Raj Fund, to help our family with bills!
Hello my name is Heidi, and I would like to share with you, what our beautiful little family has been through in the past couple of weeks.
It also looks like he is coming home "without" oxygen. Between rehab this morning, and his appointment with his Cardiac Thoracic Surgeon, they have been experimenting with him without the oxygen, and it looks like it may happen. He is out of breath while doing it, but like the surgeon said, his life of running around and lifting heavy stuff, and go go go is done, and he will be short of breath throughout his daily life. But putting it into perspective, from what his lungs have gone through with almost every complication that could happened did happen, the Surgeon is absolutely ecstatic with how the lungs look now. The left lung that was peeling down off rib cage has expanded bigger and therefore now standing up straight, and the Surgeon is comfortable with how it looks. He will always have "hard" lungs now, and not the nice soft spongy ones, hence the reason he will always have to do things slowly now, no high elevations, no diving, and absolutely definitely no smoking. Pulmonary Fibrosis "Hard" lung and scarring of the lungs, which in Raj's case happened, just because of all the other illnesses he had. I'm sure if any of you have read about it, it doesn't always give a great prognosis, but the Surgeon was so happy with how they looked, he said you'll be fine. Just got to slow down with everything you do, and listen to body!
So that is it for now, hopefully in the winter months, we can keep him healthy, away from crowds, and just take each day at a time. Please remember May 18th the fundraiser for Raj here in town, and I will continue to update on this site even once Raj is home.
Thank you all for coming along on the journey with us, there were some hills to climb, and some sharps turns here and there, but for now have managed to get back on the straight and narrow. So for now we are going to try and enjoy this straight and narrow, until it curves off again, which hopefully wont be for a while. Thankss
. Depending on how much the lungs heal will determine, whether or not he stays on oxygen, and surgery will be based on that also. ARDS is what had weakened the lungs, if you look at an image of a healthy set of lungs, and then Raj's his look like hamburgmeat, and this is where time will tell
Anywhere from 1 to 2 years, and wherever they are then is what he will be living with! If your interested Google ARDS, SEPSIS, PNEUMONIA AND PNEUMOTHORAX "COLLAPSED LUNGS".
Have a wonderful Wednesday!
He will continue therapy twice daily focusing on steps, walking, and overall strength. Oxygen is more than likely coming home with him whenever that is, he has been there three weeks now.Saturday is his birthday and he will be a whopping thirty three, yer yer yer he's younger. ! Lol