My Little Spartan (Please help my boy)

£4,259 of £50k goal

Raised by 61 people in 34 months
Vasili Michael Kalispera  Malvern, ENG
Vasili was tragically diagnosed with Kernicterus after showing signs of jaundice after birth, which were left undetected by a inexperienced midwife. Vasili was born a healthy and happy little Greek baby boy, but soon after his birth it became clear after he returned home that negligence caused him brain damage and that he would never grow up as a normal boy and the life we had planned with him and for ourselves would never be the same. We experienced what could only be described as overnight shock and heartbreak. Vasili showed early signs of new born baby jaundice after he was born, and due to a inexperienced midwife his condition was noted but not acted on until it was too late. Now we are faced with bringing up our little boy who has been damaged by a rare condition called Kernicterus. Kernicterus has caused Vasili to suffer sight and hearing loss, spastic cerebral palsy and damage to the brain. This means he will be on a daily fight against his muscles and he could develop other problems such as bone growth problems, tendon tightening, teeth problems to name a few. The real tragedy is children with Kernicterus have whats termed as a 'locked in' life, and apart from the core brain damage that causes the main problems the rest of the brain is in affect not affected meaning he has all the abilities and intelligence of a child not affected. The reality is Kernicterus could have easily been detected and cured or even reversed if caught early on. He will now need 24hour care for the rest of his life. The very fact that he has no sight or hearing make our mission to help him that little bit harder. My wife and I do not blame the student midwife that made the mistake with Vasili but we place full blame on the NHS system that allowed her out to see us unaccompanied. There is an argument that she should have know better being a third year mature student maybe that is true but we feel that had a experience midwife come to see Vasili the situation could have been very different. We care for our child day in, day out. He requires special medical help and treatment around the clock, which is expensive, challenging and above all emotional. Funding is difficult and we have tried so hard to make sure Vasili has everything he needs, but it is an uphill struggle. This is where you all come in Vasili needs to be seen by a specialist in America his name is Dr Shapiro. To fund such a trip is expensive for a big family but more importantly Dr Shapiro has set up his own goals and fundraising to help families with children with Kernicterus lives better. Any extra funds will be passed onto the fund that Dr Shapiro needs to establish this research unit. They are aiming for more than a million dollars to fund professionals and advance technologies that may aid our kids. He truly believes that with enough resource he can one day reverse some or all of the damage my poor son and many have painfully had to endure. Sadly many children have died prior to being helped. We hope we can help other children and our own son with your help. Either way he is doing all his best with a specialist team of professional to make children like ours lives easier. Please feel free to donate what you can not only for my son but above and beyond what we need to fund our trip to help other children like my son. This research in future maybe able to help other children with cerebral palsy and brain damage type disabilities. We live in hope that we can help my son relax and enjoy his life. www.mylittlespartan.com God bless you all Love his loving dad Michael Kalisperas

http://www.youtube.com/watch?v=fOz_oIpBTgw&sns=em



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 757 total shares
Update 19
Posted by Vasili Michael Kalispera
14 days ago
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SO the time is nearing where we use the funds donated by all to get Vasili an AMAZING sensory room. Something he needs given all that he has lost. We want to say a MASSIVE thank you to everyone and will be posting photos up in the few weeks once its completed. x
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Update 18
Posted by Vasili Michael Kalispera
14 months ago
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Merry Christmas everybody. We would like to thank you all for you donations. Over the two years approx this fund has been set up we have tried to raise awareness and funds to be able to supply sensory items and eventual treatment options for Vasili in a few years. His fund has been used for some items like sensory toys, excursions and it has also been added to fund that currently stands at £16k which is amazing. You have all been so very generous and we appreciate all you do to help. This fundraising has been entirely raise by people like yourselves. We don't do our own as firstly we are overwhelmed with everyday life plus we have limited care support currently meaning we don't get much sleep but also because we want our other children to not be defined by my sons disability as they experience a lot of sadness daily. From the bottom of our hearts we want to express our appreciation and love. We wish you health and happiness for the new year. Love Kalispera family.
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Update 17
Posted by Vasili Michael Kalispera
14 months ago
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Thank you to all that have donated. Between you all Vasili and his whole family appreciate your efforts. Xxxxxxxxxxx
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Update 16
Posted by Vasili Michael Kalispera
14 months ago
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Had another amazing fundraising event raising a further £3925 thank you to all involved. You know who you are so thankful xxxx still some way to our target but we will get there xxx
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£4,259 of £50k goal

Raised by 61 people in 34 months
Created April 12, 2014
Vasili Michael Kalispera  
CB
£50
Caroline Blood
4 months ago

Donated by Malvern Sling Meet

TS
£108
Trigger Singh
4 months ago
RM
£1,000
Rob Moore
4 months ago
1
1
PT
£100
Paul Taylor
5 months ago
1
1
AS
£50
Anthea Snorton
6 months ago
TA
£10
Termiz Ahmet
6 months ago
AP
£70
Armine Petrosyan
6 months ago
ZA
£50
Zina Alampriti
6 months ago
£500
Anonymous
7 months ago
£50
Anonymous
17 months ago
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