Raquel Fernandez Orthopedic Boots
Ps: We were fighting to get her what she "immediately" needs which are the orthotics and stander. But the reality is: there are very expensive genetic testings being done that I will be use the additional funds towards. It will alleviate us immensely. The Genetic Specialists will be looking at different things. Here are some of the syndromes they will be mainly be looking for: Retts, Angelman, Pitt-Hopkins, Mowat-Wilson, CNTNAP2 & NRXN1. Thanks again for your generosity and kind gesture. ❤️
I will be closing this page. Lots of things will be occurring in the upcoming months:
*Raquels blood results should be arriving in 6-8 weeks.
* She will be casted for the orthotics in about a week.
* We have applied for the rental of a stander which we are currently on a waiting list for.
* She has a very important evaluation with CCS on February 3rd, and much much more to come.
I will be emailing family and friends updates regularly. If you want to be included in the updates, please email me at: email@example.com.
"Thank you" once again. God Bless.
Much Love always,
Good morning everyone,
Raquel had her blood drawn yesterday for the genetic testing. The lab we found that does the most amount of testing for the least amount of $ is in the University of Chicago. The blood work will be sent there. We should have the results back within 8-12 weeks. I am praying that although "it quacks like a duck, and it walks like a duck" it isn't a duck. I'm praying for good news, and that their suspicions of possibly being Retts syndrome or the other regression types of syndromes as I previously mentioned, is incorrect.
Here is a something I created for her and want to share with all of you: "A Mother's Prayer"
Thank you all for your love and support.
Much love always,
Renata (Raquels mom)
I am deeply touched by all of you in such way that words can't express the magnitude. I am forever grateful. I will remain hopeful and will hang on to faith. Thank you.
Much love always,
Renata (Raquel's mom)