My daughter is very sick

$3,800 of $10,000 goal

Raised by 41 people in 2 months
Created May 1, 2019
Cassie’s Fight
on behalf of Cassandra Gilbert
My beautiful, intelligent, amazing daughter, Cassie has been fighting CRPS for 8 years & fibromyalgia for 4 years. On her birthday, April 25th, she went to the movies with her boyfriend. Though there was no warning, the movie had a lot of flashing light scenes. It caused her to have a full blown seizure. After the seizure, she lost her ability to speak properly & she believed she was going to die, or minimally, have full blown brain damage. Now, a week later, she still is struggling to speak properly & has significant motor dysfunction that requires her to need assistance to walk to the bathroom or adjust herself in bed. This is her last week of her senior year of school & she is not able to attend, threatening her graduation & possibly her full academic scholarship for law school. She is a fighter & doesn’t give up easily but she feels she is losing this battle. She cannot afford doctors to treat her rare conditions & doctors that do specialize in CRPS are hard to come by. And now with her current condition, which may be focal seizures &/or brain damage, the outcome doesn’t look so great. Cassie cannot afford the medical tests, doctors & treatments she needs, even with the health insurance I have gotten her. As her mom, I can only afford her so much assistance as I am a preschool teacher. I ask you to please donate & help her get the help she needs. Please! PLEASE! She is losing the battle.
+ Read More
So the latest: we got a lot of names of doctors that we are pursuing so thank you! We are currently juggling between her issues & my father’s m, so we may not be jumping as fast as we should but she has appointments set up.
Currently, she remains unchanged, except that she is under a doctor’s care for swollen lymph nodes. Ultrasound & biopsies scheduled. And no... this does not seem to be the source of her issues as they developed later on. It’s just an “added bonus.” pray it’s nothing more than what it could be.
We continue to ask for funds as her disability hasn’t kicked in yet & some of these doctors are not covered. She will be undergoing a 2-week multidisciplinary treatment for her RSD at the end of August. We are still looking for doctors that will think outside-the-box for her neurological stuff, which she believes is holding her back the most.
Keep praying, keep sharing & keep sending positive vibes.
Thank you
+ Read More
I got a few doctors’ names I’m going to reach out to today. Some are in California. Some in NY. Thank you to those who gave me these contacts! Let’s cross our fingers that something comes out of it! On top of the names, there is a brain surgeon in California willing to look at her medical records & reach out to get some answers or doctors close by. Gathering all the info today, copying it & FED-Exing it this afternoon!
I thank every single one of you that have contributed, shared & supported her through this. So does she & is floored by the amazing love you have shown her!
We still need you to share PUBLICLY and donate if you can.
Thanks for praying, loving, supporting & caring for Cassie & her story.
The ultimate goal is to find a team of doctors to help find an answer & to make her life of quality rather than of waiting & deteriorating. Let make that happen... PLEASE!!
+ Read More
PLEASE SHARE PUBLICLY! I need as many people to see this to get her HELP!The following is her medical history for those who know of someone that could possibly help.
my daughter’s situation: she was diagnosed with CRPS about 5 years ago after banging her knee on an exercise bike. She is currently experiencing 24/7 of excruciating pain. For years we have sought someone to help her. At that time, most doctors never heard of it or they claimed it doesn’t exist. She has had nerve blockers, pain pills/patches, etc., but it was a temporary relief if it worked at all.
It is now all over her body, turning limbs deep purple/black, swelling, cold, clammy & or shiny. Her pain travels throughout her body.
She is such a strong person that she has been able to work through it & go to school. But as of a month or so ago, she is losing the battle & has not been able to go to school or work.
Her medical background is complex. Nuerological events started to happen to her in 2010/11, with vision & brain dysfunction being the first areas to be effected: blurred vision, delayed vision, double vision, opposing movements of background & foreground. She has been tested to be of superior intelligence, but when this happened, definitive deficits were seen in processing, word retrieval & expressive language. Within a few weeks from the start, she was then diagnosed w/epilepsy (general w/cluster) &migraines. Then A week or so after been tested & diagnosed w/epilepsy, she hit her knee on the exercise bike & developed CRPS, which got worse after a non severe car accident. Then diagnosed w/fibromyalgia & sciatica.
Her tunnel/blurred/double/delayed vision came back.
