Loving Landen - Warrior Strong
Donation protected
This amazingly strong family needs a little assistance. They constantly pay it forward including the making of goodie bags for children who receive chemo at the same hospital Landen frequents -- and we would like to help them this time with funding for medical expenses and travel/family related items due to the amount of times they are at hospitals, doctors, or just homebound.
Landen is a 4 year old little boy previously diagnoised with Failure to Thrive, Selective IGA Immunodeficiency, Sensory Processing Disorder, Left Tibial Torsion, Autism, Asthma, Severe Allergies, Sleep Apnea and Hypotonia. After nearly 5 years of fighting for Landen on 04/03/2015 they officially have a reason for the continued severity of his medical conditions. Landen has been diagnosed with JOBS SYNDROME ( job as in the bible). There is no cure. It's a 1 in a million rare disease. This syndrome will cause brittle bones, deformities, scoliosis and more. It's very scary for the family. And as they were learning all all of that -- an additional blow came as they found a lump on Landens head.
He requires 21 hours of feedings daily through his G-Tube. Weekly Physical therapy and Occupational therapy. Weekly doctors appointments as well as weekly weight checks and frequent hospital stays. Landen's immune system is almost non existent and cannot be replaced. He struggles daily but touches everyone's heart. He is truly a miracle and a warrior!
Please just continue to pray for peace and comfort for the entire family.
https://www.facebook.com/pages/Loving-Landen/647914358604391
Landen is a 4 year old little boy previously diagnoised with Failure to Thrive, Selective IGA Immunodeficiency, Sensory Processing Disorder, Left Tibial Torsion, Autism, Asthma, Severe Allergies, Sleep Apnea and Hypotonia. After nearly 5 years of fighting for Landen on 04/03/2015 they officially have a reason for the continued severity of his medical conditions. Landen has been diagnosed with JOBS SYNDROME ( job as in the bible). There is no cure. It's a 1 in a million rare disease. This syndrome will cause brittle bones, deformities, scoliosis and more. It's very scary for the family. And as they were learning all all of that -- an additional blow came as they found a lump on Landens head.
He requires 21 hours of feedings daily through his G-Tube. Weekly Physical therapy and Occupational therapy. Weekly doctors appointments as well as weekly weight checks and frequent hospital stays. Landen's immune system is almost non existent and cannot be replaced. He struggles daily but touches everyone's heart. He is truly a miracle and a warrior!
Please just continue to pray for peace and comfort for the entire family.
https://www.facebook.com/pages/Loving-Landen/647914358604391
Organizer
Tammy Fraley
Organizer
Cumberland, MD
