The Conway Family's Cancer Fund

$820 of $820 goal

Raised by 12 people in 47 months
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I put this page together because in 40 years on this earth, I've learned that there are times when you really just have to ask for help.  NOW is definitely that time! Anyone who has met me, knows that I ADORE having a big family. But, it is an awful lot of work to keep the 7 of us on track, fed, house cleaned, groceries bought, and in clean clothes!  It is also going to take a lot of financial help and some strict budgeting to sustain what used to be a 2-income family, but is now only single-income with Mom racking up substantial medical debt.  

          Unfortunately my company didn't offer employer-sponsored medical insurance and believe it or not...a family of 7 living on a humble single income didn't qualify us for any governmental help (Medicaid).  The only subsidy we could get is if our out-of-pocket expense exceeds $8,000 per MONTH!  So, we had to purchase private insurance with an outrageous monthly premium.  Even with major medical insurance, we spent over $2,700 in out-of-pocket co-pays during just the month of October and that's before I even began chemo! I'm sure everyone knows that long term diseases and fighting battles like cancer are expensive endeavors. Not just because of the medical costs, but gas to get to and from treatments (an hour away), hired help for the house, etc.         

          After over a month of excruciating pain and visit after visit to the ER, I had a core biopsy and was diagnosed with a very rare form of cancer called Desmoids Disease just before Halloween 2014. It is a type of Fibrosarcoma that only 2 or 3 people in one million get and I have a tumor growing on my abdominal wall.  That's why I've chosen my webpage color to be yellow...yellow represents the fight against sarcoma!  I'm on pretty heavy pain meds and I'm not allowed to drive. If I have to stand for extended times or walk more than about 20 yards, I need my wheelchair.  The doctors don't want to jump right in and take out the tumor in my abdomen for 2 reasons. The first is that the recurrance rate is over 40% following tumor resection.  The second is because the margins for a Desmoid tumor have to be so large that it is a pretty big surgical intervention. It's not as easy as just going in and cutting it out. They would have to remove a substantial part of my abdominal wall and probably some bone structure from my sternum along with ribs, then do reconstructive surgery involving large amounts of mesh implant...leaving me moderately disabled forever.

          The approach my Oncologists are taking is to try and shrink the tumor down to an asymptomatic size. We spent 2 months trying the less caustic treatments like NSAIDS, with no results. Along with the new year 2015, we began chemotherapy treatments. The plan is for me to have weekly chemo for 26 weeks, then chemo every two weeks for 26 weeks.  The doctors say there's no way I'll make it through more than 3 months of chemo...I guess it's too harsh to take longer than that, so I'm not real sure why they write the treatment plan for a year!

          To add insult to injury, the tumor led them to send me to the Genetics Clinic to have some gene mapping done, as they suspected I have something called FAP (Familial Adenomatous Polyposis). It is a genetic mutation that often goes together with Desmoid tumors and a family history of colon cancer and/or polyps...I have both. In basic terms, FAP causes a mutation of the APC gene which results in a flaw in the body's tumor suppression systems that helps prevent the development of tumors. Thus, it's hard for your body to stop tumors. The most common treatment for FAP is a prophylactic colectomy (the removal of the large intestines).  Unfortunately, the testing confirmed the diagnosis of Familial Adenomatous Polyposis.  At this point, it is attenuated and I have few to no polyps - so my Oncological Gastroenterologist has said that they will not be removing my intestines until the polyps come back. I will begin having upper endoscopies and colonoscopies every 6 months and we will just wait and see. The odds that a colonic polyp will develop into colon cancer is just shy of 100%.  Unfortunately, that also means that my children will have to begin getting colonoscopies at 16 years old.  The odds that they have the same mutation is 50%. 

          The goal that I've set for this funding campaign is the gap between our family's income and expenses (with that tight budgeting mentioned earlier) for one year.  This is likely going to be a lifelong battle, but I have set the goal for one year because I believe that's how long it will take for me to get Social Security Disability payments to begin.  I'd like to ask that all of you send this link to all of your friends (whether they know me or not) and ask them to become a part of our family's fight. I personally believe in the power of prayer and the power of covering a situation in positive energy - the more people we can get to join this effort, the more we will all be blessed by becoming a part of something bigger than just ourselves!


Helpful Resources:
The Desmoid Treatment and Research Foundation
Moffitt Cancer Center
The American Cancer Society
The National Cancer Institute
















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To everyone who has supported us with love, prayers, financial gifts, and caring thoughts...thank you, thank you, thank you! We have made it through the toughest time, only with God and with your help. Brian and I have been able to refinance our house to pay off some debt and I have also finally been approved to receive my social security disability. Having accomplished these goals, I believe that we have once again become financially stable! With our new budget and having adjusted to being a single-income family, i believe that our future is also stable.

God has blessed our family incredibly and with His guidance, we have made it through the darkest time. We are very hopeful for the future and for the possibility that medical advances will soon be able to more adequately treat this rare cancer.

Thank you all again for your support and for helping us see this through! I am going to inactivate our funding page, as we don't believe we need any further financial support...but please keep up the positive thoughts, wishes, and prayers!!!
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Wow...I can't believe the generosity of both people who love me and people who have NEVER met me! God laid it on my mind and on my heart to begin this crowd funding page and I should have figured that he would only make it a successful endeavor!

Please, please keep sharing this page and spread the word! Thank you, thank you, thank you!!!
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Hey guys...I've started a new campaign to help my family in this rough time. I've calculated the need that we have to fill the gap between income and expenses and made a "Go Fund Me" page. PLEASE check it out and please SHARE, SHARE, SHARE! Thank you SO much for your love and support!!!
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$820 of $820 goal

Raised by 12 people in 47 months
No Longer Accepting Donations
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Created January 12, 2015
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CG
$200
Charles Glorioso
46 months ago

In honor and memory of daughter Amara (2012) Triple Negstive Breast Cancer and sister Theo (2015) Pancreatic Cancer.

DE
$50
Diana Eastman
47 months ago

My prayers are with you and your family. Love you all, very much.

$20
Anonymous
47 months ago
SP
$50
Sharon Pyers
47 months ago

I wish you a great recovery xx love the Pyers family.

$25
Anonymous
47 months ago
$25
Jacqueline Roller
47 months ago

Will be holding her in prayer!

$25
Anonymous
47 months ago
$100
Anonymous
47 months ago
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