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Incredible World of Jaxon Stanley

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I wasn't supposed to be here...

Let me fill you in.  My name is Jaxon Stanley Gemberling and I arrived on May 12, 2015 weighing 3 lbs 6 oz.  I have a twin brother, Jase, who was almost twice my size weighing 6 lbs 6 oz.  I caused a lot of worry for my mom and dad, Ann and Jay Gemberling, before I was born and still do now.  

I was immediately sent to the NICU at St. John's Hospital so the doctors and nurses could make sure I was okay.  I spent my first 56 days of my life in the NICU with great nurses and family.  While there, I had surgery to put a gtube in my stomach so I could eat and gain weight.  I was also looked at by a doctor who said that I have a double-outlet right ventricle with a large VSD (heart) which would require open heart surgery once I reach a good weight.  More doctors came to say I have renal agenesis (missing kidney), partial absence of corpus callosum (brain), and severe scoliosis.

I was then sent home to enjoy life with my family, still with my gtube.  My parents looked after me day and night to make sure I was comfortable and breathing well.  However, in August, I contracted 3 viruses which brought me back to the hospital for 19 days.  

But that wasn't the worst.  

I went into cardiac arrest on September 15, 2015 and almost lost my life.  The Emergency Room doctors and nurses saved me.  

I am fighting every single day, but I know my parents need some help.  I have expenses that aren't covered by health insurance.  Any help you can provide me in this fight will be helpful.
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Donations 

  • Anonymous
    • $50 
    • 6 yrs
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Organiser and beneficiary

Lynn Lopinski-Nena
Organiser
Springfield, IL
Ann Gemberling
Beneficiary

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