D'Marko Blewett Medical Needs

I know D'marko will be upset I am doing this but I am sucking up my pride & asking for help. In Feb. 2017, after returning from a trip, D'Mark became very sick. over the months since he has been in & out of doctors trying to find answers since he's wad being worse even with meds. then in Aug. 2017 was hospitalized for Heart and Lung failure. Our life changed drastically since. Over the past year we have been back and forth to doctors with no answers- tests, procedures etc etc then in feb. 2018 after having another procedure done we started to get answeres. We were told there is no cure that all they can do is try to slow progress down and control it With different medications every few weeks what seems to be no relief but worsening. Now we are told he needs another procedure that could be very helpful in adding a few more years to his life. This is where the Story begins of why I am starting a GoFundMe page. Our insurance is only covered $4,000 & our total bills have already added close to $90,000 & continue to grow- all the procedures that have been done recently have all been out of pocket & his next one will have to be out of pocket as well which is going to cost around $5000 x2 . (we just recently found out its two separate studies 2 weeks apart- both charged seperstly) The only difference is all the others we are making payments on and this one has to be paid all up front. So I am swallowing my pride and asking for help so that done ASAP so that his quality of life may improve a little bit more . Anything above the amount will go towards current & upcoming medical bills and prescriptions needed that aren't covered By insurence.