Making Memories

Toby-jay is 5 years old his one of the bravest little guys I know. This is him with his 9mobth old little brother at little havens. 
He has Tuberous sclerosis complex, refractory seizures, visually impaired, global development delay, Autism, hypermobility, hyperactivity, non verbal. His on 4meds a 
He has uncountable tubers in his brain which causes the seizures which he has up to 50 a day.  His had brain surgery, tried every med going. We have recently been told he has refractory seizures which means no matter what med you give him it won't work. Our next steps are VNS surgery and Cbd oil.
My reason for doing a fundraising page is we've been approached by a lovely team of people  from Chris toy box that want to help raise money to get Toby-jay a sensory ball pit hand made to suit his needs. 
With what ever is left over we will then use to make memories with him.  His currently been in  status epilepsticus 3 times in the last 2 weeks. 
I'm unsure what this all means for him but we are running out of time and options.
His my baby. My world. I just want to be able to give him everything he needs and more ❤️ We met wihh his consultant and unfortunately the we are on our last options. Now it s about managing Toby-jays seizures at home and making him happy ❤️