Damien McCauley Fund

$53,394 of $60,000 goal

Raised by 1,848 people in 58 months
Damien McCauley is a sweet little 5 year old boy who has battled every day of his life to live. He was born with a condition called Nephronophthisis (type 3) which causes liver and kidney failure, severe developmental delays, heart, eye and bone defects, lack of muscle tone and more. He does not walk and he does not eat by mouth; instead he is fed thru a feeding tube. He has suffered thru many surgeries and long hospitalizations including a liver and kidney transplant in June of 2012. During his 4 month recovery from his transplant, he suffered a stroke, respiratory failure, seizures, 2 bouts of pneumonia, MRSA and a hole in his stomach. His new liver is doing well but due to the many setbacks he suffered, his kidney did not take and he was placed back on the organ transplant waiting list... a list he has been on since he was just 4 months old.

Due to the high medical and transportation expenses the family has, it is almost impossible for them to make ends meet despite the fact they have cut every possible corner they can. On Jan 6th, their only car broke down leaving them stranded on the side of the highway in freezing temperatures with Damien. They now have no transportation for the 300 plus miles they need to travel every week to get Damien from Maryland to Washington DC for treatment and no money to fix their car. They are using their rent money to pay for public transportation to get Damien to dialysis which he cannot survive without. They are having difficulty paying for the high copays for his medication and other related expenses which are unavoidable. All repairs that have been done on their car have failed thus far.


Our goal is to raise enough money to help them with their never ending medical and travel expenses and to get them a reliable vehicle so they do not have the additional burden of car repairs to deal with.


For more information, visit his Facebook page at https://www.facebook.com/dreams4damien
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When things settle down a bit and life returns to our version of "normal", I will thank each of you individually but for now-thank you SO much to everyone who has donated and helped our family remain by Damien's side while he recovers. from what we just KNOW is a successful transplant. We couldn't have done it without your support so from the bottom of my heart-Thank you!!! We love you all so much
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Gail-Damien's mommy here. First, I want to extend a HUGE thank you to each and every one of our supporters here at Dreams for Damien. I am so humbled by all the love and support we have received from people all around the world. While I may not respond to every single comment posted, I DO read them all and they mean so so much to us. I also want you all to know that we appreciate every form of support given, whether that is a kind message, uplifting prayer, gift sent, or share of Damien's story and this page. For all who have made donations, I want to say thank you for those also. Every single dollar counts and is so very, very appreciated. We can never thank you all enough!!!

I wanted to wait until we were 100% sure we had a donor for Damien, however decided to share the news now. One of our supporters who has been trying to be Damiens match has passed the 1st two rounds of testing (the health questionnaire and the blood work). She now needs to fly from her hometown to Washington, DC for the final round of tests and to meet with the entire transplant team. She will spend 1/2 the day undergoing diagnostic and imaging studies (MRI, chest xray, etc) and the second 1/2 in meetings with the financial coordinator, surgeons, social worker, etc. Please know that while this is wonderful news that it is not set in stone. She MUST come to DC and complete the final round of tests in order to be considered a match. We ask that everyone who has asked about being tested to please KEEP GETTING TESTED because she still may be found to not be a suitable donor and if that happens, we dont want to have to "start over" because our supporters thought "oh, well they have a donor so I'm going to stop getting tested". Damien still needs us all to rally together!!!

Dawna, our potential donor needs to get to DC for testing and we want to help her offset the associated costs of airfare, hotel accommodations, food, rental car, and several days missed from work so we are again posting this fundraiser as well as including a link to a beauty product fundraiser one of our supporters is hosting for us. Courtney Zuniga is graciously donating 100% of her commission to this campaign for the next 9 days. All proceeds will be used to get our possible donor here for final testing. If you'd like to order click on the following link, go to "my parties" and select Dreams for Damien and then place your order. You may also make a donation to the gofundme acct (please just put donor as a comment when donating). Thank you SO much and please, keep us in prayer as we move forward over the next few weeks! God bless each of you...


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Thank you so very, very much for all the generosity and love all of you have shown our family as we continue our journey with Damien. Each and every one of you are so very appreciated and every single dollar is helping us reach our goal.

Update:
As many of you know, Damien's liver labs are looking great again, however he is now showing signs of having issues with his parathyroid glands which is causing the high phosphorus and calcium levels, which in turn can lead to weak brittle bones (causing easy fractures/breaks), high blood pressure, kidney stones and heart disease. Please continue to keep our family in prayer. Thank you so much and God bless you all!
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Hello, this is Gail-Damien's mommy. I just wanted to take a minute to say thank you so very much to each and every one of you. So many people have offered us kind words, sweet messages and words of encouragement and we are so touched by it all. For those who have donated, a huge thank you goes out to you as well. For those who have said things like "sorry it couldn't be more" PLEASE know each and every dollar is appreciated and we are grateful beyond words. I am working hard at returning messages but we have over 600 still so please, if I haven't responded yet, know that I am working diligently to do so. Again, thank you all so very much
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Read a Previous Update
Connie Roberts
38 months ago

I can't help with money, but I have a kidney he can have in a heart beat. If anything email me. constanceroberts392@yahoo.com.

