Colton's Care Angels
Colton has been diagnosed with congenital hyperinsulinism.
The only option for a successful treatment is to go to Children's Hospital of Philadelphia. Candice and Colton will leave this week.
Although the medical will be covered, they have suggested they will need $5000 for additional expenses (food, cabs, travel for Camden, Candice's mom, Chole and Candice there and back home). Jon is staying behind to work, but the financial burden is overwhelming!
The first week back was a little nerve-wracking, due to Colton being hospitalized at Fl Hosp Tampa for an unknown stomach virus that caused him to projectile vomit, leaving his blood sugar super low. We luckily were only there two nights and was sent home as a better baby. He's developed acid reflux, but with the aid of medicine and the right treatment, my baby boy is doing OK!! I am currently checking his blood sugar 3-4 times a day. So far, so good!
Colton and his twin Camden are sprouting away; Colton weighing 13.6lb and Camden weight 13.15lb. BIG BOYS!!!
I have been so grateful to all of you whom donated and also sent your prayers strong. Without ALL of you, we wouldn't have come so far. But, we have and are fighting strong still!
Now, as far as procedures, Colton underwent a surgery to remove 75% of his pancreas on February 14th. This was to cut down the amount of insulin production(too much insulin=low sugar levels). He received no other treatment after except for just monitoring his blood sugar and watching him maintain it all on his own.
Our discharge was bittersweet, only for the hard reality that MY SON IS NOT CURED. This is what I have to come to accept and live through it, praying he will soon, one day grow out of this; especially to not become diabetic later in his childhood. (boys through their growth don't require as much insulin as girls do, so this will be a wait and see what happens)
Continued prayer is what we truly desire and hope to move past all of this. I will say something though; through all of the pain and suffering Colton went through, he is one TOUGH and HAPPY baby!
Thanks again to everyone! Love to all!!!
Candice, Jonathan, Chloe, Colton and Camden
God is good!
God bless all
Candice, Colton, Camden, Chloe and Jon
Please contact Patient AirLift Services they are wonderful and may be able to help, here is there link to Facebook https://www.facebook.com/PatientAirLiftServices
I have shared this to Facebook & I hope it helps you. I am originally from Philadelphia & my brother was at CHOP when he was younger. It's a fantastic hospital. I hope my Philadelphia fb friends can help you.
Thank you so much to those whom have started donating. We really appreciate it. God bless!