Chance Elijah Haven - God's Miracle
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Chance Elijah Haven's birth and life are truly a miracle. His mother, Angela, tells their story below.
Much like Job in the Bible, Angela's faith has been tested - and much like Job, Angela has thanked God for the incredible blessings bestowed upon her and her miracle child, who was truly given a Second Chance!
This Go Fund Me campaign is being organized by Angela's church family in Swansboro, NC - Watermark Church. We pray that this campaign goal will be met, if not exceeded, by the end of October 2015 to help Angela and her family get back on their feet. Also, Angela is in dire need of transportation to and from the Ronald McDonald House at Duke University Medical Center. We hope to be able to raise enough funds to help Angela purchase a car from an Onslow County dealer, maintain payments on her water and electricity bills and establish a clean living area for Chance.
Eastern NC News Story:
http://www.witn.com/home/headlines/Onslow-County-newborn-survives-against-the-odds-310371651.html
Angela's Story & God's Promises:
I knew of Chance's abnormalities when I was 2 months pregnant from the first specialist and was told termination was the only option as my child didn't have a brain and if I were to carry out the pregancy, he would only survive 2 hours. After a lot of praying and the realization that God would never leave me, I continued in the faith of God and his promise to me: I chose LIFE. Chance was diagnosed by a second specialist with Severe Hydrencephaly and two other brain abnormalities. I was life flighted to Vidant Medical Center in Greenville, NC in March 2015 due to personal health issues and thus began my complete bedrest. I gave birth to Chance 6 weeks premature after nearly 2 months of bedrest.
Chance started his long journey with his first brain surgery at 3 days old and immediately entered the Neonatial Intensive Care Unit (NICU). I was unable to hold him for what seemed like eternity. We then were sent to Step up Care Nursery at Vidant where we started our battle of feeding problems. Doctors and other care providors told me he would never be able to suck or swallow because he was missing
these parts of of his brain.
However, by a only a miracle, Chance started feeding on his own. However, I had noticed a change in his eyes in May and requested Ophthamology to look into the issue. Shortly thereafter, the doctors realized that Chance had complete retinal detachment of his left eye and partial detachment of his right eye. That evening at 5:30pm on June 8th his head started swelling again, now for a 3rd time.
Due to his eyes and brain issues, we were life-flighted to Duke University Medical Center (Durham, NC). They began to do screening in the NICU and found multiple other health issues including: PDA (hole in his heart), failed hearing, extremely high CPK levels (muscluar dystrophy) and symptoms / test results indicative of Genetic Syndrome. On June 15th (Chance was just 2 months and 2 days old), doctors at Duke performed a 2nd brain surgery.
Duke doctors called a family meeting and informed us that Chance's case was extremely rare. I asked how rare? They respond "we can't put a number on him" They have never seen anything like him. After consultations with numerous major US medical centers including USC (California), UCLA, Harvard, Johns Hopkins as well as international hospitals in Chile and India, no one had ever seen anything like my baby Chance before.
We finally were transported back to Vidant to be closer to home for release and started our long journey of back and forth weekly to Duke for all his follow up care. He's had multiple other issues that have caused him to be hospitalized multiple times since our release in July and another Surgery on his throat and larynx in late September 2015. He's also to remain on monitors and have oxygen indefinitely. Due to the most recent problems with his oxygen saturation levels and heart rate, we called 911 and were again life-flighted to Duke in early October 2015.
I haven't been able to work in nearly a year as I am Chance's sole caregiver. We have lost almost everything.
But, we are a family and have each other. We continue to stand on God's Promise and reassurance. His power alone gives us strength and perserverance.
We are in great need of getting back on our feet and helping us with weekly transportation to and from Hubert, NC to Duke University Medical Center.
In Christ,
Angela Wiles
https://www.facebook.com/myspecialchance?fref=ts
Much like Job in the Bible, Angela's faith has been tested - and much like Job, Angela has thanked God for the incredible blessings bestowed upon her and her miracle child, who was truly given a Second Chance!
This Go Fund Me campaign is being organized by Angela's church family in Swansboro, NC - Watermark Church. We pray that this campaign goal will be met, if not exceeded, by the end of October 2015 to help Angela and her family get back on their feet. Also, Angela is in dire need of transportation to and from the Ronald McDonald House at Duke University Medical Center. We hope to be able to raise enough funds to help Angela purchase a car from an Onslow County dealer, maintain payments on her water and electricity bills and establish a clean living area for Chance.
Eastern NC News Story:
http://www.witn.com/home/headlines/Onslow-County-newborn-survives-against-the-odds-310371651.html
Angela's Story & God's Promises:
I knew of Chance's abnormalities when I was 2 months pregnant from the first specialist and was told termination was the only option as my child didn't have a brain and if I were to carry out the pregancy, he would only survive 2 hours. After a lot of praying and the realization that God would never leave me, I continued in the faith of God and his promise to me: I chose LIFE. Chance was diagnosed by a second specialist with Severe Hydrencephaly and two other brain abnormalities. I was life flighted to Vidant Medical Center in Greenville, NC in March 2015 due to personal health issues and thus began my complete bedrest. I gave birth to Chance 6 weeks premature after nearly 2 months of bedrest.
Chance started his long journey with his first brain surgery at 3 days old and immediately entered the Neonatial Intensive Care Unit (NICU). I was unable to hold him for what seemed like eternity. We then were sent to Step up Care Nursery at Vidant where we started our battle of feeding problems. Doctors and other care providors told me he would never be able to suck or swallow because he was missing
these parts of of his brain.
However, by a only a miracle, Chance started feeding on his own. However, I had noticed a change in his eyes in May and requested Ophthamology to look into the issue. Shortly thereafter, the doctors realized that Chance had complete retinal detachment of his left eye and partial detachment of his right eye. That evening at 5:30pm on June 8th his head started swelling again, now for a 3rd time.
Due to his eyes and brain issues, we were life-flighted to Duke University Medical Center (Durham, NC). They began to do screening in the NICU and found multiple other health issues including: PDA (hole in his heart), failed hearing, extremely high CPK levels (muscluar dystrophy) and symptoms / test results indicative of Genetic Syndrome. On June 15th (Chance was just 2 months and 2 days old), doctors at Duke performed a 2nd brain surgery.
Duke doctors called a family meeting and informed us that Chance's case was extremely rare. I asked how rare? They respond "we can't put a number on him" They have never seen anything like him. After consultations with numerous major US medical centers including USC (California), UCLA, Harvard, Johns Hopkins as well as international hospitals in Chile and India, no one had ever seen anything like my baby Chance before.
We finally were transported back to Vidant to be closer to home for release and started our long journey of back and forth weekly to Duke for all his follow up care. He's had multiple other issues that have caused him to be hospitalized multiple times since our release in July and another Surgery on his throat and larynx in late September 2015. He's also to remain on monitors and have oxygen indefinitely. Due to the most recent problems with his oxygen saturation levels and heart rate, we called 911 and were again life-flighted to Duke in early October 2015.
I haven't been able to work in nearly a year as I am Chance's sole caregiver. We have lost almost everything.
But, we are a family and have each other. We continue to stand on God's Promise and reassurance. His power alone gives us strength and perserverance.
We are in great need of getting back on our feet and helping us with weekly transportation to and from Hubert, NC to Duke University Medical Center.
In Christ,
Angela Wiles
https://www.facebook.com/myspecialchance?fref=ts
Organizer and beneficiary
Beej Chaneys
Organizer
Swansboro, NC
Angela DeHart Wiles
Beneficiary
