Lighthouse runners
Tax deductible
Hi family and friends! Want to join us in making a difference?
On March 23rd we are running the Sleepy Hollow Half marathon to raise money for Leo's Lighthouse Foundation, a 501c(3) not-for-profit dedicated to funding research, raising awareness, and providing family support programs for ultra-rare pediatric disease Bainbridge-Ropers Syndrome (BRS).
BRS was only identified in 2012, and is typically characterized by "failure to thrive, significant cognitive issues, gross/fine motor challenges, seizures, and significant developmental delays." The majority of children with BRS are also nonverbal and have difficulties with the simplest everyday activities like walking, sleeping, and eating. These are just a few of the issues children and families with BRS face everyday
As with most rare diseases like BRS, advocacy falls into the hands of private foundations which are supported in great part by your charitable donations. Lack of awareness and limited access to research funding are the principal barriers for researchers interested in a rare disease like BRS. This is where Leo's Lighthouse aims to make a difference.
Any donation will help make a difference in the lives of these children and with any luck, change the outcome for generations to come. Thank you in advance for your contribution to our cause ...
Gracileia Morrison (Leo’s Mom)
Christina Papadopoulos
Liz Zammit
Adriana Zagorski
On March 23rd we are running the Sleepy Hollow Half marathon to raise money for Leo's Lighthouse Foundation, a 501c(3) not-for-profit dedicated to funding research, raising awareness, and providing family support programs for ultra-rare pediatric disease Bainbridge-Ropers Syndrome (BRS).
BRS was only identified in 2012, and is typically characterized by "failure to thrive, significant cognitive issues, gross/fine motor challenges, seizures, and significant developmental delays." The majority of children with BRS are also nonverbal and have difficulties with the simplest everyday activities like walking, sleeping, and eating. These are just a few of the issues children and families with BRS face everyday
As with most rare diseases like BRS, advocacy falls into the hands of private foundations which are supported in great part by your charitable donations. Lack of awareness and limited access to research funding are the principal barriers for researchers interested in a rare disease like BRS. This is where Leo's Lighthouse aims to make a difference.
Any donation will help make a difference in the lives of these children and with any luck, change the outcome for generations to come. Thank you in advance for your contribution to our cause ...
Gracileia Morrison (Leo’s Mom)
Christina Papadopoulos
Liz Zammit
Adriana Zagorski
Fundraising team: Christina, Liz, Adriana and Gracileia (3)
Gracileia Morrison
Organizer
Tarrytown, NY
Leos Lighthouse Foundation Inc (Leo's Lighthouse)
Registered nonprofit
Donations are typically 100% tax deductible in the US.
Christina Papadopoulos
Team member
Elizabeth Zammit
Team member
