Help me lessen my Fibromyalgia pain
Donation protected
This is a story, about my dear friend, Annie. We met through the love of food and while she is adorable and hyper on the outside, I never knew of the suffering she had on the inside. I love and care for her dearly and hope that you guys can help her out as much as I have been trying to. She is currently in Thailand and I dearly want her to be cured and back near me in NYC so we can be partners in crime. She is my soul-friend-mate <3
Here is her story:
"My name is Annie and I suffer from Fibromyalgia and a slew of other maladies. My friend is helping me out with this because I took too long to share my tale because I was ashamed to post myself. I am a proud, strong woman... but it takes a stronger woman to really admit that something is wrong.
I probably already had fibromyalgia long before I was diagnosed, isn't that always the case? I was always in chronic pain, always tired (I could barely even wake up for work - forget about even trying to wake me up), insomnia, etc. It wasn’t until I found out that my boyfriend of many years had been cheating on me and had been in a relationship with another woman for a full year and that triggered the fibro to come out fullblast. I was crushed.
I had lost myself and who I was. My ex would beat me when he was drunk, one that I remember significantly was on my 30th birthday and he was lucky no cops were driving by because it was on the lawn of a train station. ON A LAWN OF A TRAIN STATION! HE WAS LUCKY, I WASN'T! I had a concussion and/or bruised brain - possible concussion for 6 months and didn’t know it. He knew he was in the wrong which never curbed his drinking, not that it probably ever would. I never knew what contusions were until I saw pics of Rihanna. I can’t even do push-ups anymore. What have I become?
I'll tell you... I’m hyper-sensitive to bright light. My memory isn’t well...not even just "well", it's not good at all. I would get mini seizures and he had the nerve to deny causing my fibro. I used to say why people can't just get out of a bad relationship... and then I realized that it’s not that easy.
I have been diagnosed with Fibromyalgia since 2007. It is a serious Chronic Disease that many doctors don’t know how to treat and, frightenly, there is still no cure. I have been on a slew of medications, including Fentenyl... constant trial and error of what will and won't work with plenty of side effects that were known and unknown. It has been a very LONG and difficult battle.
I went from being a very outgoing person who loved to go out, socialize, and loving to dance, to now this. When the Fibromyalgia hit, I spent practically a year never leaving my apartment because I couldn't walk. I became Vitamin D deficient in the summertime! I have even lost numrous jobs because of my Fibromyalgia.
What used to be easy work to me (50-60hrs/week) has now become difficult and exhausts me very easily. So, the depression kicks in, more than ever. I have seen as many specialists as I could under Medicaid. Yes, I will admit, because of my Fibromyalgia, I had to go on Welfare and get food stamps, eventually filing for bankruptcy. Being constantly tired and exhausted, I have tried everything. Being in Thailand right now and access to Asia, I have even tried Eastern medicines; acupuncture, herbs and tinctures. I'm absolutely desperate and willing to do anything to get better.
On top of the Fibro, I suffer from Chronic Depression, Anxiety AND Panic Attacks, a Herniated Disc, PTSD/Survivor’s Guilt because of 9/11, Insomnia, Chronic pain, etc. etc. etc. Yes, there is a lot, but helping fix my Fibro will help with a lot of it.
Curious about Fibromyalgia?
And here is the Story of the Spoon Theory.
In my true words, living with Fibro is the worst as it can get. It is like having the flu aches and pains 24/7 and having it get worse when there is rain or change in barometric pressure. I do not sleep at night and not even during the day because I'm just writhing in pain and I am absolutely miserable... just absolutely miserable. I feel like a Mac truck has hit me over and over again, driving back and reversing over and over, and yet I have to make it through the day with a smile on my face, or tryin to.
And now living in Thailand, with no real job because of the Fibro, I will now have to suffer through 6-8 months of monsoon season which is coming VERY soon.
