Care for Callie
Today, our family starts our own journey. Our sweet baby Calliope starts her first cycle of chemotherapy. Last week, Callie was diagnosed with AML, a form of leukemia. While Clint and I along with the rest of our family are devastated, we know that this journey is not a sprint but rather a marathon.
Like many of the Boston Marathon runners out there today, we also hope to cross that finish line victorious saying "We did it!"
Instead of coaches, we are working with the best doctors at the best hospital in world. Our teammates, who will run this marathon with us, are our nurses. Our support systems, friends, and family cheering from the sidelines reminding us we can get through this.
We ask that you not to feel sorry for us and our current situation but to give us hope when we are feeling hopeless, to lift us up when we are down, to wipe our tears and make us smile, and to pray with us.
Hello family and friends, many of you have reached out asking what you can do to support the Carneys in their journey. I’ve started this campaign to let the Carneys know that they are not alone in this race. We will be with them through each leg of the race, and we will celebrate with them when they cross the finish line.
Please consider donating to help Callie fight her battle. Donations will be used for incurred medical expenses throughout her journey. Any additional funds will be donated to leukemia research and to other families affected by this illness.
Callie just finished her first cycle of chemotherapy! During this time, we celebrated some small victories and definitely hit our share of bumps. According to Callie's medical team everything is going according to plan. Callie still enjoys eating some whole foods but is having a hard time with liquids.
Callie is showing her resiliency through her never ending energy. This girl just keeps going! Callie has been passing the time by making friends on her floor, going for walks with Mom, looking out the window in her room, and watching the Trolls movie about 5 times a day.
During our time here at Children's, Callie has continued to achieve certain developmental milestones, particularly her language development. She has learned to say the words "duck", "touch", and "whoa!". She is working with PT to help her maintain and achieve physical developmental milestones such as walking and independently standing.
For the next couple of weeks Callie will be at risk for infections as she is considered neutropenic. When someone becomes neutropenic it means that their bone marrow isn't producing specific white blood cells called neutrophils. Neutrophils protect our bodies from infections caused by microorganisms. In the meantime, Callie will be monitored very closely and will be given a regimen of antibiotics.
Keep the positive vibes and prayers coming! We truly feel that they are working and helping Callie get through this battle!
-Kaitlynne and Clinton Carney
Callie is on day 4 out 10 of her chemotherapy. She has been an absolute warrior! She continues to fight her leukemia (and not to mention the nurses and doctors). Calliope is one spunky 11 month old! She is still at the beginning of her battle and we are still incredibly hopeful for a cure.
We know and understand that she will get worse before she gets better but our faith in God and the entire medical team here at Children's is much stronger than this disease will ever be. Callie's spunk and fierceness are seen everyday during this process. We want everyone to remember, children are such remarkable human beings and they are stronger in heart and in soul than most adults are.
Clint and I also wanted to, again, give thanks to everyone who has reached out to us during this entire ordeal. Each of you, and I mean every single one of you, have touched our hearts. Family, friends, coworkers, even strangers, we will never know how to repay you. Just know we are thankful beyond words.
Thank you to everyone who has lightened up our days during this dark time of our lives.
- Kaitlynne & Clinton Carney
Dearest Callie ~ I was your teacher for just a short period of time, but you have brighten up my days more than you will ever know - your smiles have touched my heart in so many ways! You are such a sweet and adorable little girl and, I know in my heart, you will make it.....you are strong and you have the sweetest parents in the world! My prayers and thoughts are with you all.....it was my pleasure to have known you! ❤️Love ❤️ Ornella Pirrelli