DO IT FOR DAVE

$5,300 of $20,000 goal

Raised by 80 people in 59 months

                                       DO IT FOR DAVE!


                                   
       "Do It For Dave" is a fundraising effort started by the friends and family of David Suslik with his loving wife Althea creating and updating the page. David's journey started when he received the news no one wants to hear. CANCER. While holding back tears, David and his family braced themselves as the surgical team of doctors at Upstate University Hospital in Syracuse, NY delivered the news that would change their lives forever. At the end of April, David started experiencing right sided stomach pains and heart burn that he assumed was nothing to worry about but with my encouragement he sought further medical attention. After various testing and scanning, the "stomach pain" was really  cancer of the gallbladder that had already attached to the liver; creating a tumor the size of a golf ball and had spread to the lymph nodes in his lungs.

       These finding resulted in David being unexpectedly diagnosed with a rare and aggressive form of cancer known as Stage 4 Cholangiocarcinoma. Cholangiocarcinoma is a cancer that usually presents without symptoms until it’s in the latest stages. It develops in the cells within the bile ducts; both inside and outside the liver. Cholangiocarcinoma is one of the most uncommon cancers and only accounts for approximately 2% of all cancers encountered in the United States.

       According to his oncologist, treatment needed to begin immediately. David's diagnosis was delivered on a Thursday, with a port placed the following day and received his first chemotherapy treatment on Monday, Cinco de Mayo. David continues to receive chemotherapy treatments, as this is the only known treatment for Stage 4 Cholangiocarcinoma.

       As you can imagine, David and I were in disbelief as the reality of this situation began to set in. We had no clue that this was happening to his gallbladder/liver. No signs or "red flags" to warn us. This crept up on us like a thief in the night. Even after receiving the grim prognosis of "6 to 8 months on average to live with aggressive treatment", "maybe 2 years", "palliative care not curative care," David and I are determined to fight. We are dedicated to fight for our family, our children and our friends. Fight for Dave! 
   
         David is a young, otherwise healthy, man who deserves the best treatment to battle this rare cancer. David currently receives chemotherapy at the ROC (Regional Oncology Center) located in Syracuse, NY. The ROC is part of the up and coming Cancer Center at University Hospital. We have also been to Roswell Park Cancer Institute located in Buffalo, NY for a second opinion which yields us some hope for clinical trials if David doesn't respond to the chemotherapy. We have also been in contact with Sloan Kettering located in Manhattan, NY and are hoping for some advanced treatment options that they offer. Both Roswell Park Cancer Institute and Sloan Kettering facilities are the best of the best for this type of cancer. Please feel free to visit The Cholangiocarcinoma Foundation's website, www.cholangiocarcinoma. org, which provided David and I with more understanding of this type cancer.

     David is more than just "Stage 4 Cholangiocarcinoma".  David is dedicated to his family and friends. He's the kind of person who makes you laugh when you've had the worst day. He would drop what he's doing to help out a family member, friend, or neighbor. David has this infectious laugh that is distinctive to those who know him -- you can't help but laugh with him. He's a husband, a father, a son, a brother,and friend to many. 

       David was the previous owner of "The Combat Zone Paintball" located at Arnold Palmer Golf Facilities where he proudly ran the business for the past 7 years. He took pleasure in watching the children and adults have a great time with their family and friends; promoting birthday and group parties. David established a family-oriented type of business; families that play together stay together. David recently handed the business down to his middle son Brandon to run.

     David has six children, ranging in ages 4-28. David enjoys taking his boys out fishing and hunting; and also willing to get pedicures with his daughters. David and I just celebrated our 6th wedding anniversary, but have been together for more than 11 years, he is truly my soulmate. David, myself, and our two children reside together in our country home in Cayuga. I stand next to David; loving and supporting him the way I know he would stand by me.

      With the help of family, friends, and other generous supporters we hope to raise enough money to cover the medical expenses incurred from this unfortunate disease.  Thoughts and prayers are appreciated as well during David’s battle with this cancer. DO IT FOR DAVE!


