Help Leah's Medical Fight

$4,320 of $121.4k goal

Raised by 56 people in 29 months
Darci Joy Semegi   FOUNTAIN VALLEY, CA
My dear friend Leah has been struggling with a number of illnesses for a few years now.  After dealing with very unusual symptoms,  her Doctors have just recently diagnosed her with MSIDS, or Multiple Systemic Infection Syndrome, which includes Lyme disease, Babesia, Bartonella, Anaplasmosis, and many others.  As you can imagine it is a very hard and very costly disease to treat, and she'll need to raise $121,440.  This is not mentioning that she is dealing with a number of other health problems,  Lupus being one of them. She was diagnosed 2 weeks ago with Lupus and Lymes all in the same appointment, which I can't even imagine how hard that was.  My friend is going through a lot right now, that is saying the least, and knowing that if she doesn't treat it, she will only get worse. I saw her at a low today at work, when she passed out from all the stress she is enduring and was taken away by the ambulance becuase she may have suffered a seizure. Please help Leah get the medical attention she requires to get better and grow strong again so she can continue to shine the beautiful light she has.
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Update 3
2 months ago
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Hey everyone, thank you so much for your outpouring of love and donations. You have no idea how touched I am. Just a quick update, I was hospitalized for a week and got another central line placed and am currently recieving TPN, a form of intravenous nutrition until my doctors can figure out why my body can't tolerate foods/liquids. The day I was discharged from the hospital I became an auntie again to another beautiful niece. On my way from the hospital to visit my sister and her family, I suffered a TIA or "warning stroke". I'm in serious need right now for any kind of help to get me to see the specialists I need to as my insurance is not covering the majority of visits and treatments.
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Update 2
2 months ago
Hi, this is Leah giving an update. A lot has happened (mostly good!) since this page was started by my friend Darci. I made a lot of progress in treatment and got really close to regaining my life, but due to financial reasons I stopped treatment (because I was feeling well) and am now paying the price.

My doctor isn't sure what's going on, but something caused my body to start rejecting amino acids. Humans don't make amino acids, we have to get them from our diet in order to make protein in our bodies. I haven't been able to eat without throwing up for over 6 weeks, and my body is attacking itself to get the nutrition it needs. To give just one example, I've been bed bound for 3 weeks straight and one of my metatarsal joints in my foot is deteriorating, which the doctor said is more commonly seen in high impact athletes with years of overuse.

SInce I'm not getting nutrition it's throwing off a lot of other things in my body, too. I started having seizures again, up to 10 a day. My doctor is very worried and says I'm at a critical time where we can come up with an agressive action plan after testing, or spiral out of control again if we delay treatment any longer. Since I was doing so well, I had only been doing phone appointments and she needs me to travel to see her in office before she can prescribe treatment again (I live 9 hours away from my doctor). I need a caretaker right now which makes traveling diff icult. Aside from my doctor, I have referrals to 7 specialists in next 2 weeks, some of which don't take my insurance and I have to pay out of pocket for. I'm on permanent disability with a very limited income. I've already paid $40,000 of my own money for treatment and now I'm bankrupt. My family has paid in almost the same, if not more, and can no longer help pay for my treatment.

I had my second port-a-cath removed back in october, and we're looking at the possibility of placing another to get TPN, or total paraenteral nutrition, an intravenous form of nutrition, as well as going back on high dose IV antibiotics, which may not be covered by insurance also. My vitals are extremely low, and we're trying to get them stabilized for now.

No one wants to be in the position of asking their family, friends, and strangers for financial help. But, your will to survive overpowers your pride and so you humble yourself, believing in the kindness of others who also want to see you survive. No amount is too small, if you can bypass the cost of a cup of coffee to donate, it would mean the world to me.
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Update 1
27 months ago
An update on Leah's battle with Lyme disease:

Since that first incident at work, Leah has had a significant increase in neurological symptoms, impairing her speech, thought processes, cognitive ability, memory, and motor skills. She now has irreversible muscle twitching and spasms, nonstop pain, rendering her unable to walk most days. She has had a total of 6 seizures, and is now starting epilepsy medication which she will most likely be on the rest of her life.

She recently had a head CT repeated which showed cerebral atrophy and white matter disease, an irregular EEG (brain wave monitoring, much like an EKG) and is awaiting the results of an MRI to check for suspected lesions on her brain due to her symptoms.

Her case has gotten so severe it has been immediately accepted by the leading Lyme literate doctor with the highest success rate of treatment, who normally has a very long waiting list.

Please help support her on her journey to better health before her symptoms worsen.

With love and gratitude,
Thank you
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$4,320 of $121.4k goal

Raised by 56 people in 29 months
Created April 1, 2014
KE
$30
Kimberly Evans
22 hours ago
MH
$50
mari haig
18 days ago
LA
$500
Lindsay Adamski
28 days ago

Keep fighting Leah!

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EC
$20
Ellery Connell
1 month ago
$20
Anonymous
1 month ago
KE
$100
Kenneth Emanuel
1 month ago
EN
$100
Eric Nielsen
1 month ago

Leave a comment

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LA
$50
Leigh Ankers
2 months ago

Get well soon x

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$25
Shannon Strazzulla
2 months ago
JA
$50
Jenny Angulo
2 months ago
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