Wheels for kingston

$6,485 of $6,000 goal

Raised by 68 people in 31 months
Amanda Lemons-mcquinn  MOUNTAIN REST, SC
My son kingston has a rare disease called spinal muscular atrophy(sma). It is a inherited disease that causes nerve cells in the lower part of the brain and spinal cord to break down and die. when this happens the brain stops sending signals to the muscles.This causes muscle wasting. My son kingston can not stand or walk on his own. His bodies muscles will waiste away and die over time. As he gets older simple tasks may become almost imposible. Currently he is a joyful boy who loves life. He loves to play and tries his best to keep up with his older brother. He has became to weak to efficently move his current wheel chair which weighs 37lbs. He weighs 29lbs so he would have to constantly move 66lbs to get around, and he tires almost as soon as he starts. I'm currently trying to raise money to get my son rolling again. The new chair weighs in at just under 12lbs and is one of the worlds lightest pediatric whealchairs. Please help my son regain his independance.
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Update 19
26 months ago

Thank you again to everyone who made this wheelchair possible for my sweet boy. Spinal muscular atrophy will rob my child of so much and has already. It affects the ability to stand, walk, breath, speak, and move anything in your body that has muscle. Kingston now almost 4 can finally be active with other children his age because of his new wheelchair. The pictures below is of him in a 5k race he competed to bring awareness, and raise money to find a cure to his disease. Spinal muscular atrophy is a terminal disease with no known cure that will create huge limitations in his life. Kingston is a fighter and we will not let this disease go on without a fight. You have all heard of the als ice bucket challenge by now I'm sure. Sma is just like als except it happens to young children who didn't have a chance at normal life from the start. I challenge you all to tell someone about sma today! #BeAware
Watch out SMA!!
I won a medal mom!!
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Update 18
28 months ago

I am happy to announce that Kingstons' wheelchair has arrived. He's so tickled. He zooms all over the place where before just hitting the rug was a stopper for him. He's so happy to be moving at a pace his brother can barely keep up with... Unfortunately he cant use it to its full use as of yet because last week he had a bad accident and feel while doing some weight baring and broke his femur :( he is in a cast that wraps around his waist and down his right leg to his toes. He isn't in the chair correctly while using it, and can only be in it for very short periods of time due to the strain the cast puts on his diaphragm. But he love love loves it. He is tickled and so excited about his new chair begging to be allowed in it. I cant believe how fast he is, you wouldn't either if you saw him in his last. It amazes me. I cant wait for these next five weeks in the cast to be over so that he can take full charge of his new mobility. My son is so resilient he has even found a way to crawl around the house with only one leg being used. He is my little trooper, and nothing can hold him back. This wheelchair is so light I can lift it with my index finger. I knew it was the lightest pediatric wheelchair in the world but I had no idea....... I would like to thank you all for what you have given my son. It truly is a dream come true to be able to have the ability of mobility when before you couldn't do a thing without mamas help. (what a confidence boost already) and to chase after his bigger brother and him not be able to get away is priceless. smiles all over and more to come when the cast is off and full mobility is achieved. ( I will post a video the day the cast comes off.) thank you to all who made this possible. thank you , thank you , thank you.
kingston with his casting
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Update 17
29 months ago

The time has come and the wheelchair should be shipped this week sometime, and probably arrive the next. I'm super excited to see how Kingston will react to his new freedom, and the ability to be able to keep up with his peers. Thank you all for making this dream a reality. When it arrives i will post pictures for you all to see the happiness you have created by helping my son.
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Update 16
29 months ago

It is official the chair is being made for my sweet boy. It takes 4-6 weeks from start to Kingston. He is looking forward to it... Independence is just around the corner thank you all so much. I am so super excited for him, AND ME. Not only will it give him freedom but it will help me out as well. It can get tough trying to push a wheelchair, hold a baby, a diaper bag and managing my 4 year old while out in public. More freedom is in the future for the both of us.

Also make a wish came over the weekend to collect my sons wish. I was sure it would be Disney but he wants a snapdragon. It is a HUGE wish, and it surprised me greatly. It is a mobility wish that would give him even more freedom when his manual chair just will not do the trick. It has a standing frame to get kids eye level and at speed with other children his age.( it also is therapeutic for weight baring) it also has a seat to floor so that with the push of a button he can go to the floor and get out on his own. Most kids need power mobility on top of the manual. There are many places that a manual just will not work like lawns, gravel, very long distances where he would tire in a manual and end up being pushed. ( he doesn't know the advantages of the snapdragon he just saw a little boy that's legs don't work being able to do everything a normal kid can do) It was a video of a little boy named Charlie and kingston raved about how Charlie could win a race because he is fast. Its bitter sweet to me that this is the wish he chose. He wants so bad to be like other children his age. If the wish is granted it will come along with a trip to the UK for a fitting and to receive the mobility device. Disabled kids need a wide range of mobility tools. When ask if he would rather go to Disney he shouts "NO I want a snapdragon" when we tell him he might not get one he says " But I have too, I want to stand and run like bubby" The snapdragon is 40,000 not counting the 2 week trip he would need to be fitted. I was unaware that travel was a must. I often look to you tube to show my son other kids like him, I never knew what he was really getting from the videos I find. I'm overwhelmed that this is his one true dream. He is wise beyond his years. If make a wish can not grant his wish then Disney will be his back up wish. ( I was so looking forward to cheerio island lol )he came up with so many wishes I didn't know what he would say when they sat him down and spoke with him. Wow!!! Im trying not to let him get his hopes up but he just doesn't understand how the wish thing really works. He is a little boy that was told he could have any wish, he doesn't grasp the complicity of it all.
hanging around
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$6,485 of $6,000 goal

Raised by 68 people in 31 months
Created March 13, 2014
Amanda Lemons-mcquinn  
29 months ago (Offline Donation)
Vivian harris
29 months ago (Offline Donation)
H. Stewart Right
29 months ago (Offline Donation)
Bill Thompson
29 months ago
freddi Hallman
30 months ago (Offline Donation)
Pat Ely
30 months ago (Offline Donation)
chuck and darlene Horne
30 months ago (Offline Donation)
Ron S.
30 months ago (Offline Donation)
karen williams
30 months ago (Offline Donation)
Jeff Scott
30 months ago

I am so blessed to know Kingston and his family. He is an awesome kid, and cant wait to see a video of him in his fancy new wheelchair. Let me know if he ever found that squirrel lol.

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