 
 
                                 DAVID & ALTHEA SUSLIK


                         DAVID & ALTHEA (Dominican Republic) 


                                      BIG BRO/ LIL SIS


                          DAVID & GINA MOWING THE LAWN


                           BRANDON, MARY, & ZACK SUSLIK


                                      GINA'S HERO


                                ZACK, MARY, & BRANDON



                      BENJAMIN & GINA (FIRST DAY OF SCHOOL)



                               DAVID (NY STATE FAIR 2013)


DAVID AT THE SOCCI STAMPEDE/RECIEVED AWARD FOR FASTEST TIME IN HIS AGE GROUP!



                    DAVID, ALTHEA, BENJAMIN, & GINA SUSLIK
                              (NP GRADUATION 2013)



                                   DAVID THE HUNTER


                                    GINA, JAY, & DAVID


                                         DAVID & TONY


                                      FAMILY UNO GAME





                                         JESSIE SUSLIK

                                      GINA & DADDY 
                            DADDY'S LITTLE GIRL TURNS 1



                              FISHING WITH THE BOYS




                                    DADDY'S GIRL


                  BRANDON AT THE COMBATZONE PAINTBALL


                         GINA & DADDY (FIRST SWIM LESSON)


                                DAVID LOVES HIS CHICKENS



                                 BIG SIS/LIL SIS


                             DADDY, GINA, & PEDIS


                                          DAVID & GINA



                                  BENJAMIN & DADDY


                        FIRST CHEMOTHERAPY TREATMENT


                                        SUPER DAVE


                                       DAVID & ROSIE



                                            
DAVID SUSLIK, MORE THAN JUST "STAGE 4 CHOLANGIOCARCINOMA"

 
                                   

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This will be our final update through the DoItForDave GoFundMe site. Our family would first like to thank all of our friends and extended family who have been there for us throughout this unpredictable journey. Thank you to all who have supported us in so many ways. People who have unselfishly given their time and support to Dave and our children. Our friends and their children have all brought a smile to Dave's heart. Dave needs a miracle that medicine cannot give. Unfortunately, Dave is not responding to this new target drug that we worked so hard to get from the pharmaceutical company. Dave's main tumor in the gallbladder attached to the liver is growing. Our oncologist at CTCA has nothing left for Dave....We are left empty and heartbroken.
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SPECIAL DELIVERY--Gina and I drove out today to FedEx in Syracuse to pick up Dave's "special delivery"--Afatinib. We received 1 month supply with 1refill that is good for 1 year (when I first spoke with the representative from the pharmaceutical company, I was under the impression that they were going to provide this medication for up to 1year). This will hopefully be a great start. Dave went to Chicago to have blood work and another CT scan--everything is the same just bigger. There are no new tumors; only the same gallbladder/liver tumor and several enlarged liver/abdominal/pelvis lymph nodes which are presumed to be cancer activity. So as we keep telling ourselves, "one day at a time", we are still very grateful for the 2 month supply that the pharmaceutical company has given to us. Our oncologist told us that if Dave responds to this treatment then the pharmaceutical company will likely give Dave more. So in 2 months Dave will have another CT scan to see if Afatinib is working. We are still at the mercy of the pharmaceutical company, but ultimately we are at God's Mercy! Please keep Dave in your thoughts and prayers!! He really is a kind soul who we love more than words can say.
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Thank you all for your encouragement, prayers, love, and support which gives us strength. I never thought I would be desperately writing to everyone and anyone who will listen to David's story. David's cancer is RARE like so many other cancers that have limited resources and little to no research opportunities. With this in mind, I cannot believe the rejection coming from the Health Insurance Company and especially the Pharmaceutical company. I have been exposed to the gifts of the pharmaceutical companies and it seems so unfair that they are denying David an option for treatment. I thought that if I worked hard and had great health insurance, then we would not be in this situation. I am asking for each one of you to please share David's story; I am posting a copy of a letter that you can copy/paste and mail to your local congressman/women/media/anyone who will listen. DO IT FOR DAVE.

