Kaitlin's Fight~Autoimmune Encephalitis
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www.myastheniagravis.org 
This is my daughter Kaitlin. She is a 24 year old young woman who was diagnosed 10/31/18 with a rare incurable neuromuscular autoimmune disease called Myasthenia Gravis.
Her official diagnosis is Myasthenia Gravis with (acute) exasperation.
www.myastheniagravis.org
What this means is that her muscles aren't receiving the signals to contract or move.
This currently affects her ability to see, walk, talk and eat. Her eyes also droop because the muscles are too weak/fatigued to keep her eyelids open. As a result of this disease she is unable to work.
Those of you that know Kaitlin know how full of life she is. How she's always on the go and that softball is her life. This disease has abruptly stopped her in her tracks.
I am asking for help to help offset the medical costs that she is facing. Those of you that know me know that I am a single mother and I have exhausted all I can financially up to this point. She has a long road ahead of her.
With the diagnosis comes medications that are not covered, multiple referrals for additional tests along with IVIG treatments that need to begin in a month. This treatment alone costs between $5,000 and $10,000 per treatment. This is the first step in trying to manage this incurable disease. She may at some point also need to have surgery to remove the Thymus Gland which is right above the heart. Most of treatments are not covered by insurance.
My hope is to have some help with this journey to take some of the financial stress off of her. Stress exasperates symptoms.
Anything will help. If you're unable to help please share this! By sharing this it may help bring awareness to this often misdiagnosed rare neuromuscular autoimmune disease.
Thank you for reading this.
"She is clothed in strength and dignity and she laughs without fear of the future"~Proverbs 31:25
This is my daughter Kaitlin. She is a 24 year old young woman who was diagnosed 10/31/18 with a rare incurable neuromuscular autoimmune disease called Myasthenia Gravis. Her official diagnosis is Myasthenia Gravis with (acute) exasperation.
www.myastheniagravis.org
What this means is that her muscles aren't receiving the signals to contract or move.
This currently affects her ability to see, walk, talk and eat. Her eyes also droop because the muscles are too weak/fatigued to keep her eyelids open. As a result of this disease she is unable to work.
Those of you that know Kaitlin know how full of life she is. How she's always on the go and that softball is her life. This disease has abruptly stopped her in her tracks.
I am asking for help to help offset the medical costs that she is facing. Those of you that know me know that I am a single mother and I have exhausted all I can financially up to this point. She has a long road ahead of her.
With the diagnosis comes medications that are not covered, multiple referrals for additional tests along with IVIG treatments that need to begin in a month. This treatment alone costs between $5,000 and $10,000 per treatment. This is the first step in trying to manage this incurable disease. She may at some point also need to have surgery to remove the Thymus Gland which is right above the heart. Most of treatments are not covered by insurance.
My hope is to have some help with this journey to take some of the financial stress off of her. Stress exasperates symptoms.
Anything will help. If you're unable to help please share this! By sharing this it may help bring awareness to this often misdiagnosed rare neuromuscular autoimmune disease.
Thank you for reading this.
"She is clothed in strength and dignity and she laughs without fear of the future"~Proverbs 31:25
Organizer
Danielle Strother
Organizer
Santa Maria, CA
