Fund the Fells
Little Shea Fell was delivered by emergency caesarean to excited parents Christy and Bryndel on December 9th, 2013 almost two weeks over due.
Although he was otherwise healthy at 9 lbs 2 oz, Shea was born with large lesions which extended down his his right leg and the back of both hands. After briefly getting to meet and bond with his Momma, he was sent by air ambulance to BC Children's Hospital's Neonatal Intensive Care Unit. His Dad accompanied him to Vancouver where he was told his son had a rare genetic condition called junction epidermolysis bullosa which truly makes little Shea one in a million. ( www.debra.org)
EB affects the skin and causes it to be extremely fragile where even the slightest friction may result in large blisters leaving his skin open to infection.
In order to make Shea's life as comfortable and pain free as possible his parents will be faced with making everything 'Shea friendly'. Clothing will need to be seamless, blankets ultra soft, special linings are required for bathtubs, car seats and his crib. They will need to spend much of their time making sure Shea doesn't develop more sores. Shea will also require hours of specialized care each day to bandage and protect his skin.
We need to help this wonderful little family as they learn to help their beautiful new addition. They will need to purchase new gear, medical supplies and special dressings. As any new parent knows, baby's are expensive... especially when they have special requirements. Please help Bryn, Christy, and Shea get the supplies they need for all his continuous care.
Bryn and Christy have also opened a savings account with RBC if you would prefer donate to Shea's care directly, you may contact them by email at email@example.com
To follow baby Shea's progress please visit www.loveforshea.com
While Shea's hands are doing well, his right leg still requires significant improvement before Shea will be discharged to Prince George. Therefor, Bryn and Christy will need to stay in Vancouver for the next few months. Your support is more important than ever.
We invite you to continue to share Shea's story and to visit his website - www.loveforshea.com where Bryn and Christy are posting regular updates and photos.
Thank you from our family to yours.
I really cannot even begging to imagine the joy and pain you live by everyday being the mother of two young boys . I wish your son to accomplish long milestones and to live a long life. Miracles do happen and need to believe in this everyday
He is beautiful! May God bless your family.
My thoughts and prayers are with you all. I am glad to see that people are donating. I have shared this page also. I hope that lots of people read and help out. Bless your little baby. God Bless
Your little angel is so cute! I have shared this page so it touches many people as possible. I hope that we can all help you in some way with our donations and prayers. God Bless!
Please visit the Epidermyolisis Bulosa Lounge on Facebook for info from parents whose children have E.B. I'm sure you'll find it to be helpful. Lots of love & prayers to Shea, Christy & Bryn.
your baby boy is so beautiful, i wished i could donate but we are so broke...you have gods little miricle in your arms..
Dear Joan and family, so sorry to hear about little Shea's condition. Sending warmest wishes, love, strength, peace and hope
Hi there my name is kirby rissanen and im from williams Williams lake. I was just reading about ur son and im sorry to hear about the genetics condition he has. I recently had a daughter last april and she too has a gentics abnormality. One of 4 documented cases in the world. . I was just wondering if at bcch if they have mentioned the at home program at all to you. . My daughter is on it and all medical machines and and supplies are covered. If you would like to talk some more email me at firstname.lastname@example.org if you dont I totally understand being that you dont know me and are going through a tough time. I will keep u all in my prayers