+ Read More
Valerie Etienne
56 months ago

Hi. I didn't want to read to much of this. But I knew from what I did read that I know what I want to do. I cannot help at the moment with costs but I can help with a kidney. If you know what needs to happen after someone has offered please contact me. If I am a match, it is his. (347) 220-7211 Valerie Etienne - New York I will take a trip to Washington if need be.

+ Read More
Anetka Natalia
56 months ago
8
8

I would give him my kidney in a heart beat! If I am a donor I would love to help. Please email me or message me on Facebook. Aboska30@yahoo.com

+ Read More
Josh Hardin
29 months ago
5
5

Any information on how to see if youre eligible for donation of a kidney? I live in Md.

+ Read More
Beth Wolfe
49 months ago
4
4

I have a brother who is 29 now, but was born at 1.4oz. Has a twin as well he is a healthy man today only struggled for his 1st yr. The brother who got all the damage had open heart surgery at 10 hrs old and has had small and large intestines removed, he has so many scars no belly button from so many surgeries. Fed through a tube and had port into his main artery in his chest to have fluid with stuff in it so he could survive and grow like normal kids. He finally started to eat when he was around 16. He is like a 5 yr old. In and out of hospitals his whole childhood. So I just stated all this and there is way much more but our family knows what yours is going through. Your little guy is adorable and so strong, like my brother is. Kids are amazing fighters. I pray for you all.

+ Read More
Celyn Harmony
56 months ago
2
2

I just saw the video of Damien in the sink and you explaining to him that he can't drink water. That really touched me the fact that you need to comfort him and help him understand that he can't drink water. The one thing you would think someone could drink but he can't. I wish everything goes well for him and he's lucky to have parents like you.

+ Read More
Ashia La'Shondra
4 months ago

this really just touched my heart. my blood type is O Positive and im more than willing to give him my kidney.

+ Read More
Zai Zhai Araño
4 months ago

Hey If you can send him this words directly it will somehow make him happy let him pray this anytime he can... i do this anytime that i can i'm a christian,and it change my life..,, i'm not rich with money... but i'm rich with love and all i need is given to me,and not all i want.. thats what GOD gives...( "God gives me everything i need, everything i need is given by GOD, GOD is everything and GOD is love") hardships may come to you but GOD will help always... this simple prayer will help surely ^_^

+ Read More
James McClintock
16 months ago

Hey little guy.. Even though i cant help you with cash or kidney. I assure you i can spread the word.. Everybody deserves to be happy.. It breaks me too see you getting hurt.. You have such a strong heart i give you that.. And to his parents and everyone who helped them. God bless you all.. If i am near i am very much willing to help in any way i can. Please dont give up ..

+ Read More
Kenya Holliday
29 months ago

I dont have money rt now but i dont wish that on any one i had a son that had leukemia when he was 2 just pray

+ Read More
Angie Holt Vallad
29 months ago

I just lost my granddaughter to this horrible disease...she was 24 hours old. We were told exactly the same thing there was "no hope for her". I pray for you and your child God heals all in time.

+ Read More
Denise Molina Montgomery
38 months ago

I can not help financially but I can help by posting Damien's story on my time line and maybe some of my friends can help financially. I will keep you Damien and your family in my prayers that you get your transplant really soon.

+ Read More
Genil Speer
38 months ago

It may be a small amount but Im happy I was able to share what I have in a small way .I hope you'll get better. Prayers from Mr and Mrs Speer

+ Read More
Babita Kumar
48 months ago

You rock little man..may god bless and protect you throughout this fragile moment in life..stay strong..my angel

+ Read More
Sherry Reinhardt
48 months ago

I will donate and how can I get tested I love in south carolina

+ Read More
Martina Havoić
49 months ago

I can't donate :( don't accept my email address. Whay? I realy want to donate.

+ Read More
Katie Pate
54 months ago

Where is the post for the makeup fundraiser? Always thinking and praying for y'all!

+ Read More
Beth Warriner
56 months ago

I Am from the uk and I watch these videos because he is soo cute xxxxxxx

+ Read More
Maddie Bolt
56 months ago

i am so sorry for what you have been going through. I give you my prayers and hope you get better soon. You are so strong

+ Read More
Elmer Echevarria
56 months ago

As soon as I can I will send what I can but I'm mad at all these fucking actors and singers that have so much can't give to help a child . Like puff daddy , jay z , 50 cent , Mel Gibson , the rock , mark wahlberg , Arnold Swartzneger , Sylvester Stallone etc the more they have the more they want I wish I had just little of what they have I would do so much but count on the little that I can give u for sure

+ Read More

$53,394 of $60,000 goal

Raised by 1,848 people in 58 months
Created January 9, 2014
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AB
$100
Alisa Begovic
2 months ago

Baby boy I hope and pray for your health and happiness

DW
$10
Donald Walker
2 months ago

Being a father now, I can't even imagine this. Good luck Big D!

