Miracles for Baby Bryson
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Hello to all! My name is Jaylyn Maddox, Im 16 years old, currently a student in school and approximately 3 weeks ago I became a mother to a beautiful precious baby boy by the name of Bryson Cordell Maddox. At the beginning of my pregnancy I became very ill and was told at my first sonogram that my baby was diagnosed with Skeletal Dysplagia (a rare form of skeletal defiencies). I was then set up with specialist at Presbytarian Hospital in Dallas, TX whom after reviewing the prognosis of my baby, gave me a decision to terminate the pregnancy or prepare for the battle up ahead. I chose LIFE over DEATH! I began home schooling with the help of my family sacrificing and rearranging their life. It has been a long, stressful, complicated pregnancy but with my faith and my family I was able to endure what some would say is impossible for a 16 yr old. All the traveling, severeal doctor appointments, emotional drawbacks, health and mental issues, mom/dad/siblings/family missing work to be supportive all came with a price. Love of course was the highest price but staying financially able to keep up with everything has also been a heavy trial on us. My mother and father have sacrificed beyond trying to continue to work, take care of my younger siblings, be there emotionally/physically/mentally for me and support Bryson through this all. Im forever grateful for this.
At birth Bryson was diagnosed with one the most critical forms of Skeletal Dysplagia which is known as Osteogenisis Imperfacta also know as "Brittle Bone Disease". Genectics doctors are testing to see exactly what type (1-4) he has to better treat him. He was born with multiple fractures which occured during utero and after birth and was immediately flown out to Childrens Hospital where he yet remains in critical NICU. At this time we have a special team of doctors working with Bryson and keeping him comfortable with pain management of morphine and Tylenol due to the fractures he has in both arms, legs, collor bones and even ribs. The fractures in the ribs are what causes the pain and respiratory distress. He is recieving forceful respiratory treatments with the hopes of being weaned as he grows and his little lungs become stronger. When and if studying this disease of Osteogenis Imperfacta the progressive condition needs life-long management to prevent more deformity, complications and even death due to respiratory complications.
With that being said, empathy is not what we are searching for, but prayers and monetary gifts will be so appreciated and much needed. I know God is in control of my baby boys health but I also want to be able to lighten the burden on my family financially for traveling, lodging, meals and work shifts that FMLA will no longer cover financially for my parents . Any and everything is appreciated and I, Jaylyn Maddox, will never take any of it for granted. Im grateful and thankful for the support, prayers and thoughts of everyone! God bless you all from the Gross Family, I and Baby Bryson! WE BELIEVE GOD!
At birth Bryson was diagnosed with one the most critical forms of Skeletal Dysplagia which is known as Osteogenisis Imperfacta also know as "Brittle Bone Disease". Genectics doctors are testing to see exactly what type (1-4) he has to better treat him. He was born with multiple fractures which occured during utero and after birth and was immediately flown out to Childrens Hospital where he yet remains in critical NICU. At this time we have a special team of doctors working with Bryson and keeping him comfortable with pain management of morphine and Tylenol due to the fractures he has in both arms, legs, collor bones and even ribs. The fractures in the ribs are what causes the pain and respiratory distress. He is recieving forceful respiratory treatments with the hopes of being weaned as he grows and his little lungs become stronger. When and if studying this disease of Osteogenis Imperfacta the progressive condition needs life-long management to prevent more deformity, complications and even death due to respiratory complications.
With that being said, empathy is not what we are searching for, but prayers and monetary gifts will be so appreciated and much needed. I know God is in control of my baby boys health but I also want to be able to lighten the burden on my family financially for traveling, lodging, meals and work shifts that FMLA will no longer cover financially for my parents . Any and everything is appreciated and I, Jaylyn Maddox, will never take any of it for granted. Im grateful and thankful for the support, prayers and thoughts of everyone! God bless you all from the Gross Family, I and Baby Bryson! WE BELIEVE GOD!
Organizer
VonGretshun Smith Gross
Organizer
Tyler, TX