**********************************************

To Whom It May Concern:

My name is Althea Suslik, married to David E. Suslik (51), a longtime resident of Auburn NY. David has been fighting for his life; fighting against a RARE and AGGRESSIVE Stage 4 Gallbladder Cancer (Choleangiocarcinoma) since April 29, 2014. Time is of the essence and I cannot stress enough that time is not on our side during this fight. We need action now.

Gallbladder cancer treatment has been PALLIATIVE verses CURATIVE with no hopes of remission per several oncologists. There’s little knowledge about this rare cancer and limited research as well. David has already received a total of 3 chemotherapies and 1 target drug therapy. David receives his chemotherapy care at Cancer Treatment Centers of America in Chicago. Our last option is a target therapy drug name Afatinib. Afatinib is being denied to David by both our health insurance (BlueCross BlueShield Simply Platinum Plus program) and the pharmaceutical company ((Boehringer Ingelheim Pharmaceuticals, Inc.), which is inhuman and grossly undeserving.

Based on the results of the GENOMIC testing of David’s gallbladder cancer biopsy, Afatinib is a target therapy drug that stops the protein that drives David’s cancer. With this being said, we are desperately waiting for the health insurance company and the pharmaceutical company to change their minds in the current appeals to ALLOW David this target drug therapy that he desperately needs.
We have recently received information from the Cancer Treatment Centers of America regarding the decision from our health insurance that it will NOT cover the $7000 (per month) cost for this medication. We later received this confirmation in writing of their denial. We have also received information that the pharmaceutical company (Boehringer Ingelheim Pharmaceuticals, Inc) will not provide patient financial assistance for the medication AFATINIB because “it’s being ordered off-label”.


AFATINIB is David Suslik’s LAST OPTION before attempting to find a clinical trial. As you may or may not be aware, there are limitations with clinical trials and may take time that we do not have to find the perfect clinical trial for David. David would benefit from this target drug based on his GENOMIC testing of the gallbladder tumor. AFATINIB is a target drug that I know will give David time; time with his family and friends; time to find a potential cure. David should not have to go without when we work so hard for the healthcare insurance we have.


David is more than just Stage 4 Choleangiocarinoma. David is dedicated to his family and friends. David is a kind, warm hearted person. He’s the kind of person who makes you laugh when you’ve had the worst day. He would drop whatever he’s doing to help out a family member, friend, neighbor, or stranger. David has this infectious laugh that is distinctive to those who know him; you can’t help but laugh with him. He’s a husband, a father, a son, a brother, and a friend to many. David is a family man, hardworking man who doesn’t deserve rejection of medication he so desperately needs. I hope to continue to share David’s story until he receives what he needs. DO IT FOR DAVE campaign.

Sincerely,

THE SUSLIK FAMILY





Please copy and paste to mail letters to our congressmen:
1. John Katko
Auburn, NY Regional Office
71 Genesee Street
Auburn, NY 13021

2. Charles Schumer
Leo O’Brien Building, Room 420
Albany, NY 12207

and

100 South Clinton Street, Room 841
Syracuse, NY 13261

3. Kirsten Gillibrand
Leo O’Brien Federal Office Building
11A Clinton Avenue
Room 821
Albany, NY 12207

and

James M. Hanley Federal Building
100 South Clinton Street
Room 1470
P.O. Box 7378
Syracuse, NY 13261

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To Whom It May Concern:

My name is Althea Suslik, married to David E. Suslik (51), a longtime resident of Auburn NY. David has been fighting for his life; fighting against a RARE and AGGRESSIVE Stage 4 Gallbladder Cancer (Choleangiocarcinoma) since April 29, 2014. Time is of the essence and I cannot stress enough that time is not on our side during this fight. We need action now.

