Help Carly's Lyme Disease Ravaged Life

https://en.wikipedia.org/wiki/Lyme_disease This campaign was originally created to help Carly battle Lyme Disease. Now we have realized she has been battling her body her entire life or at least since getting Epstein- Barr Virus in 3rd grade and with genes that make detoxing chemicals and molds and disease almost impossible. Carly is a 28 year old young woman who suffers from what is referred to as chronic, or late stage, lyme disease. She and her family are still dealing with the $200,000 it cost to get treatment for Lyme Disease in Arizona for 5 months of intensive IV antibiotics and other therapies. The term 'lyme' is used as an umbrella term to refer to borrelia, and the evil co-infections, babesia and bartonella. When the infections go undiagnosed and untreated for more than about a year, the microbes can establish themselves in every organ and tissue of the body. We believe Carly was infected in 2009; she is positive for babesia and bartonella, which has had a severe impact on her central nervous system, and is very difficult to treat. After all the years of being undiagnosed, complications and other illnesses have affected her. She now also suffers from POTS syndrome, undiagnosed gastrointestinal issues, Dysautonomia, Ehlers Danlos syndrome, Fibromyalgia, ME/CFS, neuropathy, neurological issues, Chronic Inflammatory Response Syndrome, Mast Cell Activation Syndrome, inflammation in her brain, enlargement of the cerebellum with more white matter causing her to have no balance, inability to process and focus well, depression and anxiety. All of which can be debilitating on their own and extremely hard to treat but together have taken away her life. A great challenge is that the treatment of chronic lyme is not covered by insurance. The CDC (Center for Disease Control) and IDSA (Infectious Disease Society of America), do not recognize the chronic form of lyme as an actual disease or condition, even though there is sufficient evidence to support its existence. Health insurance providers just follow the recommendations of the CDC and IDSA. Those recommendations are not enough to treat this condition/ especially when one has been misdiagnosed for 6 years- Carly wasn't properly diagnosed untit May 2015 - after she began to rapidly decline- going from a cane to walker to a wheelchair – forced to quit her job, leave college and move back home, and the family had exhausted all other options. Carly and her parents were led to Envita for treatment. This facility is in Arizona, a long way from their home in North Carolina and setbacks and complications in Carly's case extended their stay. Towards the end of the stay we realized she had infection in her jaw bone from the removal of her wisdom teeth. This was severely impacting treatment so jaw cavitation surgery was needed and it was a horrible and expensive add on when we were ready to go home. [Update - I did treatment for 5 months and the costs were huge monetarily, and physically. There was a brief time where it seemed I was better. Compared to before Envita there is a difference. But my old symptoms are returning and new ones are causing me to have returned to being house bound. The rollercoaster of these illnesses is devestating.] This campaign is designed to offset the mounting medical expenses.. the $200,000 it took to get me 40% out of the wheelchair (and the borrelia, babesia and Bartonella have been quieted for now), and everything we are still learning. Trying to find out what is keeping her sick is as expensive as the treatment. Please help Carly and her family work towards recovery without the financial burden of a disease not covered by insurance. On behalf of the family I'm asking you to Go Big. Thank you in advance for any financial support you can provide. For Carly and her loving family let's knock this one out of the park!