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Flavia Nacimento, Alex Castellar

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Flavia Nacimento has been diagnosed with ALS,   Amyotropic Lateral Sclerosis, also known as Lou Gehrig's disease.
Flavia is the wife of Alex Castellar.  Flavia and Alex have 2 children,  Aurthur age 8 and Alice age 2.

ALS causes destruction of motor neurons throughout the body.  Motor neurons send impulses to muscles telling them to function.  Motor neurons control speech, swallowing, breathing and movement of arms and legs.  When the motor neurons are not working properly,  as in ALS,  the muscles try to work harder thus the patient has muscle twitching, muscle spasms and extreme fatigue, they get very tired quickly.

Flavia began having symptoms in February of 2018.  Flavia is having difficulty with speaking, has weakness of her arms and legs and tires very quickly. 

Currently there is little treatment for ALS,  the cause is unknown in most cases.

Flavia is exploring current treatment options, all are very expensive and time consuming.  
Flavia will be exploring research treatment options including stem cell transplant trials ongoing in the US and other countries.

Time is of the essence for Flavia now!  I know you are devastated as you read this, as is her husband, children, family and other friends.   We all want to help Flavia!

Please help Flavia by donating to this GoFundMe account for Flavia, Alex, Arthur and Alice.  Your donations are tax deductible.

Donated funds go directly to Flavia to use for medical treatments, insurance deductible,  loss of work, travel to appointments, medical equipment, home care, home modification for equipment, childcare and other expenses Flavia is sure to encounter as she fights this deadly disease.  

GoFundMe accepts monetary donations only.  We will be setting up a separate account for you to give airline miles, hotel points, travel awards, PTO time etc.  Who knows, maybe we will have a huge fund raiser or garage sale in time.

Flavia and her family thank you in advance for your generous donation now and in the future to her GoFundMe.  We will post updates on Flavia's success over time.

Of course your first impulse is to pick up the phone and call Flavia.  Flavia is having speech difficulty and tires easily when she speaks, maybe an email would work better or keep the calls short please.

Flavia and family have travel plans to Brazil to visit her family and Alex's family in July.  They are going to Brazil as planned.  Flavia will have additional medical visits while in Brazil with her parents.

All of us LOVE  this beautiful, giving, caring person called Flavia.  Flavia is a daughter, wife, mother, sister and friend to all.

Please donate to the GoFundMe for Flavia Nacimento now.

Thank you for your donation.
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Donations 

  • Anonymous
    • $5 
    • 4 yrs
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Organizer and beneficiary

Vida Neufeld
Organizer
Fort Myers, FL
Flavia Nascimento
Beneficiary

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