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5 year old Cancer Fighter Needs Care

$34,202 of $80,000 goal

Raised by 497 people in 4 months
Created January 1, 2019
Dear Everyone:
 
Our dear friend and sister, Jaime Spiliotes and her 5-year old daughter Violet have had a drastic life changing few weeks. Violet is fighting Stage 3 Cancer.  
 
It started a long time ago. Violet was going from doctor to doctor and Jaime was variably told that her daughter had a virus; that a 105.9 fever was nothing to worry about; that she had tummy troubles; that some kids just vomit when they smell things; that she was constipated; and, that a large lump on her side was just some poop stuck in her bowels. She was told to just give Violet some Magnesium.

Jaime had brought Violet to several doctors over the years. It made no sense to any of us that an active child, who ate an incredibly healthy and mostly sugar-free diet should appear to carry so much belly fat (which turned out to be a tumor). The doctors, one after the other, dismissed the very tangible lump on her side, insisting it was stool despite Jaime's protestations that the child was not constipated. When Violet developed rashes, they were dismissed as allergies. Unexplained fevers were met with instructions to take Tylenol. Vomiting after meals was attributed to eating dairy. When Jaime insisted that extensive bloodwork be done, inflammatory markers were off the charts. Still, Jaime was told that this was nothing to worry about and it was just something she had eaten and the yet undiagnosed food allergy.
 
Although the vomiting stopped, the random fever spikes worsened; Jaime insisted that Violet be seen by the head of the pediatric practice. That doctor sent Violet to the ER.  
 
Things progressed quickly...Violet has just undergone surgery to remove a kidney and a massive watermelon sized tumor that had taken over her entire abdomen. When she awoke from the surgery, she signed, "I love you" and fell back to sleep. A couple of days later, she announced, "I have never felt so good!" Unfortunately, that feeling was short lived as she has just begun chemo therapy and radiation. The treatments are aggressive and Violet is scared, but she has been incredibly brave throughout the last couple of weeks. She knows she will experience side effects such as nausea and that she will lose all her hair. She spent New Year's Day vomiting from the side effects of her first day of Chemo.  

Violet is preparing for six-months of treatment, and then recovery from the tolls of her treatment. During this time, she will be immuno-suppressed and isolated to avoid contracting any illness that might interfere with her treatment. Jaime will have to leave her job to provide Violet with the constant care she deserves and will need. Jaime is a single-mom, who has always found time to help her friends and family. Now she needs our help.
 
We can continue to give her emotional support and all the time we can afford away from our own families and jobs. We can assist with preparing meals that cater to Violet's current needs, and run errands. But, what Jaime will need most in the year to come is financial support to cover her monthly expenses while she remains at home caring for Violet. So, we created this Go Fund Me page to help Jaime.
 
Your support is very much appreciated and will alleviate some of the stress Jaime faces in the year to come. Thank you for reading this and please reach out if you have any questions or suggestions.

Please repost and share.
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Update week 16:
CHILDHOOD CANCER is NOT CUTE.

