My wonderful husband, Zachary Izon, was born into eternal life last night (2/2/2015). He fought this horrible disease with courage & grace. He will be forever missed.
His medical & care expenses were extensive and any amount you can contribute will help.
Thank you to everyone who has already contributed.
Things have changed once again. Zac sleeps a lot and is often confused as to what is going on around him. There are times when he is coherent but will then forget what day it is and repeats what he just said. I tell him it's ok he doesn't have to remember anything he's retired
Ok. Here we go...the power chair lift did not work for Zac's wheel chair. I took the day off, sat there in the parking lot in one of their wheel chairs they were fixing for 8 hours (on a 2 hour install mind you) and finally they said we'll finish tomorrow it's too dark. After 8 days and a lot of drama they called to say they had to take it all out and order something else which will take a week to get. When it comes in it will only take 2 hours to get it all in. I gave him my teacher look when he said 2 hours.
So have my van. No lift. Back to square one. AHHHHHH!
Yesterday we attended the ALS WALK here in Honolulu! Zac was so amazed that so many people came out to support the ALS Community in Hawaii. All of the money raised yesterday STAYS in HAWAII!!! They are: THE ALSA GOLDEN WEST CHAPTER serving California and now Hawaii.
They are working tirelessly to establish a clinic here. That means Zac won't have to go to several doctors appointments scheduled at different times. The doctors will all be present and see him one at a time on the same day and at the same place!!!!!
Our good friend Marian Boquet walked for us since my knee needs replacing (just found out on Wednesday). We also ran into a lot of other old friends and Zac made a new friend! Check out the pictures!
Oh and Charmaine and Dianne came over and cleaned the whole house. And yesterday when we got home Maureen (Zac's sister) and Leilani (her daughter our niece) came and did the laundry and help de-clutter.
Until next time......we thank you all for your continued support and love!
We'll we were able to attend Zac's parents 64th wedding Anniversary! Zac was thrilled but it did exhaust him! So good to see so many family and friends there.
Now how do we thank you all enough?! Because of your generous donations we will have the lift installed on the van this Wednesday! It's called a Joey so you can look online. I will be able to put the power chair in the van without hurting myself again.
We still need to shop for the generator but again we can only do these things because of your help. We will also be able to purchase new door handles for the rest of the doors and new faucets so Zac can use them easier. You are also helping us pay for the rising costs of his medical bills as tube feeding requires that some meds be liquid. Can you believe because it is in liquid form it costs 3 times as much?!!! Crazy! There have been a lot of new things we now need medically to care for Zac.
We will also be purchasing a monitoring system since Zac has fallen 3 times now and we were not aware until he either told us or we walked in to see him on the floor. He still wants to do things for himself but there is a risk.
His ALS is kicking his butt as it robs more and more from him. He is having to rest more and just shifting in bed takes his breath away. I don't know how he copes. He is in so much pain it's horrible to watch. We quickly get his pain meds in so he can be comfortable.
On another note I have hurt my left knee so Nick has come to the rescue taking care of both of us. My sister Becky has been invaluable as she takes on the huge list of to dos from the mainland while I'm at work.
Again, thank you for all that you do to help Zac have a more comfortable time dealing with ALS. It also helps me help him!!!!!!
This is for my husband ZACHARY IZON. Zac was diagnosed with ALS, LOUGHERIG'S Disease on May 10, 2012 (also known as (Motor Neuron disease in some countries). For more information on ALS please visit: alsa.org.
This horrible disease is fatal. After diagnosis patients typically live from 3-5 years. ALS causes all of the muscles in Zac's body to die. This includes the diaphragm which controls his breathing. He currently has a Bipa ( a non-invasive ventilator) machine which cost us $2,200. Thank God for family because they have been helping us financially when they can. Zac's insurance does not cover any durable goods he may need.
I have watched my husband go from a vibrant active man who loved playing all sorts of musical instruments to a man who no longer has the use of his arms and hands. His legs are slowly going too. A man who loved singing who now has unreconizable speech, can no longer write legibly, nor dress himself or prepare any food for himself each day. Because of ALS, Zac will soon have a feeding tub (PEG) surgecially inserted because he asparates when eating or drinking. This has lead to pneumonia, which has led to several hospitalizations.
Through all of this, Zac continues to go to work, all-be-it very part time, in order to continue to help provide for our family. His doctors are in awe of his stamina. When he can no longer work Social Security will pay him less than half of what he makes now. Medicare will cost us $107 a month and drug coverage will be another cost. Just one of his medicines costs $1299.00 a month and he takes several medications including breathing treatments four times a day. I believe he continues to work because of our living expenses. Our living expenses will not decrease but our income will. I currently work two jobs and am Zac's primary caregiver when I get home. All of these costs and whatever else is to come our way adds up quickly.
When Zac was first diagnosed it was important to do as much as he could before his condition worsened. So we used our retirement funds and my whole-life insurance policy for trips that Zac had on his bucket list. We visited the Air Museum in Washington, D.C., (he has always loved air planes), Senator Daniel Inoye's office (two months before he passed), and a long time friend in Washington State (his first band members). We have been to the Disney Aulani on Oahu thanks to family (they have a time share) and we will go one more time before the PEG goes in. Zac (with the help of our sons) wants to get in the water one last time with the grand kids. Family is so important to Zac and spending whatever time he has doing what he can is what keeps his spirits up.
As you can see the financial cost of ALS are astronomical and financially devastating. There are previous hospitalization bills we are currently trying to pay, the purchase of a Van to pay for because Zac could no longer get down into his car. Lovingly one of our sons took over the car and the payments to help us out. Now we have to purchase a trailor to transport his electric wheelchair and have that installed. And the expenses keep coming.
My hope as you read Zac'sstory is that you can find it in your heart to help us deal with the continuing financial burden of ALS, LOUGHERIG'S Disease.
We thank you in advance for any/all help you send our way and please feel free to share Zac's story with whoever you can.
Sincerely, Mrs. Michelle Kantorowski Izon Wife of 35 years with more to come I hope!
P.S. please read the updates which is where I will keep everyone posted on what is happening