Barrys Cancer Fund
In 2000 I was diagnosed with severe strictures in my urithic tube, several years of laser treatment resulted in a series of major reconstructive operations, these operations consisted of taking cheek material to create a new uerithic tube. This procedure sadly was not successful in stopping the recurrence of the strictures (blockages) and the last operation bypassed the whole tube and reconstructed a new tube to pass water from. Three years later in November 2015 I began to have serious pain in my penis and was told by my stricture doctor that it was a skin problem, he referred me to the dermatologist professor who rejected the referral and sent me back to him, the stricture proffesor was adamant it was a skin problem and referred me back to the dermatologist for a second time, the dermatologist insisted it was definatly NOT a skin problem and for the second time referred me back to my stricture doctor....This was now March 2016 five months had been wasted in my rare cancer diagnosis,not once was I sent for a scan.
The last appointment with the stricture professor was in March 2016 where he inferred that it was "in my head" and to wear looser underwear, take Nurofen Plus and to use E45 Cream ...two weeks later I went to A and E in excruciating pain and was admitted to UCLH for Pain relief, a swab was taken and results concluded a cancerous tumor.
Next followed a stay in hospital, tests and biopsies of the tumor were taken and results again confirming the rare form of urethral cancer.
I was then booked in for a removal of the tumor, I was told after the operation by the cancer surgeon that all had gone well and everything was fine, after my next checkup a new tumor was discovered, the cancer had spread, surgery was booked in and two weeks later the tumor and lymph nodes on the left and right hand side of my groin were removed. I was then told this had been successful and everything was fine, until the next check up where a new tumor was discovered in the pelvic region and more surgery was booked in. After the operation the doctor said the surgery was all successful and all I would need was a clean up dose of radio therapy and chemo and then I would be free of the cancer. Then more tumors were discovered, by this time I was classified as in operable. I was referred to radio therapy and instead of the clean up course I was put on an intense 6 week radio therapy course. On the second day of the radio therapy course it was confirmed I had Calcium poisoning and I was admitted to intensive care at the same time a tumor appeared in my lower forearm.
Within a week I was out of hospital and continuing my five day a week radio therapy which was amended to six weeks to include 5 days on the forearm tumor which had accelerated in size and had a lesion bursting through. at Christmas I was healing from my radio therapy burns and waiting to start Chemo on the second week in January this would be for 18 weeks. Since then more tumors and lesions have appeared in the left thigh and hip and the arm tumor has 3 lesions.
On the first of January it was on announced on CBS news that one man had been proclaimed cancer free after his fight with this extremely rare Urethic Cancer (only 5 people in London had it last year with no survivors apart from me who is still battling and the US survivor I know of) . He is the first person to have beaten this cancer. We are aiming to raise enough money to fund the expenses for me to go to the USA for treatment. This needs cover transport and expenses in New York while having this treatment.
This is an urgent plea as this cancer is highly aggressive and we do not have much time to play with.
He decided that after his funeral costs and death expenses that his fund will be put towards the re launch of the House Of Mercy Radio Show/TV in his memory and his work was to be continued as much as possible without him at the helm.
Support for the touring artists of the music world he loved so much and he championed all his industry life, he wanted to keep it rolling and the studio to be ongoing in the production of radio shows and interviews. This is one of the things he was hugely admired and cherished for in his life and remembered for now.
Thank you all again for your messages of love and sympathy and RIP BARRY MARSHALL-EVERITT xxx
Barry's update! Still in Marie Curie Hospice who are doing a marvellous job in pain control and keeping his bandages changed which is always a big job! We are happy to announce that Marie Curie are happy for us to treat barry with an alternative treatment to control his cancer and heal the wounds which we are administering now! so we don't have to move him, so this week we have meetings about London based immunotherapy ... AND we will ALSO be releasing an ACOUSTIC BLUES track to support this .. called "Ain't Gonna Lay Down And Die" which we hope you can download and share in your social media ... look out for Barrys news article in the Londons HAM AND HIGH NEWSPAPER this Thursday about his misdiagnosis and ongoing battle to beat this terrible disease ... he thanks everybody from the bottom of his heart ... xxxx
So sad that I only discovered Bas a couple of weeks ago after over 50 years when we had some good times with the CC Riders, I tried to get down to London to see him but I couldn't make the journey. Now too late to bore him with inane updates and questions, RIP Bas and thoughts with you Bex although we never met.
Thinking of you Bex at this very sad time . Thoughts are with you xx
Sounds good to me Bex....I didn't know Barry well but he and you were so lovely when we came in to do our session with BJ. Barry was the real deal, a true lover of our style of music and it was an absolute privilege to do a few songs in the old Snake Pit (your costume store). You must be feeling raw but he has had so much love over the last couple of days through FB. His memory deserves to live on through The House of Mercy.
I was never lucky enough to meet Barry, but through Bex and the comments of all the many friends he made in his life I realise what an inspiration he was to so many. I wish the outcome of the fundraising had been different, however the residual will help to keep his memory alive. RIP Barry, and to Bex, I hope the good memories will help to ease the pain XX
I am so proud to be your friend Barry and glad to hear you are making progress with the alternative therapy. God bless and prayers to you. Jason Ringenberg
Sending you both a big hug ,hope Barry enjoys the cake xxx
Thanks for keeping us all updated. Hugs and prayers for you both sweetie!
Brilliant news! Love ang hugs flowing your way. Trevor xx
Bex & Barry, I am so encouraged to read that you have chased down immunotherapy treatment in London. I know they will treat you well and that it is a very positive step. Keep strong (both of you). Viral treatment & immunotherapy for Christie was in Germany, as the French system would not accept her wishes for 'alternatives' ...it seems now, only a few months after she was stage 3, that she may be kicking it. You can too big man!!
thinking of you Barry. All the best from Bonnie Scotland. You take care mate. Dean xx
Sending you both so much love and light...Thinking of you lots....♥
your courageous fight is very inspiring. keep strong and know my prayers are coming your way. PS i'm Susan White on your donations. PS your kindness and good interview at House Of Mercy will always be one of my great London experiences.
rock and roll hero
This is Barb writing on behalf of Mike & myself. We are following your news, albeit not that encouraging at present. I'm so sorry things aren't progressing as fast as they ought to. We admire your courage and the fight you are coping with and I hope something has been found to help you to continue to face the terrible pain you're experiencing. We pray that you'll muster up enough strength to be able to travel if possible, altho' USA is a long drag as far as distance goes. We can only hope and pray for you, my dear Barry, and also for Bex who I'm sure is doing all she can to support you. We love you and continue to wish for improvement for you. All our love, Barb & Mike xxxxx
Hugs and prayers xxx
I am very sorry you have been touched by this terrible disease. I am grateful for one small thing, that you had the chance to have a substantial good life nearly 70 years. Each day a blessing, myself I have cancer and have gone through radiation and chemo, but despite this still have bad health and given a short prognosis. At 28 years old you don't expect it then each day was is such a gift. I have always hoped when my time comes I have the grace and courage to face it with the same dignity. I can never imagine how anyone feels, live their life, but I wish you the very best.