Raising Money For Little Arlo

Arlo was diagnosed with embryonal rhabdomyosarcoma of the bladder and prostate at only 4 months old. About 3 weeks before he was diagnosed he had a UTI which was discovered by a home dr after a week or so of high temps and belly pain, the doctor wanted to send him for an ultrasound to investigate further as it’s not common for boys to get UTI’s. The results were devastating arlos urine was being blocked by a mass in his bladder which was sending his urine back up to his kidneys. family dr had already organised for arlo to go straight up to the hospital for another ultrasound and they put a catheter in his bladder to try and drain his urine which didn’t work and he went down hill really quickly from his kidneys and his whole body was full of fluid. They took him back in to surgery to put two stents in his ureters with tubes coming out of his sides to drain his urine out, they worked for a short while then stopped working, he was taken up to PICU as he was not good at this point. They took him back in for surgery to attempt to put bigger stents in his ureters which ended up with the same outcome they worked for a little while then stopped. He was deteriorating fast he was hypertensive and his electrolytes weren’t good he was going in to kidney failure... the doctors spent half the day talking with Westmead to see if their was anything else they could do for him there or send him to Sydney for dialysis. They came up with one last procedure to redirect his urine with two urostomy’s which thankfully was a success. He started improving and once he was in the clear we went back to the ward, about a week later he started chemo, his protocol goes for 34weeks. his last MRI about 4 months ago showed them tumour had not shrunk but at least it hadn’t spread or gotten any bigger. We are hoping arlo is a good candidate for brachytherapy radiation which once he is well enough he will go to Westmead,Sydney for. Arlo has spent a lot of time in hospital sick it was becoming routine to be in there every second week either sick from his 5 day irinotecan chemo or from a bug/virus and also infections, his biggest issue was bacteria in his urine which his now on a low dose long term antibiotic for which has helped a lot. Arlo has struggled a lot with gaining weight and is on a high calorie formula and on pump feeds, he doesn’t care much for food and doesn’t tolerate much very well so it’s made it quite hard especially with being sick a lot. Arlo has 3 older siblings, kaiden is 6.5 years old, Levi is 3.5 years old and Layla is 2 years old they adore him and miss his so much when his in hospital, it’s really hard on both parents as one has to constantly stay in hospital and the other hold the fort at home whilst working to cover medical expenses. Any amount will help please share this page. ❤️