Conquering Chiari For My Family
Donation protected
Why I am raising funds:
To be able to afford a Cervical and Lumbar Fusion I need in order to fulfill my dream
that my life will someday be able to return to the way it was before I was diagnosed
with “CHIARI MALFORMATION” So that
way I can give as much of my time and
energy to my family.
Although the pain was debilitating before, I was able to have a certain quality of life. I
was able to work fulltime in a physical
industry and still work at home. Have
enough energy to run my household and
convey kids to and from soccer and netball. Just to be a normal mum.
I’d love to be physically capable of working at least part time. Even the simple things
we take for granted like going swimming
with the kids, to not be in so much pain at
the end of each day that I cry while I make dinner and count down the minutes until
my kids go to bed so they dont have to see me in pain, when they hate seeing their
mum like this.
What the raised funds will pay for:
It will pay for the two surgeries which are
for are a neck and lumbar fusion to keep
me stable and prevent paralysis and
hopefully reduce my pain for about 5 to 10 years
About me:
My name is Casey Lewis and Im a 35 yr old mother of 2 gorgeous kids. Ive lived my
entire life on large farms and don't like to
do things slowly. I love baking and
gardening.
Early this year I was diagnosed with a
condition called Chiari malformation.
As a result of this diagnosis, others
followed:
Ehlers Danlos Syndrome.
Intracranial hypertension.
Degenerative disc disease.
Rheumatoid Arthritis and an as yet
unknown autoimmune disorder...
About Chiari Malformation:
Chiari malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain
tissue extends into your spinal canal. It
occurs when part of your skull is
abnormally small or misshapen, pressing
on your brain and forcing it downward.
My Symptoms:
•Migraine
• Nausea
•Gastroparesis
• Spinal degeneration
• Increased risk of stroke
• Nerve damage
• Tachycardia
• Bowel dysfunction
• Shoulder/neck spasms
• Numbness/tingling
• High Blood Pressure
• Low Heart Rate
• Chronic Pain
In Conclusion:
Ive already had brain surgery once.
Unfortunately it hasnt helped, its actually made things worse. On top of this it has
accelerated my spinal degeneration to the point where fusion is my only alternative to paralysis, and a lifetime of the sort of pain medication that may take away some pain, but also my ability to function.
Currently my life is a series of eight hour
blocks that I break into a day so im not
intimidated by more time in pain ahead. By 1pm I’m incapacitated by physical pain
despite multiple medications. I start dinner on the days I’m able to even cook a meal by 3pm so i can feed the kids by 7pm.
I rarely sleep more than 2 or 3hrs in a
stretch and haven't in months due to pain.
I hesitated over whether it was right or
ethical to start a Go Fund Me Page for
months. In the end I decided to base the
decision on having another ten months left before my surgeon cover kicks in and my
kids dont deserve to lose 4 yrs of their
mother based on any of the above
information and without these procedures by an extremely competent neurosurgeon
that looks to be the least of what they
could lose.
I personally Thankyou for taking the time
to read about my situation and donating
funds to help me be able to afford the
surgery that will make life easier for not
only myself but my family.
Casey
Organizer
Casey Lewis
Organizer
Doyles River NSW