Travis's Medical fund
Amber Cori Compton-Carr BEAUFORT, SC
Brian and Travis are very dear friends of mine and they have found themselves in a difficult situation. On Wed 8/12 Travis had a severe seizure. After being rushed to the hospital in Conway SC he was transferred to MUSC in Charleston. Travis has a large tumor on his brain and they are trying to decide the best course of action. They will be doing a biopsy on Tuesday. Brian needs to be with his husband right now, and Travis is obviously unable to work. In the meantime, medical bills and household expenses are piling up. I am creating this page both as a way to help raise money for their expenses both medical and personal, and as a way to keep everyone updated on Travis's condition as time goes on. No amount of help is too small. We would appreciate all the prayers and healing energies that can be sent his way as well. I know these boys have an amazing extended family. Time to show them how much we love and support them!+ Read More
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Another late update. For that reason this might be a bit lengthy. I posted after the surgery. Everything went fairly well. Since then it's been a roller coaster. Initially the new was good. We were told that there was a genetic marker in the tissue from the biopsy that increased his life expectancy a great deal. We were lucky enough to be able to spend a week together. The boys came down for a bit of a vacation to spend some time at our house. Brian got to do a little manual labor but it seems to have done him well. Travis wasn't feeling well. He was running a low grade fever all weekend and had a pretty nasty cough. Took him to the ER on Monday and he was diagnosed with asthmatic bronchitis. They gave him some antibiotics and an inhaler and he seems to be doing a bit better now. Alas on Tuesday our vacation....well their vacation had to end. I took them back to wet wet Charleston where we had a meeting with his many doctors and cancer team members. We were told that unfortunately the genetic marker that they had seen in the biopsy was not in the rest of the tumor. We have gone back to an average life expectancy of 4-5 years. We see this as a number to beat. We just need help to do so. Travis starts radiation on Monday. He will have radiation therapy 5 days a week for the next 6 weeks. During that time they will be staying at the Hope Lodge nearby the hospital. At the end of that 6 weeks though they will need a place to stay that is preferably still close to MUSC in Charleston. On top of that we received a phone call this week that someone totaled their car and abandoned it in a ditch full of water in Conway. So now they have also lost their vehicle. We are hoping that those responsible are held accountable for what they did. There isn't much we can do at this time. What they need now is the support of those who love them. They've been feeling a bit isolated lately. While the trip here seemed to help they really could use more visits and calls from their friends and family. I hope this message finds you all well. Then you so much for your support. Keep it coming. Travis and Brian are so very grateful for everything!
Running late on posting this update. I've been really busy with school.Travis had surgery on Monday to remove the tumor. As we knew they were unable to remove all of it. A lot of the tumor was wrapped around vascular structure and trying to remove it all would have been too dangerous. Surgery went well though and they were able to remove quite a bit. Travis is home now and recovering well. He has a number of appointments coming up. He is going to be starting chemo soon. Luckily his chemo is an oral pill that he has to take so many days out of every month. He also has an appointment to set up his radiation therapy. So there is a lot going on and I will do the best I can to keep everyone updated. They are running low on funds though. Travis has been on steroids so feeding him has been interesting! lol They are in good spirits though and they thank everyone for their wonderful support! We love you all!!!!
Quick update on the boys. We went to an appointment with a new neurosurgeon yesterday. The surgeon who handled his biopsy and originally had his case decided to pass it along because he was uncomfortable with doing any further surgery. The new surgeon is one of the best in the state. He believes that he can safely remove most of the tumor. This does carry some risks, but after we all sat and spoke with him we feel that this is the right course of action at this time. It gives Travis the chance to have more time with us and a better chance for the chemo and radiation to shrink what is left. His surgery is going to be on Monday the 14th. Though we wish that this was a cure it was again made clear to us that we are only buying time and hopefully and increased quality of life. This type of tumor cannot be fully removed. We know it will come back, however we want to give Trav and Brian all the time we can! We are doing all we can to find ways to absorb these costs though programs and disability. I am trying to help Travis navigate the red tape to getting financial assistance. They are starting to get more bold about asking for money upfront for his office visits and treatments though. Hopefully we can take care of some of that.
So I spent the day in Charleston again. I went back with Travis for the results of the biopsy and I truly wish that I had better news for you all. Today I had to tell my best friend that his soul mate (Also my best friend....they are combined as one in my eyes) has a terminal illness. Travis's tumor is an anaplastic astrocytoma. This type of tumor is one that will continue to grow back in the future. He may be having surgery to resect what they can. He is for sure going to be receiving Chemo and Radiation. The prognosis is still uncertain. There are three grades of this tumor. 2,3, and 4. Travis's tumor is on the lower side of grade 3. They've sent a sample of his biopsy for molecular testing to determine it's future behavior (ex. How fast it might grow) The one thing the doctor was clear about is that these tumors keep coming back. Statistically the prognosis for this is at worst 14-16 months. 4-5 years at best. He said he has known patients to live 10 years though. So now we fight. Travis is an amazing person with an amazing group of healers and friends! Maybe he will be the one to make it 20 years....but even if he doesn't every day with him is a win. In the meantime since he will be receiving this treatment he will not be able to work. Brian is working on a more concrete source of income...but until then this fund is what is feeding and housing the guys while we fight this. Please continue to help out in whatever way you can. Travis and Brian send their love and thank yous to everyone who is following and supporting them through this time.
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