Most people do not understand. Even my own family doesn’t understand. They think I’m lazy. But you just don't see it... you don't feel how I feel, and just how sick I feel. I don't need to be losing an eye, bleeding to death or have skin peeling off to be sick. This is true for many "sicknesses" Trust me, it hurts. Chronic pain is no joke.
I am having difficulty even typing this up. My Fibro Flare-ups have been so bad that I've missed out on so many big events, including family ones, I even had to miss out on my nephew turning 2. Yes, his second birthday. I couldn't get out of bed or move. I was supposed to bake the desserts for the party (I'm great at making and baking food - which Fibro has been keeping me from).
I got reamed by my parents... I had hoped they would understand that it was because of my sickness. This has taken over my life. Because of Fibro, it has taken me 2 years to complete this call for help. I’m ashamed and embarrassed to ask friends and strangers for money... but I was convinced by a friend that I should.
What I am asking is for some help because I didn't have much help in the States. I was here with family originally, which was going to be just for 3 months, for a couple of deaths in the family. After that, I stayed, due to lack of luck in the States... So I decided to stay here because I had nothing back in NYC.
Yes, I used to live in New York City... yet I no longer had a job, an apartment, and I had lost my Medicaid; I waited forever for Disability aid, etc. which I thought being here might help my health and well-being, go America. I was wrong. You have to go to hospitals to see doctors and get your medications. And the medications are super expensive, and they never offered me generic and they charged me by the pill. I was on Cymbalta 2 years ago for a month and was about $3 US per pill, which I have to take everyday. I haven't been on any fibro meds. None. Can't afford it. So I suffer.
To top it off, not only do I need medication, I need a new bed. I’m currently sleeping on a 16 year old spring twin bed. I haven’t slept on a twin since High School.... I have 4 blankets folded and placed in the middle so I can sleep but when there are bad flare-ups, I can actually feel the springs, this is no joke or me being dramatic.... it's painful! A doctor said I need to sleep on the floor for the flat/stiffness OR get an extremely expensive "specially made" bed. Thanks doc. I'll take the lower grade, please!
When I first wrote this, it was in 2014, I had my first job, and I calculated that I worked 45hrs/wk and got paid $2.36/hr as an Officer of Special Affairs at a religious foundation. I was working for a good cause, but it was definitely not livable, especially with the health factors I had to live with. It was extremely depressing thinking about how the amount of work I did and whatever money I made goes to hospitals and medication, a great thing, but it did not help me at all.
Some medications I can get from the pharmacy, but it's still not cheap, especially when they don't have the dose you need, so you have to double up. I'm not enjoying Thailand. I'm too broke and in too much pain to do anything. I've lost/gained so much weight from not eating to save on some money, strange right? Losing AND gaining weight? I'll be honest, I am absolutely broke.
I'm not the type of person to ask for help, ....especially when it comes to asking for money.... especially from strangers, but at this point, yes, I'm that desperate. Fibromyalgia has taken my 2 decades of my life. I've lost friends because of it because they would think I was a flake every time I couldn't make it out because of a flare up or if I didn't have enough money to pay for things.
I can’t post my own gofundme because it will get back to my family and then get yelled at some more for begging for money. [Cue me, Tiff: Which is why I am posting this for her, I love her dearly!!! ] They just don’t understand.... I’m still embarrassed about myself, but I can’t wait any longer. I have realized that my health is way more important than my pride.
I want to be somewhat human again, and hopefully fully human again. If you can help with anything, anything at all, it is very much appreciated. The amount I'm asking may seem high, but it's for meds for the year and a new bed. My PayPal is [email redacted].
Thank you and bless you all,
Annie"
Please, with all the kindness in your heart, think about it. You can go and get McDonalds for a few bucks or you can, literally be healthier, and just donate those few bucks to my dearest doll. I have known her for years and she is just the most amazing sweetheart ever. I care for her deeply and wish I could do more, so I hope that you guys can find it in your heart to not buy that Starbucks today and just give that money to my Annie in return. I need her in my life. She resisted me making a gofund account for her, but finally gave in. She has a beautiful soul and needs a chance at a nice normal life just as you and I do.
