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5 year old Cancer Fighter Needs Care

$35,698 of $80,000 goal

Raised by 522 people in 6 months
Created January 1, 2019
Dear Everyone:
 
Our dear friend and sister, Jaime Spiliotes and her 5-year old daughter Violet have had a drastic life changing few weeks. Violet is fighting Stage 3 Cancer.  
 
It started a long time ago. Violet was going from doctor to doctor and Jaime was variably told that her daughter had a virus; that a 105.9 fever was nothing to worry about; that she had tummy troubles; that some kids just vomit when they smell things; that she was constipated; and, that a large lump on her side was just some poop stuck in her bowels. She was told to just give Violet some Magnesium.

Jaime had brought Violet to several doctors over the years. It made no sense to any of us that an active child, who ate an incredibly healthy and mostly sugar-free diet should appear to carry so much belly fat (which turned out to be a tumor). The doctors, one after the other, dismissed the very tangible lump on her side, insisting it was stool despite Jaime's protestations that the child was not constipated. When Violet developed rashes, they were dismissed as allergies. Unexplained fevers were met with instructions to take Tylenol. Vomiting after meals was attributed to eating dairy. When Jaime insisted that extensive bloodwork be done, inflammatory markers were off the charts. Still, Jaime was told that this was nothing to worry about and it was just something she had eaten and the yet undiagnosed food allergy.
 
Although the vomiting stopped, the random fever spikes worsened; Jaime insisted that Violet be seen by the head of the pediatric practice. That doctor sent Violet to the ER.  
 
Things progressed quickly...Violet has just undergone surgery to remove a kidney and a massive watermelon sized tumor that had taken over her entire abdomen. When she awoke from the surgery, she signed, "I love you" and fell back to sleep. A couple of days later, she announced, "I have never felt so good!" Unfortunately, that feeling was short lived as she has just begun chemo therapy and radiation. The treatments are aggressive and Violet is scared, but she has been incredibly brave throughout the last couple of weeks. She knows she will experience side effects such as nausea and that she will lose all her hair. She spent New Year's Day vomiting from the side effects of her first day of Chemo.  

Violet is preparing for six-months of treatment, and then recovery from the tolls of her treatment. During this time, she will be immuno-suppressed and isolated to avoid contracting any illness that might interfere with her treatment. Jaime will have to leave her job to provide Violet with the constant care she deserves and will need. Jaime is a single-mom, who has always found time to help her friends and family. Now she needs our help.
 
We can continue to give her emotional support and all the time we can afford away from our own families and jobs. We can assist with preparing meals that cater to Violet's current needs, and run errands. But, what Jaime will need most in the year to come is financial support to cover her monthly expenses while she remains at home caring for Violet. So, we created this Go Fund Me page to help Jaime.
 
Your support is very much appreciated and will alleviate some of the stress Jaime faces in the year to come. Thank you for reading this and please reach out if you have any questions or suggestions.

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Week 32
Violet has been going strong... her incision site is finally healed and she is now able to swim! She did have a trip to the ER when her steri strips came undone and she needed to be “stitched” up again... but it seems to have healed nicely now (despite an allergic reaction to the steri strips adhesive!)
Currently Violet has a cold and can’t go out... her immune system will be low for approx six months while her blood counts rebuild. So she is more susceptible to viruses and bacteria... the cold is unfortunate but not surprising.
This week Violet went to acupuncture and had a trip to the hospital for a follow up/check up on top of her ER visit. So the medical trips have not stopped but the feeling of normalcy is slowly ( very slowly) returning. Going into a store or eating inside restaurant are huge deals for Violet. She was over the moon when I took her to an early morning Toy Story 4 matinee.
Violet has begun sunrise day camp- a camp for kids who had or have cancer. It’s about an hour bus ride each way so she up North getting some fresh air and fun. Unfortunately it is not going too well as her anxiety about being away from me consumes her. She is also having a difficulty relating to her peers. She is the youngest in her 6-7 troop but they suggested she move up to the 8-9 group. We are just taking it day by day now. It’s supposed to be fun for her but if it continues to cause her stress she will just stop going.
Thank you for your continued support and prayers!
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Week 27:
Update: I have posted outside of this page but I know not everyone has Facebook and they follow Violet’s journey here... so the good news is her port is out! She had a successful port surgery and even got to keep her port ( she asked to have it so she could teach other people about them- watch out show and tell.) she is now NED- No evidence of disease but will be closely monitored with scans every three months for the next five years and then yearly after that. She will also continue the various treatments she gets and continue to take the supplements that have helped to keep her so strong- things that cost me a ridiculously monthly fee so super thank you for all the support on here. You have all helped her thrive and survive!
She is about to start Camp Sunrise, a day camp in Pearl River for kids with cancer or who have had cancer, staffed with a medical team! It’s a beautiful facility and will keep Violet in nature, her favorite place to be. I love to keep Violet with me in the summertime and do as many cool day trips as possible but right now Violet desperately needs to socialize with her peers which will help her smoothly transition back to school.
I will update this a few periodically to give you all some more news on Violet, but soon I will transition this page into a blog/website so stay tuned for that. Violet and I are starting a foundation called Viva Violet. We have lots of ideas but the importance of giving back is behind it. So we can’t wait for that!! First some decompression time is on order but ideas are always stirring!
Thank you to each and everyone one of you that helped get Violet this far. Every prayer, word of kindness, every donation, every card, every package, every text message, call, ALL OF IT, ALL OF YOU helped get her here! I have so much gratitude for your kindness that I am both humbled and happy. Xoxoxo
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Week 26...
Violet had blood work today. She got the clear for surgery in terms of her counts, which is great news. It has been a holy hell rough week. Violet said chemo ending was uneventful and although she is glad it’s over she was underwhelmed by the occasion. She still has to avoid indoor environments and all until after surgery so the shift in circumstances has not really made a difference in Violet’s mind quite yet.
Violet has also been releasing some pent up emotions. She has been crying uncontrollably and could not pinpoint why. It has been very tough to witness her so inconsolable. When exploring ideas as to why she is suddenly feeling all the feels I brought to her attention her strength. She said, “Everyone tells me I am so strong so I have been so strong but I really just want to cry.” So we got to the bottom of it- now that chemo has ended she is allowing herself to feel every emotion she has been suppressing for the sake of a brave face. It seems when that was recognized and the crying was encouraged her emotions began to stabilize again.
So the rest of the week we are going to continue with the usual appointments of various therapies and enjoy the outdoors as we mentally prep for scans and port removal surgery! Please continue to pray for Violet!
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Week 25-
Today was Violet’s last chemotherapy. I am honestly too exhausted to say much. I feel like I have collapsed at the finish line... only it’s not over yet. She still has to stay extra well before her port surgery and still has two more scans and an EKG before she can be operated on. Even though there is more to go today was definitely a huge milestone. I am beyond proud of her and beyond grateful for everyone who contributed to her health:emotional/mental and physical! So please check out her pictures to see how we marked the occasion...
Stay tuned for more... I will keep you all updated on her progress and we can all breathe a sigh of relief when the port comes out and her blood counts are back to normal!
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$35,698 of $80,000 goal

Raised by 522 people in 6 months
Created January 1, 2019
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