Making Dreams Come True
Every single dollar raised here has, and continues to go to Cure Sanfilippo Foundation, a 501c3 nonprofit (tax ID: 46-4322131). Donations are tax deductible. Cure Sanfilippo has a mission to advocate and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. In short, we fund research to save children via treatments & clinical trials. No dollars ever go to or for any particular family or child. We tell individual stories, for the greater cause and mission....which is to cure this terrible fatal brain disease in little children, often referred to as a Childhood Alzheimer's. Our deepest and humble thanks for visiting this page and considering support. You are our hero! Glenn O'Neill (Dad, Donor and President of Cure Sanfilippo Foundation) firstname.lastname@example.org (anytime)
When: 10 Days from Nov 6-16th.
Goal: Raise $300,000
How: 4,000 supporters donating $77 each (although every bit helps)
Saving Children's Lives is one of the most noble efforts in the world. If you've been one of our supporters who has given or shared over the years, you've directly been part of this effort and we THANK YOU again immensly. Our daughter Eliza and other children now have a chance at LIFE, thanks to you! There are MANY MORE kids that need this chance, before its too late, as they are taken away from their parents in front of their eyes. Sanfilippo Syndrome, is like a rapid childhood Alzheimer's. As a parent, you just begin to start getting to know your beautiful child's personality around age 3-4, and then it is all taken away. The disease is terminal with no current cure or treatment, but HOPE exists in these clinical trial paths, which lack funding. That is the HOPE you gave my daughter Eliza as she was treated in a clinical trial. We must save these children, and it must be NOW for chidren like Sawyer, Rylan, Keira, Spencer, Carter & Abigail...just to name a few.
If you've never heard of Sanfilipo Syndrome, please watch the 3 minute video here:
Eliza’s “Cinderella themed” birthday is going to be incredible this year! We are fortunate to be able to place that 7th candle on her cake with tears of joy and hope, instead of only dread and fear for what her future would hold. For Sanfilippo parents, the truth is that without a treatment, birthdays are terribly difficult reminders of what is to come. Watching your child go backward and lose more and more skills each year is unbearable. It is like taking candles off the cake each year as your child slips away. There are so many little Sanfilippo princes and princesses that are hoping for a chance at LIFE. There is no better gift for Eliza’s birthday, than to help give her friends a chance at LIFE, by being one to donate $77…and for these children, it must be NOW before it is too late
This year is a celebration of LIFE and a CALL TO ACTION for Sanfilippo children everywhere.
Our goal is to raise $300,000 in 10 DAYS, from November 6-16th. How? We need 4,000 supporters donating $77 by Eliza's 7th Birthday! We need you to #Give77 and help this to go #viral by sharing. And please don't just share, but if you would validate this cause with some comments about the importance and how you've helped already.
The funding goes directly to Cure Sanfilippo Foundation toward urgent research and treatment options for children (and is tax-deductible). This degenerative disease Sanfilippo Syndrome, like a 'Childhood Alzheimer's', CAN be stopped in children.
We must save them and we can't do it without EACH of you. BE ONE of our 4,000 donors and help Eliza's freinds have a chance at LIFE. These precious Sanfilippo princes and princesses need your help. #Give77 today!
Our deepest THANKS!
The O'Neill Family and Cure Sanfilippo Foundation
PS: By helping here, you are continuing to save children's lives. Every child pictured (and many more) are just hoping for a chance at life.
Cure Sanfilippo Foundation is a 501c3 non-profit (Tax ID: 46-4322131). All donations are tax deductible. Visit www.CureSFF.org for more information on the Foundation.
Thusfar, supporters, freinds and families like you have allowed Cure Sanfilippo Foundation to drive Sanfilippo research forward at an unprecedented pace. You've helped fund 8 research grants, one treatment center, and one project which is now in clinical trial and treating children. We race forward urgently as we continue to hear the heart-wrenching stories of pain, suffering, and loss from Sanfilippo. We have much more work to do.
This year, we've decided to hear Eliza's words, in a special "Dear Daddy" Letter. You can find the letter at: www.SavingEliza.com This is part of her 9th birthday campaign to raise $99,999 in just 9 days, to take promising research projects to the next phase.
You've taken us this far, and thanks to you, we'll never stop fighting. HOPE! Thank you.
Eliza is doing pretty well overall, and we are so thankful. As we continue our fight, there are many more kids who haven't gotten a chance against this terrible disease, Sanfilippo Syndrome.
If there is one thing you could do, in honor of Eliza, her brother, and Mom & Dad, it would be to support the new viral VIDEO campaign for Carter at http://www.SavingCarter.com If we can help this new campaign go VIRAL, it can fund another clinical trial for children, and a new therapy that could benefit Eliza and many other kids in the future.
All our LOVE for those new followers, and those who have stood with us from the beginning, and continue to.
Overwhelmed, emotional, but loved & full of HOPE always . Thank you. Glenn, Cara, Beckham & Eliza O'Neill
PS- reminder to watch, share, and support http://www.SavingCarter.com if you are able please
Latest Cure Sanfilippo update at www.CureSFF.org/update
Eliza had a wonderful and happy day on her birthday. Well, in reality we celebrated three different times, but that's OK...more cake! Lots of smiles and laughs.
You helped us raise over $90,000 in just 10 days! Again just truly humbled at your loyalty and support for our cause. These dollars will go to research projects with a path to clinical trial treatments for children. We truly appreciate it, in the efforts to Cure Sanfilippo Syndrome. Thank you so much for caring! Cara, Glenn, Beckham and Eliza!
Happy 8th Birthday today to Eliza! $75,000 has already been raised and our final push is to reach $80,000 for her 8th birthday before midnight.
Tonight our hearts overflow, and we are strengthened and inspired thanks to you.
This is our final update on the campaign. Goodnight and thank you for your kindness, compassion, and empathy.
The O'Neill Family
#HOPE #SavingEliza #CureSanfilippo #SaveChildren #GivingFamiliesHOPE You are making a difference.