baby lane

lane joseph was born with a very rare skin disorder. it is called epidermolysis bullosa. it is a very rare genetic connective tissue disorder. the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. there is no cure. they refer to it as the worst disease you've never heard of. lane is consider mild at this time. let me tell you this is one very tough baby. he has had blisters that would make me cringe. he is in a lot of pain, but keeps smiling that beautiful smile. we have a lot to learn about this and will do everything to keep lane smiling. he is smart and loving. they refer to children with this disease as butterfly children. we started this fund me account to raise money for his genetic testing. the doctors have had to take biopsies of lane's blisters. which are very deep and painful and most require stitches after. with the genetic testing, lane, will not need anymore biopsies. please continue to pray for lane and a cure for eb.