Gallbladder cancer treatment has been PALLIATIVE verses CURATIVE with no hopes of remission per several oncologists. There’s little knowledge about this rare cancer and limited research as well. David has already received a total of 3 chemotherapies and 1 target drug therapy. David receives his chemotherapy care at Cancer Treatment Centers of America in Chicago. Our last option is a target therapy drug name Afatinib. Afatinib is being denied to David by both our health insurance (BlueCross BlueShield Simply Platinum Plus program) and the pharmaceutical company ((Boehringer Ingelheim Pharmaceuticals, Inc.), which is inhuman and grossly undeserving.

Based on the results of the GENOMIC testing of David’s gallbladder cancer biopsy, Afatinib is a target therapy drug that stops the protein that drives David’s cancer. With this being said, we are desperately waiting for the health insurance company and the pharmaceutical company to change their minds in the current appeals to ALLOW David this target drug therapy that he desperately needs.
We have recently received information from the Cancer Treatment Centers of America regarding the decision from our health insurance that it will NOT cover the $7000 (per month) cost for this medication. We later received this confirmation in writing of their denial. We have also received information that the pharmaceutical company (Boehringer Ingelheim Pharmaceuticals, Inc) will not provide patient financial assistance for the medication AFATINIB because “it’s being ordered off-label”.


AFATINIB is David Suslik’s LAST OPTION before attempting to find a clinical trial. As you may or may not be aware, there are limitations with clinical trials and may take time that we do not have to find the perfect clinical trial for David. David would benefit from this target drug based on his GENOMIC testing of the gallbladder tumor. AFATINIB is a target drug that I know will give David time; time with his family and friends; time to find a potential cure. David should not have to go without when we work so hard for the healthcare insurance we have.


David is more than just Stage 4 Choleangiocarinoma. David is dedicated to his family and friends. David is a kind, warm hearted person. He’s the kind of person who makes you laugh when you’ve had the worst day. He would drop whatever he’s doing to help out a family member, friend, neighbor, or stranger. David has this infectious laugh that is distinctive to those who know him; you can’t help but laugh with him. He’s a husband, a father, a son, a brother, and a friend to many. David is a family man, hardworking man who doesn’t deserve rejection of medication he so desperately needs. I hope to continue to share David’s story until he receives what he needs. DO IT FOR DAVE campaign.

Sincerely,

THE SUSLIK FAMILY





Please copy and paste to mail letters to our congressmen:
1. John Katko
Auburn, NY Regional Office
71 Genesee Street
Auburn, NY 13021

2. Charles Schumer
Leo O’Brien Building, Room 420
Albany, NY 12207

and

100 South Clinton Street, Room 841
Syracuse, NY 13261

3. Kirsten Gillibrand
Leo O’Brien Federal Office Building
11A Clinton Avenue
Room 821
Albany, NY 12207

and

James M. Hanley Federal Building
100 South Clinton Street
Room 1470
P.O. Box 7378
Syracuse, NY 13261

+ Read More
Read a Previous Update
Eric Ewald
56 months ago

Do it For Dave, a benefit for David E. Suslik, of Auburn, will be held from 1 to 6 p.m. Sunday, Sept. 14, at the Ukrainian National Club, 125 Washington St., Auburn. Plz share this Dave is the kind of guy who would give you the shirt off his back . Help any way you can donate or go to the benefit or just share this page. But do something.

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$5,300 of $20,000 goal

Raised by 80 people in 59 months
Created June 16, 2014
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$100
Anonymous
30 months ago
JS
$100
Joe Suslik
30 months ago

From Uncle Joe and Debra

CT
$40
C T
30 months ago
TW
$200
Theresa walawender
32 months ago

Dusty wanted to donate half his birthday money to David!

$25
Anonymous
33 months ago
$100
Anonymous
33 months ago
Eric Ewald
56 months ago

Do it For Dave, a benefit for David E. Suslik, of Auburn, will be held from 1 to 6 p.m. Sunday, Sept. 14, at the Ukrainian National Club, 125 Washington St., Auburn. Plz share this Dave is the kind of guy who would give you the shirt off his back . Help any way you can donate or go to the benefit or just share this page. But do something.

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