$10
Anonymous
3 months ago
$20
Anonymous
3 months ago
$5
Ed Rose Tan
3 months ago

Get well soon little buddy. Prayers for you! ❤️

Connie Roberts
38 months ago

I can't help with money, but I have a kidney he can have in a heart beat. If anything email me. constanceroberts392@yahoo.com.

+ Read More
Valerie Etienne
56 months ago

Hi. I didn't want to read to much of this. But I knew from what I did read that I know what I want to do. I cannot help at the moment with costs but I can help with a kidney. If you know what needs to happen after someone has offered please contact me. If I am a match, it is his. (347) 220-7211 Valerie Etienne - New York I will take a trip to Washington if need be.

+ Read More
Anetka Natalia
56 months ago
8
8

I would give him my kidney in a heart beat! If I am a donor I would love to help. Please email me or message me on Facebook. Aboska30@yahoo.com

+ Read More
Josh Hardin
29 months ago
5
5

Any information on how to see if youre eligible for donation of a kidney? I live in Md.

+ Read More
Beth Wolfe
49 months ago
4
4

I have a brother who is 29 now, but was born at 1.4oz. Has a twin as well he is a healthy man today only struggled for his 1st yr. The brother who got all the damage had open heart surgery at 10 hrs old and has had small and large intestines removed, he has so many scars no belly button from so many surgeries. Fed through a tube and had port into his main artery in his chest to have fluid with stuff in it so he could survive and grow like normal kids. He finally started to eat when he was around 16. He is like a 5 yr old. In and out of hospitals his whole childhood. So I just stated all this and there is way much more but our family knows what yours is going through. Your little guy is adorable and so strong, like my brother is. Kids are amazing fighters. I pray for you all.

+ Read More
Celyn Harmony
56 months ago
2
2

I just saw the video of Damien in the sink and you explaining to him that he can't drink water. That really touched me the fact that you need to comfort him and help him understand that he can't drink water. The one thing you would think someone could drink but he can't. I wish everything goes well for him and he's lucky to have parents like you.

+ Read More
Ashia La'Shondra
4 months ago

this really just touched my heart. my blood type is O Positive and im more than willing to give him my kidney.

+ Read More
Zai Zhai Araño
4 months ago

Hey If you can send him this words directly it will somehow make him happy let him pray this anytime he can... i do this anytime that i can i'm a christian,and it change my life..,, i'm not rich with money... but i'm rich with love and all i need is given to me,and not all i want.. thats what GOD gives...( "God gives me everything i need, everything i need is given by GOD, GOD is everything and GOD is love") hardships may come to you but GOD will help always... this simple prayer will help surely ^_^

+ Read More
James McClintock
16 months ago

Hey little guy.. Even though i cant help you with cash or kidney. I assure you i can spread the word.. Everybody deserves to be happy.. It breaks me too see you getting hurt.. You have such a strong heart i give you that.. And to his parents and everyone who helped them. God bless you all.. If i am near i am very much willing to help in any way i can. Please dont give up ..

+ Read More
Kenya Holliday
29 months ago

I dont have money rt now but i dont wish that on any one i had a son that had leukemia when he was 2 just pray

+ Read More
Angie Holt Vallad
29 months ago

I just lost my granddaughter to this horrible disease...she was 24 hours old. We were told exactly the same thing there was "no hope for her". I pray for you and your child God heals all in time.

+ Read More
Denise Molina Montgomery
38 months ago

I can not help financially but I can help by posting Damien's story on my time line and maybe some of my friends can help financially. I will keep you Damien and your family in my prayers that you get your transplant really soon.

+ Read More
Genil Speer
38 months ago

It may be a small amount but Im happy I was able to share what I have in a small way .I hope you'll get better. Prayers from Mr and Mrs Speer

+ Read More
Babita Kumar
48 months ago

You rock little man..may god bless and protect you throughout this fragile moment in life..stay strong..my angel

+ Read More
Sherry Reinhardt
48 months ago

I will donate and how can I get tested I love in south carolina

+ Read More
Martina Havoić
49 months ago

I can't donate :( don't accept my email address. Whay? I realy want to donate.

+ Read More
Katie Pate
54 months ago

Where is the post for the makeup fundraiser? Always thinking and praying for y'all!

+ Read More
Beth Warriner
56 months ago

I Am from the uk and I watch these videos because he is soo cute xxxxxxx

+ Read More
Maddie Bolt
56 months ago

i am so sorry for what you have been going through. I give you my prayers and hope you get better soon. You are so strong

+ Read More
Elmer Echevarria
56 months ago

As soon as I can I will send what I can but I'm mad at all these fucking actors and singers that have so much can't give to help a child . Like puff daddy , jay z , 50 cent , Mel Gibson , the rock , mark wahlberg , Arnold Swartzneger , Sylvester Stallone etc the more they have the more they want I wish I had just little of what they have I would do so much but count on the little that I can give u for sure

+ Read More
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