XO, Miss Tiffie .
Here is her story:
"My name is Annie and I suffer from Fibromyalgia and a slew of other maladies. My friend is helping me out with this because I took too long to share my tale because I was ashamed to post myself. I am a proud, strong woman... but it takes a stronger woman to really admit that something is wrong.
I probably already had fibromyalgia long before I was diagnosed, isn't that always the case? I was always in chronic pain, always tired (I could barely even wake up for work - forget about even trying to wake me up), insomnia, etc. It wasn’t until I found out that my boyfriend of many years had been cheating on me and had been in a relationship with another woman for a full year and that triggered the fibro to come out fullblast. I was crushed.
I had lost myself and who I was. My ex would beat me when he was drunk, one that I remember significantly was on my 30th birthday and he was lucky no cops were driving by because it was on the lawn of a train station. ON A LAWN OF A TRAIN STATION! HE WAS LUCKY, I WASN'T! I had a concussion and/or bruised brain - possible concussion for 6 months and didn’t know it. He knew he was in the wrong which never curbed his drinking, not that it probably ever would. I never knew what contusions were until I saw pics of Rihanna. I can’t even do push-ups anymore. What have I become?
I'll tell you... I’m hyper-sensitive to bright light. My memory isn’t well...not even just "well", it's not good at all. I would get mini seizures and he had the nerve to deny causing my fibro. I used to say why people can't just get out of a bad relationship... and then I realized that it’s not that easy.
I have been diagnosed with Fibromyalgia since 2007. It is a serious Chronic Disease that many doctors don’t know how to treat and, frightenly, there is still no cure. I have been on a slew of medications, including Fentenyl... constant trial and error of what will and won't work with plenty of side effects that were known and unknown. It has been a very LONG and difficult battle.
I went from being a very outgoing person who loved to go out, socialize, and loving to dance, to now this. When the Fibromyalgia hit, I spent practically a year never leaving my apartment because I couldn't walk. I became Vitamin D deficient in the summertime! I have even lost numrous jobs because of my Fibromyalgia.
What used to be easy work to me (50-60hrs/week) has now become difficult and exhausts me very easily. So, the depression kicks in, more than ever. I have seen as many specialists as I could under Medicaid. Yes, I will admit, because of my Fibromyalgia, I had to go on Welfare and get food stamps, eventually filing for bankruptcy. Being constantly tired and exhausted, I have tried everything. Being in Thailand right now and access to Asia, I have even tried Eastern medicines; acupuncture, herbs and tinctures. I'm absolutely desperate and willing to do anything to get better.
On top of the Fibro, I suffer from Chronic Depression, Anxiety AND Panic Attacks, a Herniated Disc, PTSD/Survivor’s Guilt because of 9/11, Insomnia, Chronic pain, etc. etc. etc. Yes, there is a lot, but helping fix my Fibro will help with a lot of it.
Curious about Fibromyalgia?
And here is the Story of the Spoon Theory.
In my true words, living with Fibro is the worst as it can get. It is like having the flu aches and pains 24/7 and having it get worse when there is rain or change in barometric pressure. I do not sleep at night and not even during the day because I'm just writhing in pain and I am absolutely miserable... just absolutely miserable. I feel like a Mac truck has hit me over and over again, driving back and reversing over and over, and yet I have to make it through the day with a smile on my face, or tryin to.
And now living in Thailand, with no real job because of the Fibro, I will now have to suffer through 6-8 months of monsoon season which is coming VERY soon.
Most people do not understand. Even my own family doesn’t understand. They think I’m lazy. But you just don't see it... you don't feel how I feel, and just how sick I feel. I don't need to be losing an eye, bleeding to death or have skin peeling off to be sick. This is true for many "sicknesses" Trust me, it hurts. Chronic pain is no joke.
