or just helped by sharing this campaign.

I first met Stephanie over a year ago when she approached our research group to see how she could help us get the word out on our drug for fibrosis, which we believe could cure her. Because the drug is a few years away, Stephanie knew that more than likely the drug would not benefit her, but that wasn't why she was supporting this cure. She wanted to be the last generation to be affected by fibrosis. She's selfless and you could see that same trait in her husband and their 4 beautiful children.

So we thought it would be best to help them with their immediate needs as any day could be her last. Right now, a lot of their time is spent just trying to put food on the table, not to mention being slammed with a ton of other bills, giving them less precious time to spend together.

Please keep sharing, through E-mailing your friends and sending messages to your Facebook friends. Those yield the best responses. Just a few dollars will make a huge difference if we get enough people to contribute.

Thanks!
-Sassan Rafizadeh, MD, PhD (Dr. Rafi)
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Help spread the word!
 253 shares on Facebook
Read a Previous Update
Christopher Kidder
24 days ago

Glad you are organizing this. Prayers for Stephanie and her family.

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$10,939 of $60k goal

Raised by 166 people in 1 month
Created December 18, 2016
DA
$25
Diana Ayre
13 hours ago
KL
$25
Kathy Lee
3 days ago
KS
$25
Keren S
3 days ago
CH
$15
Colby Hanik
3 days ago
JB
$25
Joerg Bauer
3 days ago
JW
$30
Jenifer Wallis
4 days ago
$50
Daniel Gabbay
9 days ago
$26
Debbie Yerushalmi
12 days ago

May G-d bless you and your beautiful family!

MS
$30
manuela de sousa
13 days ago
MS
$10
manuela de sousa
13 days ago
Christopher Kidder
24 days ago

Glad you are organizing this. Prayers for Stephanie and her family.

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