9
9

Loving Landen - Warrior Strong

$460 of $5,000 goal

Raised by 9 people in 30 months
Tammy Fraley   CUMBERLAND, MD
This amazingly strong family needs a little assistance. They constantly pay it forward including the making of goodie bags for children who receive chemo at the same hospital Landen frequents -- and we would like to help them this time with funding for medical expenses and travel/family related items due to the amount of times they are at hospitals, doctors, or just homebound.

Landen is a 4 year old little boy previously diagnoised with Failure to Thrive, Selective IGA Immunodeficiency, Sensory Processing Disorder, Left Tibial Torsion, Autism, Asthma, Severe Allergies, Sleep Apnea and Hypotonia.   After nearly 5 years of fighting for Landen on 04/03/2015 they officially have a reason for the continued severity of his medical conditions. Landen has been diagnosed with JOBS SYNDROME ( job as in the bible). There is no cure. It's a 1 in a million rare disease. This syndrome will cause brittle bones, deformities, scoliosis and more. It's very scary for the family. And as they were learning all all of that -- an additional blow came as they found  a lump on Landens head.

He requires 21 hours of feedings daily through his G-Tube. Weekly Physical therapy and Occupational therapy. Weekly doctors appointments as well as weekly weight checks and frequent hospital stays. Landen's immune system is almost non existent and cannot be replaced. He struggles daily but touches everyone's heart. He is truly a miracle and a warrior!

Please just continue to pray for peace and comfort for the entire family. 


https://www.facebook.com/pages/Loving-Landen/647914358604391
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Update 6
15 months ago
After nearly 5 years of fighting for Landen on 04/03/2015 they officially have a reason for the continued severity of his medical conditions. Landen has been diagnosed with JOBS SYNDROME ( job as in the bible). There is no cure. It's a 1 in a million rare disease. This syndrome will cause brittle bones, deformities, scoliosis and more. It's very scary for the family. And as they were learning all all of that -- an additional blow came as they found a lump on Landen's head.
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Update 5
30 months ago
GREAT NEWS!!! Landen is back home -- beat that flu down!!!
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Update 4
30 months ago
Landen is in the hospital in Cumberland, MD -- please continue to give him and his family your thoughts and prayers.
Landen - fighting the flu
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Update 3
30 months ago
Here is what is coming up for Landen in the next few weeks (pending no extra hospital admissions)
~Jan 30th - Morgantown to see his G.I doctor.
~Feb 3rd - Morgantown to see his neurologist
~Feb 11th- Morgantown for CT Scan then ENT.

In the mix he will get his weekly weight checks and a follow up from last weeks hospital stay.
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$460 of $5,000 goal

Raised by 9 people in 30 months
Created January 18, 2014
$20
Anonymous
15 months ago
PP
$15
Paul Angela Kaylee Penrod
15 months ago

We love you all

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BD
$100
Bethany Devilbiss
30 months ago

Prayers to you!

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$100
Anonymous
30 months ago
JT
$25
John Twigg
30 months ago

God bless Landen and his family

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$30
Anonymous
30 months ago
$20
Anonymous
30 months ago
D
$50
Danielle
30 months ago

west of luck to sweet little Landen!!! he is such a little warrior

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$100
Anonymous
30 months ago
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