Violet was fortunate enough to get a gift from a childhood cancer organization run by some very awesome teenagers. They call themselves team.cure. They have an Instagram site for childhood cancer awareness. A few days ago they posted some pictures of children getting their treatments. Very truthful pictures that are a cancer kid’s reality. Instagram took down their post. It was reported as inappropriate. I can’t stop thinking about it... it makes me so angry and frustrated.
The children are cute but the cancer is not: Childhood cancer is not bald headed children grinning from the packages sent to them. It is not the sponsored trips they get to take or experiences they get to have. Childhood cancer is not the LLS Prom, or the summer camps that are free to them...
These things exist ( thank God and thank all of you!) because childhood cancer is cruel, not cute. These are the things that balance out the needles, and chemicals, vomit, infusions, surgeries and yes, deaths. It is missed Birthday parties, including their own, isolation, mask wearing public outings, being pulled from school...
So seeing the reality might suck but these kids need the general population to support them, rally for them and raise awareness and funding for a very ignored issue and growing epidemic, not report their pictures. These children are innocent, and did not ask for this.
On that note... Violet continues to prosper and had great blood counts today despite a traumatic blood draw... she just wasn’t having it and is starting to feel the weight of how much time she has given to cancer.
This past week Violet went to the Lukemia and Lymphoma Society Little Heroes Prom with her cousin Cole and BFF Jack. Jack’s parents got them a limo for the event which made the night extra special. It was a beautiful and humbling event and as one parent put it, a night where cancer does not exist.
So thank you all for helping balance out the bad with all the good! Please continue to pray for Violet and all her friends healing cancer. Thank you for your support! Please share this page and help spread childhood cancer awareness. When we are aware we care!
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Week 19:
So Violet had a double chemo today. There were some unusual tears, pain and a bit of stress today but she pushed through it. Now we are just bracing ourselves for the sickness that has routinely followed. The hospital visit was bitter sweet... Violet played with a boy she friended some time ago. I found out today he has relapsed for the fourth time. I can’t even express what this makes me feel and I’m not going even try because there are no words for these situations.
Violet is ending her treatment in a couple months. I am beyond grateful for how smoothly it has gone but I look at the statistics for long term effects and I look at the real cases/the children that sit with Violet in chemotherapy and those stats become humans and in turn become some serious anxiety.
Fortunately, Violet doesn’t know it and all she sees beyond the pain is a whole lot of love. She was fortunate enough to have a police car ride with Sgt. Miller this week and a fire truck ride with Pam Leone. They drove her past her school where her principal Jacklyn Roussos had the entire school standing outside chanting her name. If you didn’t see this please check out my Facebook page to watch the videos and prepare to cry!
Thankfully the weather has been warm enough that Violet was able to play outside with her friends Luke and Jack. Her blood counts were not that high today so glad she got that opportunity because now we are going to spend a few days resting and in isolation.
I could keep going but I will leave it at this THANK YOU ALL... every prayer counts, every card, every donation, every gift, every well wish, every share of this page, every experience, every phone call, text message and Instagram comment.... it all counts towards this overall feeling of support, love and joy. You all have a five year old saying, “There are positive things to having cancer.” She was speaking about all of you and your LOVE. So right back at all of you. Much love and gratitude to you all!
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Week 18 update: Since Violet’s blood counts are so high this week, she does not have to report to the hospital until next week for her scheduled chemo.
So I’d like to take a minute to raise some awareness about childhood cancer. It was something I knew so little about because it hurts to see it and think about it so beyond the odd charitable donation and many prayers for those affected, I focused my humanitarian efforts elsewhere. Then one minute I was a mom, and then the next a cancer mom... and it was suddenly not just an interest but an all -consuming preoccupation. I used to think that childhood cancer is so rare that it really is only a concern to a select few...
But the truth is, it is not so rare. In fact 1 in every 285 children will be diagnosed with cancer in the USA. Worldwide, every two minutes a child is diagnosed with cancer. I find that number alarming! And it isn’t a cake walk either... Sure, Violet has an unparalleled positive attitude; but 1 in 5 children with cancer die from cancer. Cancer is the number one killer of children under 14.
Cancers children get and those adults get are very different. Violet had a Wilms tumor (kidney) which is rare in anyone over 5. Despite the different types of cancers children are still being treated with the same harsh chemotherapy drugs that adults get. Only 3.8 percent of the cancer research budget is allotted to childhood cancers! So there has been little progress made. The protocols for children have been the same since the 1970s! The latest drug was developed 30 years ago!
The drugs are harsh. The reason Violet has a port is because if she had an IV the drugs would burn through her veins. The vincristine chemo she gets can make a child’s bones equivalent to those of an 80 year olds with osteoporosis. The other chemos can cause heart damage and organ failure. 2/3 of childhood cancer patients will have life long issues.
Oh, and guess what?! If you want to try alternative treatments for your child CPS will take your child away from you. Your child belongs to the government/pharmaceutical companies once diagnosed. (I highly suggest watching Flipping the Script by Jeff Witzeman. It’s a fabulous documentary about parents who took childhood cancer into their own hands.)
We need to do better by our children. Less than 5 percent of childhood cancers are believed to be gentic. So guess what is left- our environment. The round up we spray on our lawns, the bleach we pour into our water system, the plastics we microwave our food in, the additives we inject into our children, the processed and preserved fast foods we are eating....
Please educate yourselves on holistic, healthy living. Make changes now for yourselves, your children, your neighbors. We need to work together towards a cancer free world.
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Update: Week 17. Violet had to go to the hospital to get her blood counts checked today. After a double chemo, like she had last week, blood counts fall to their lowest 7-10 days later... this is usually when we are most careful with keeping her from things that can compromise her immune system. However, her blood counts today were HIGHER than last weeks! So she is staying strong and healthy. This is thanks to acupuncture, CST, supplements, exercise,healthy/ organic /sugar free/gluten free/ unprocessed foods, and her positive attitude!
Today she ran into a friend and when asked how it was going he said, “terrible.” Although he was kidding, Violet said, “Don’t say that. I have cancer, I have to go the hospital each week, I got stuck with a big needle today...But I feel good! My blood counts are high and I feel great!” She told me that she thinks having cancer is helping her appreciate things, and look on the bright side. I couldn’t agree more. Thank you to everyone that continues to support us emotionally, financially, and by sharing this page. All the support makes this experience bearable for both of us! Violet is going to do great things!
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$34,202 of $80,000 goal

Raised by 497 people in 4 months
Created January 1, 2019
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