Dorothy's Cancer fight + Recovery Fund
She is almost 3 years old and has been battling Stage 3 Wilm's tumor (or nephroblastoma) ever since her unexpected and shocking diagnosis in July 2014. She has already completed 4 rounds of Chemo and just recently had major surgery to remove her left kidney and tumor that had grown into her vena cava and heart. She is currently undergoing radiation and has 5 more rounds of chemo to complete. Thank you for joining Dorothy on this journey and supporting our family during this challenging time.
In case you're not familiar with her story, here is some background info about how our journey began on July 13, 2014.
Sunday, July 13-blood showed up in her urine, then a visit to the ER, an ultrasound (a mass was detected on her L-kidney ), in less than 1/2 hour we were in an Ambulance for a 100 mile ride to her Hospital in Santa Barbara. She was admitted immediately.
Monday- tests and a CAT scan, which showed the mass was a tumor, massive in size in her L-kidney and had also entered the Ven-cava as well as residing in the R-Atrium of her heart.
Tuesday- a PET Scan was performed to look for cancer anywhere else in this little Angels body. No cancer was seen elsewhere. The first breath we took for nearly 2 days.
Wednesday- was surgery for a biopsy of the kidney in order to determine which cancer type is growing inside her. As well as the biopsy being performed an IV-picc line for her treatments was put in place as well as 2 temporary catheters.
Thursday- more testing and cultures were done as Dorothy's fever issue was addressed. Waiting on biopsy results.
Friday- Dorothy's cancer is identified as Stage 3 - Cancerous Wilms' Tumor(nephroblastoma) and resides in her Left Kidney, vena cava, and 2/3 of the Right Atrium of her heart. Chemo began Friday and will continue for at least 28 weeks. After blood transfusions, fighting off a blood infection, and dealing with the large amount off blood clots we found in her bladder, we were able to go home. We will return every week for chemo.
After completing 12 weeks and 4 rounds of chemo, a CAT scan revealed that the tumor was still present in her vena cava and our plan for surgery was changed and scheduled at a different hospital that would be better equipped to handle the surgery and complications that came with it. After 10 days in the PICU, several scares involving low blood pressure and the reformation of a blood clot in her vena cava in less than 48 hours after surgery, she was finally stable and we were able to go home.
On October 29, A few days after being discharged from the hospital, she began radiation and started chemo again. She will have seven consecutive days of radiation including flank radiation and radiation of her vena cava and heart. She will also have an additional 5 more rounds of chemo.
Purpose of this Campaign- Dorothy still has a long battle ahead and we are asking for your healing thoughts, prayers and that you donate whatever you can to contribute to her medical costs and the long road to recovery. In addition to unforeseen medical and gas expenses, there have also been loss of income since I had to leave my job to care for Dorothy full-time. We are so incredibly grateful for your support and kind words. It means the world to our family! Our lives have been forever changed by this experience, but we know Dorothy has a bright future ahead of her and we can't wait to watch her grow up! We promise to keep you up to date as to Dorothy's progress and recovery. Thank you❤️
We got her Scan results back at the appointment with her oncologist and they found something suspicious in the bladder so we were sent back to do a live scan with the doctor present. They wanted to rule out any sort of mass in her bladder. After looking a second time, the doctor decided it looked like it might just be a fold in the bladder and we will follow up in December when she gets her next ultrasound and look for any sort of changes. I am confident that he's right and it's nothing, although I can't help but be reminded of the horror I felt the first time when they found a mass in her kidney the same way. But I know that even if it was something to be concerned about, Dorothy would continue to fight and beat whatever it is!
I can't thank you all enough for the support and encouragement you have shown our family! Thank you for being a part of our journey❤️
P.s. This is the new addition to our family, "Bear's mama"
A huge thank you to jacks helping hand for the gift yesterday! As you can see she immediately fell in love. Last night she even slept with both bears, which I'm pretty sure is the first time she's ever slept with anything other than her regular brown bear❤️
In a couple of Weeks, Dorothy will be repeating a urine test that she had back in June called the microalbumin/creatinine ratio. Last time it was abnormal and we are told that if there is no improvement they would like to start her on long term meds in order to prevent her remaining kidney from getting worse and becoming more "stressed." I remain hopeful and optimistic that the test will show improvement! I think that we are doing absolutely everything we can to help support and heal her body, and I know that it will pay off! She is such a little fighter ❤️
We will be seeing both her nephrologist and oncologist on September 17 to review the urine test results and additional routine bloodwork, plus get her scans done all in the same day! We will keep you posted as the day gets closer.
We love you all so very much! Thank you for your continued support and for being a part of this incredible journey. It means the world to our family ❤️ please continue to pray for healing and visualize her happy, healthy and smiling!
I'm so very pleased Dorothy is doing well. I've been following her struggle for quite a while and I can't tell you what a pleasure to see her smiling little face.
Wanting to know how Dorothy is doing???? Is she excitrd about her trip to Disneyland???We stopped to eat at B.S. and it was closed...will you be opening soon or not?We love the food there...let me know..
Thank you so very much for the updates.I'm thrilled with this one and will keep up my prayers for Dorothy you and Mark.
Dorothy, your army of supporters are praying. Stay Strong Angel
I was just presented this morning, Checks and Cash in the amount of $2175.00 from a collection spearheaded by Joe and LuAnn Agnello. This donation to Dorothy was collected from the Pickle-ball Group on the FUN/ South side courts at Mulberry Grove, here in The Villages. I will hand carry this and others to Dorothy next week. I am deeply touched by this and all of the support for my littlest Grandchild. Thank you from the bottom of my heart!
Neighbors have given/mailed (out of town for Summer) donations and they are being mailed to Dorothy. Thank you, Jack and Henrietta, Frank and Dottie, Bobby and Linda and Rose and Bud........love you guys!
We had so much fun today visiting you guys. Windham prayed for Dorothy tonight, and it melted my heart!
My nephew's son was diagnosed with kidney cancer a few days before his third birthday. It was very frightening, and the chemotherapy was hard. But he has been healthy for several years, now. Hang in there!
I am going to keepDorothy and her family in my prayers. Our God is an awesome God and He is able !
I will be praying for a miracle for your angel. I received a text from our mutual friend, Amichi. God is the worker of miracles and the Great Physician. I am praying His healing hands will touch her in a mighty way and that you will gel His comfort and peace in your heart as you trust Him to do His will. God bless you all.
My heart just burst open in grief and super positive thoughts and prayers for you. Do you already know about Jacks Helping Hand for help with medical costs like travel? Xoxo Sara and Liam
Praying for complete healing for your little angel.
I found your story on a friends facebook page. Please feel free to contact me at firstname.lastname@example.org or visit our website fighters4life.org. sending all our love