Her last seizure was in 2015 until 4/25 this year (a week after her vision issues) while she was watching a movie. During that event, she lost her ability to speak properly, sounding like she had a stroke. She called me while I was vacationing to say “good bye” as she thought she was dying or her brain was dying to where she would be a vegetable the next day.
She did regain her speech several hours later but struggled with formulating complete sentences & processing.
A week later after exerting herself in a heated exchange, she couldn’t move her right side or her mouth. Her boyfriend noticed it before she did. She was taken to a hospital, but had to be carried to the car upon her neurologist’s suggestion (She did go to hospital after the seizure at the movies, but all they did was test her for drugs & alcohol: both were clean).
The purpose of the hospital was to check for epilepsy using a video eeg. Her right side’s mobility came back (75+-%) within 24 hours. The only thing that showed up was photosensitivity on the eeg (18), which was not previously seen on the same test 5 years previously. She has seen many movies since 2015 that are action-packed/flashing lights & hasn’t felt this before).
She is currently under the care of a new neurologist that has put her on Aturol/Ritalin for her continued brain fog & PT as she continues to have mobility issues.
She feels that this may be her new normal. She fears other nuerological events are going to happen.
We live in NJ & her insurance only covers her in this state.
What we have experienced in all these years of finding answers is that the doctors she has seen only handle the different symptoms that arise. But I believe there is something tying it all together.
If you know of anyone that could help my 26 year old, amazing, strong daughter, Cassandra, I would so greatly appreciate it.
there is more history but this is the bulk. Her latest issue added to this is eye-hand coordination: 2” inches to the right of where she is targeting (ex: writing)
Top part of text was developed last month. Video eeg 5 days done on 5/21-26
She also had Teats Syndrome in HS (very rare), had full blown whooping cough, chicken pox and possibly mumps though inconclusive but they couldn’t figure out what else it could be... though fully vaccinated.
She was a sick kid since birth: reflux, stopped breathing (forgot what it was called) & needed stimulation to get her to breathe, needed pt, Ot & speech/swallowing therapists when a baby, was on sleep monitor for a year, was in & out of hospitals, Severe ear infections causing approx 90+ perforations & 3 myrongotemy surgeries, sinus scraping, highly irregular periods (7 days in between cycles), 3 painful lumps on her groin, suffered & still does have water sensitivity (causes rash-shower, rain), drinking water causes severe stomach pains, severe reaction to sunblock, bronchitis every year since she was 6 months, etc) there’s a big history.
She is seeing Dr O’Connors for epilepsy & neuro stuff now. She was on meds for it, but due to insurance problems, lost that doc & this stopped taking them in 2015, when her last seizure was. Not on any meds now but cbd oil & aterol (for brain fog). Doc didn’t want to start her on meds for seizure since he isn’t positive what kind of nuerological event she had. She is in 3rd to 4th stage of CRPS... she believes it MAY have gotten to her brain but really has no idea why her brain “feels” like it’s not functioning. She has jaw pain now. Again not sure if it’s the CRPS or not.
+ Read More
Though I made this post a month ago & only decided to post it today, not much has changed except her continual deterioration. She can’t drive anymore, go out, especially on sunny days as she has developed photosensitivity, eye/hand coordination difficulties & further visual & physical difficulties. She believes this is her new normal & isn’t convinced the worst has happened. Cassie is one of the most intelligent people I know; she can be ANYTHING she puts her mind to. Her dreams included being an immigration lawyer and to run for office someday. She believes that with each passing day, the dream dissipates more. Sadly, I can’t tell her it’ll get better or that miraculously, it will all go away. I ask you to talk to the doctors that you know to see if they or someone they know can help her. I’m begging here, because with each grimace she makes, every wince she experiences, each skill that disappears a piece of my heart is crying & dying. Please help! A donation or at least a share would help. Spreading the word & asking around may give her the hope she needs to keep fighting.
Thank you
+ Read More
Read a Previous Update

$3,800 of $10,000 goal

Raised by 41 people in 2 months
Created May 1, 2019
Cassie’s Fight
on behalf of Cassandra Gilbert
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$40
Fanya Cutler
4 days ago
TA
$50
Taylor Austin
6 days ago
$50
Anonymous
14 days ago
$10
Nicole Taylor
24 days ago
JL
$50
Julianne Lipnick
24 days ago
MT
$25
Meri Tufano
1 month ago
EL
$100
Edith Luciano
1 month ago
GM
$350
Gerard Maron
1 month ago
RO
$25
Randie ONeil
1 month ago
PM
$333
Philippe Mongeau
1 month ago
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.