Daniel's Drive to Stay Alive
Our son, Daniel, was born with a neurological condition that is very rare and has no cure. The condition is known as Neuro-Degeneration Brain Iron Accumulation (NBIA). Children who show symptoms as a toddler do not usually live into their twenties. Daniel first showed signs that something was not functioning correctly when he was five years old. Today he is 21 years old and his journey here on Earth is almost over. He has been bedridden for over four months, can no longer communicate, and is currently battling six different infections; one of which is life-threatening. For more information on this rare condition, their website is www.NBIAdisorders.org.
Since Daniel's condition is a progressive one, we have not been able to get a life insurance policy for him. In the past year he has gotten severely worse and our family income has diminished significantly, as I have been splitting my time caring for him and caring for his father, William, who was diagnosed with Stage III colon cancer in June 2013. Our wish is to have Daniel buried in a family cemetary in Punxsutawney, PA.
We are reaching out to the public to help pay for Daniel's impending funeral, as well as financial help for our bills and chemotherapy costs.
Thank you for taking the time to read about our brief struggles. Any amount of donation that you can give will be very helpful and we will be forever grateful.
Hello. Teachers at RVE send you their wishes and congratulations on your graduation Daniel! We want to help also. What can we do for you.
Thank you to everyone who has donated so far. It means so much to us. Sending blessings your way.