Daniel's Drive to Stay Alive

$795 of $20k goal

Raised by 16 people in 27 months
Daniel Hopkins   ORANGE PARK, FL
UPDATE...Daniel passed away 6.17.14 at 4:43 am.  Our outreach is now to raise funds for his burial.  

Our son, Daniel, was born with a neurological condition that is very rare and has no cure.  The condition is known as Neuro-Degeneration Brain Iron Accumulation (NBIA).  Children who show symptoms as a toddler do not usually live into their twenties.  Daniel first showed signs that something was not functioning correctly when he was five years old.  Today he is 21 years old and his journey here on Earth is almost over.  He has been bedridden for over four months, can no longer communicate, and is currently battling six different infections; one of which is life-threatening.  For more information on this rare condition, their website is www.NBIAdisorders.org.
     Since Daniel's condition is a progressive one, we have not been able to get a life insurance policy for him.  In the past year he has gotten severely worse and our family income has diminished significantly, as I have been splitting my time caring for him and caring for his father, William, who was diagnosed with Stage III colon cancer in June 2013. Our wish is to have Daniel buried in a family cemetary in Punxsutawney, PA. 
     We are reaching out to the public to help pay for Daniel's impending funeral, as well as financial help for our bills and chemotherapy costs.  
     Thank you for taking the time to read about our brief struggles.  Any amount of donation that you can give will be very helpful and we will be forever grateful.
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Update 2
26 months ago
Early this morning Daniel passed away. Thank you to all who donated as your support will now be used for his funeral. I'm praying hard that I will somehow be able to afford for him to be buried in Pennsylvania and not here in Florida.
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Update 1
27 months ago
Sending a sincere thank you to each of you that have donated.
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Read a Previous Update
Help spread the word!
 321 total shares
Deborah Nichols
27 months ago

Hello. Teachers at RVE send you their wishes and congratulations on your graduation Daniel! We want to help also. What can we do for you.

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Shelly Brannen
27 months ago

Thank you to everyone who has donated so far. It means so much to us. Sending blessings your way.

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$795 of $20k goal

Raised by 16 people in 27 months
Created May 15, 2014
MF
$25
Michelle Franz
24 months ago

Praying for your family!!!

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$20
Jeanne Difolco
26 months ago

I know the pain of your son's homegoing as I had my husband pass on a year ago. Wish I could be of more help to you but I live three states away. I will be praying for you and wish I could contribute more than I am. Jeanne Difolco

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BB
$20
Brittany Barnett
26 months ago

Prayers to your family

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DH
$40
Diane Hollis
26 months ago

I have wonderful memories of Danny. Rest in peace.

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$80
Anonymous
26 months ago
$100
Anonymous
27 months ago
$30
Cynthia griffin
27 months ago

Your in my thoughts and prayers God Bless

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LR
$20
Lilly Rodriguez
27 months ago
D
$100
DLA
27 months ago

Very close and personal friend. Their struggles are real and yet they smile thru it all. Any help you provide will be greatly appreciated and needed by this family. In our prayers.

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BN
$50
Bob & Nancy
27 months ago

In our prayers.

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Deborah Nichols
27 months ago

Hello. Teachers at RVE send you their wishes and congratulations on your graduation Daniel! We want to help also. What can we do for you.

+ Read More
Shelly Brannen
27 months ago

Thank you to everyone who has donated so far. It means so much to us. Sending blessings your way.

+ Read More
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