I am having difficulty even typing this up. My Fibro Flare-ups have been so bad that I've missed out on so many big events, including family ones, I even had to miss out on my nephew turning 2. Yes, his second birthday. I couldn't get out of bed or move. I was supposed to bake the desserts for the party (I'm great at making and baking food - which Fibro has been keeping me from).
I got reamed by my parents... I had hoped they would understand that it was because of my sickness. This has taken over my life. Because of Fibro, it has taken me 2 years to complete this call for help. I’m ashamed and embarrassed to ask friends and strangers for money... but I was convinced by a friend that I should.
What I am asking is for some help because I didn't have much help in the States. I was here with family originally, which was going to be just for 3 months, for a couple of deaths in the family. After that, I stayed, due to lack of luck in the States... So I decided to stay here because I had nothing back in NYC.
Yes, I used to live in New York City... yet I no longer had a job, an apartment, and I had lost my Medicaid; I waited forever for Disability aid, etc. which I thought being here might help my health and well-being, go America. I was wrong. You have to go to hospitals to see doctors and get your medications. And the medications are super expensive, and they never offered me generic and they charged me by the pill. I was on Cymbalta 2 years ago for a month and was about $3 US per pill, which I have to take everyday. I haven't been on any fibro meds. None. Can't afford it. So I suffer.
To top it off, not only do I need medication, I need a new bed. I’m currently sleeping on a 16 year old spring twin bed. I haven’t slept on a twin since High School.... I have 4 blankets folded and placed in the middle so I can sleep but when there are bad flare-ups, I can actually feel the springs, this is no joke or me being dramatic.... it's painful! A doctor said I need to sleep on the floor for the flat/stiffness OR get an extremely expensive "specially made" bed. Thanks doc. I'll take the lower grade, please!
When I first wrote this, it was in 2014, I had my first job, and I calculated that I worked 45hrs/wk and got paid $2.36/hr as an Officer of Special Affairs at a religious foundation. I was working for a good cause, but it was definitely not livable, especially with the health factors I had to live with. It was extremely depressing thinking about how the amount of work I did and whatever money I made goes to hospitals and medication, a great thing, but it did not help me at all.
Some medications I can get from the pharmacy, but it's still not cheap, especially when they don't have the dose you need, so you have to double up. I'm not enjoying Thailand. I'm too broke and in too much pain to do anything. I've lost/gained so much weight from not eating to save on some money, strange right? Losing AND gaining weight? I'll be honest, I am absolutely broke.
I'm not the type of person to ask for help, ....especially when it comes to asking for money.... especially from strangers, but at this point, yes, I'm that desperate. Fibromyalgia has taken my 2 decades of my life. I've lost friends because of it because they would think I was a flake every time I couldn't make it out because of a flare up or if I didn't have enough money to pay for things.
I can’t post my own gofundme because it will get back to my family and then get yelled at some more for begging for money. [Cue me, Tiff: Which is why I am posting this for her, I love her dearly!!! ] They just don’t understand.... I’m still embarrassed about myself, but I can’t wait any longer. I have realized that my health is way more important than my pride.
I want to be somewhat human again, and hopefully fully human again. If you can help with anything, anything at all, it is very much appreciated. The amount I'm asking may seem high, but it's for meds for the year and a new bed. My PayPal is [email redacted].
Thank you and bless you all,
Annie"
Please, with all the kindness in your heart, think about it. You can go and get McDonalds for a few bucks or you can, literally be healthier, and just donate those few bucks to my dearest doll. I have known her for years and she is just the most amazing sweetheart ever. I care for her deeply and wish I could do more, so I hope that you guys can find it in your heart to not buy that Starbucks today and just give that money to my Annie in return. I need her in my life. She resisted me making a gofund account for her, but finally gave in. She has a beautiful soul and needs a chance at a nice normal life just as you and I do.
XO, Miss Tiffie .
Organizer and beneficiary
Annie P
Organizer
Tiffie Dee
Beneficiary
